How are you dealing with fatique and constipation in PD?

Posted by Starbright @gulfer, Jul 16, 2017

My mom told me today she is having extreme fatigue today. She was ok yesterday. She is also experiencing constipation problem. I will suggest her probiotic vitamins or supplements besides leafy veggies or salad. Do you think that might be a good idea to get probiotics or not? Also what would you recommend her for extreme fatique? What might cause that? She is wondering if that fatigue and constipation is a side effect of pexola? We really need your suggestions pleas.
Thank you!-Gulfer

Interested in more discussions like this? Go to the Parkinson's Disease Support Group.

@hopeful33250

@gulfer Fatigue and constipation are certain part of the PD symptoms. Keeping hydrated is important - so drinking lots of water is a good thing. Also some stool softeners can be a good idea. MiraLax can be used daily, if needed, for help with constipation. Here is a document from the National Parkinson's Foundation that gives some good ideas for dealing with constipation, http://www.parkinson.org/sites/default/files/Constipation%20in%20Parkinson%27s%20Disease.pdf.

Fatigue is a chronic problem for us all. I limit exercise and activities - because being overtired can create heavy fatigue that will last for several days. I still do mild exercise - but I try not to keep up with the same level of activity that I did pre-Parkinson's. Here is another article that you might find helpful, http://www.parkinson.org/sites/default/files/fatigue-and-parkinsons.pdf.

You are asking great questions!

Do any of our other members have any suggestions regarding fatigue or constipation? @chrisj2491 @denie57 @johnjames @trouble4343 @ggopher @tntredhead @aperob @caryp43 @burgle @macbeth @knightkris @mariemarie @pjsammy @techi @sandycerem @bobbieingeorgia

Teresa

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@mojo1965 Hi Monika: You are asking great questions! It sounds like your dad is getting very loving and consistent care at this stage of life. I doubt, however, that any doctor knows how long this end stage will last. When I looked at the website regarding Lansoyl it did indicate some problems, here is the website I was referring to, http://www.livestrong.com/article/273318-lansoyl-jelly-side-effects/ . If you look at the paragraph titled, Long Term Side Effects, you can see some of the problems that can occur if it is used on a regular basis.

Have you considered Palliative Care? Palliative Care is not the same as Hospice Care, but it does offer relief for many of the problems associated with serious health problems at all stages. Here is a Mayo website that can give you more information about Palliative Care, http://www.mayoclinic.org/tests-procedures/palliative-care/in-depth/palliative-care/art-20047525. Take a look at this article and see if this might be a helpful option for your dad and the rest of your family. Please stay connected with us and we will try to offer as much support as we can. Teresa

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Hi all: I received some information about constipation and the use of OTC laxatives from a Mayo Clinic newsletter. I thought it might be an interesting tie in to our discussion. Here is the website address: http://www.mayoclinic.org/diseases-conditions/constipation/in-depth/laxatives/art-20045906

What have you have experienced from using OTC laxatives? Any ones that work well for you?

Teresa

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@hopeful33250

@gulfer Fatigue and constipation are certain part of the PD symptoms. Keeping hydrated is important - so drinking lots of water is a good thing. Also some stool softeners can be a good idea. MiraLax can be used daily, if needed, for help with constipation. Here is a document from the National Parkinson's Foundation that gives some good ideas for dealing with constipation, http://www.parkinson.org/sites/default/files/Constipation%20in%20Parkinson%27s%20Disease.pdf.

Fatigue is a chronic problem for us all. I limit exercise and activities - because being overtired can create heavy fatigue that will last for several days. I still do mild exercise - but I try not to keep up with the same level of activity that I did pre-Parkinson's. Here is another article that you might find helpful, http://www.parkinson.org/sites/default/files/fatigue-and-parkinsons.pdf.

You are asking great questions!

Do any of our other members have any suggestions regarding fatigue or constipation? @chrisj2491 @denie57 @johnjames @trouble4343 @ggopher @tntredhead @aperob @caryp43 @burgle @macbeth @knightkris @mariemarie @pjsammy @techi @sandycerem @bobbieingeorgia

Teresa

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@mojo1965

Hello Monika,

I was just thinking about you and wondering how you and your family are doing with your dad's Parkinson's problems. Please keep in touch with us and let us know how we can be supportive of your family during this time.

Teresa

REPLY
@hopeful33250

@gulfer Fatigue and constipation are certain part of the PD symptoms. Keeping hydrated is important - so drinking lots of water is a good thing. Also some stool softeners can be a good idea. MiraLax can be used daily, if needed, for help with constipation. Here is a document from the National Parkinson's Foundation that gives some good ideas for dealing with constipation, http://www.parkinson.org/sites/default/files/Constipation%20in%20Parkinson%27s%20Disease.pdf.

Fatigue is a chronic problem for us all. I limit exercise and activities - because being overtired can create heavy fatigue that will last for several days. I still do mild exercise - but I try not to keep up with the same level of activity that I did pre-Parkinson's. Here is another article that you might find helpful, http://www.parkinson.org/sites/default/files/fatigue-and-parkinsons.pdf.

You are asking great questions!

Do any of our other members have any suggestions regarding fatigue or constipation? @chrisj2491 @denie57 @johnjames @trouble4343 @ggopher @tntredhead @aperob @caryp43 @burgle @macbeth @knightkris @mariemarie @pjsammy @techi @sandycerem @bobbieingeorgia

Teresa

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Hi Teresa, thank you so much for checking in. We are managing my Dad with daily mini doses of laxatives along with his prune juice and pureed veggies. He having more and more challenges swallowing and really has to concentrate to make it happen. It's birthday week for our family...my Dad yesterday and my Mom today. He got all his fave mushy desserts...lol! And even though he can't read anymore, he knows how to take the cards out of the envelopes and is a bit stubborn about getting them back in by himself...I love that!
So, we are hanging in day by day. Tonight we are taking my mom to a beautful restaurant for an entire evening out. I hope she loves it!
Thanks again, Teresa and I hope you are enjoying the summer.
Monika

REPLY
@hopeful33250

@gulfer Fatigue and constipation are certain part of the PD symptoms. Keeping hydrated is important - so drinking lots of water is a good thing. Also some stool softeners can be a good idea. MiraLax can be used daily, if needed, for help with constipation. Here is a document from the National Parkinson's Foundation that gives some good ideas for dealing with constipation, http://www.parkinson.org/sites/default/files/Constipation%20in%20Parkinson%27s%20Disease.pdf.

Fatigue is a chronic problem for us all. I limit exercise and activities - because being overtired can create heavy fatigue that will last for several days. I still do mild exercise - but I try not to keep up with the same level of activity that I did pre-Parkinson's. Here is another article that you might find helpful, http://www.parkinson.org/sites/default/files/fatigue-and-parkinsons.pdf.

You are asking great questions!

Do any of our other members have any suggestions regarding fatigue or constipation? @chrisj2491 @denie57 @johnjames @trouble4343 @ggopher @tntredhead @aperob @caryp43 @burgle @macbeth @knightkris @mariemarie @pjsammy @techi @sandycerem @bobbieingeorgia

Teresa

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Hi Monika, @mojo1965

Thanks for the update - your family sounds just wonderful!! Your dad sounds like a delightful person who hangs in there and keeps trying to be as independent as possible. I hope your mom has a lovely birthday dinner - how nice that she can have a night out.

Teresa

REPLY

My husband will be 80 in April and was diagnosed with Parkinson’s in 2023. He takes carbadopa-Levo
4 times a day. He is also on blood thinners because he had a stent prior to be diagnosed with Parkinson. He must walk with a rollator because balance problems. He has no energy and just sleeps a lot. His primary Dr or neurologist don’t seem to have an answer. Is there something he can take that will help with this problem? Thanks for your time.

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@sherryallen

My husband will be 80 in April and was diagnosed with Parkinson’s in 2023. He takes carbadopa-Levo
4 times a day. He is also on blood thinners because he had a stent prior to be diagnosed with Parkinson. He must walk with a rollator because balance problems. He has no energy and just sleeps a lot. His primary Dr or neurologist don’t seem to have an answer. Is there something he can take that will help with this problem? Thanks for your time.

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Hello @sherryallen and welcome to the PD support group on Mayo Connect. Most of us with PD do experience fatigue. I've asked that your post be moved to another PD discussion on the subject of fatigue with PD.

Before your husband's diagnosis and treatment was he having similar problems with fatigue? Often the medications for PD do cause sleepiness. Sometimes a medication called Amantadine can be prescribed for fatigue. You might want to inquire if that would be a possibility for your husband to try.

It might be good to look at his activity level. Sometimes moderate exercise can improve fatigue. Has he had any physical therapy for his balance problems? If not, you might request a referral for physical therapy.

Often a low level of depression accompanies brain disorders like PD. Has he ever been treated for depression? There is a lot to consider when looking for reasons for fatigue, especially as we age.

Please keep posting your questions and concerns. We have a lot of members who are experienced with PD and someone may be able to offer some more strategies to deal with this very real problem.

REPLY
@hopeful33250

Hello @sherryallen and welcome to the PD support group on Mayo Connect. Most of us with PD do experience fatigue. I've asked that your post be moved to another PD discussion on the subject of fatigue with PD.

Before your husband's diagnosis and treatment was he having similar problems with fatigue? Often the medications for PD do cause sleepiness. Sometimes a medication called Amantadine can be prescribed for fatigue. You might want to inquire if that would be a possibility for your husband to try.

It might be good to look at his activity level. Sometimes moderate exercise can improve fatigue. Has he had any physical therapy for his balance problems? If not, you might request a referral for physical therapy.

Often a low level of depression accompanies brain disorders like PD. Has he ever been treated for depression? There is a lot to consider when looking for reasons for fatigue, especially as we age.

Please keep posting your questions and concerns. We have a lot of members who are experienced with PD and someone may be able to offer some more strategies to deal with this very real problem.

Jump to this post

Thank you for getting back with me in ref to my husbands low energy level. He did not suffer with the extreme fatigue as he does now. Yes he takes Paxil for depression. This has been a very tough year for my sweet husband and I might add a very exhausting year for me as caregiver. I am so grateful for others such as yourself that are willing to help other PD patients. Thank you

REPLY
@hopeful33250

Hello @sherryallen and welcome to the PD support group on Mayo Connect. Most of us with PD do experience fatigue. I've asked that your post be moved to another PD discussion on the subject of fatigue with PD.

Before your husband's diagnosis and treatment was he having similar problems with fatigue? Often the medications for PD do cause sleepiness. Sometimes a medication called Amantadine can be prescribed for fatigue. You might want to inquire if that would be a possibility for your husband to try.

It might be good to look at his activity level. Sometimes moderate exercise can improve fatigue. Has he had any physical therapy for his balance problems? If not, you might request a referral for physical therapy.

Often a low level of depression accompanies brain disorders like PD. Has he ever been treated for depression? There is a lot to consider when looking for reasons for fatigue, especially as we age.

Please keep posting your questions and concerns. We have a lot of members who are experienced with PD and someone may be able to offer some more strategies to deal with this very real problem.

Jump to this post

Thank you so much for getting back with me. I am learning so much about PD and this site is awesome. It’s people like you that make it this way. Thank you again.

REPLY
@hopeful33250

Hello @sherryallen and welcome to the PD support group on Mayo Connect. Most of us with PD do experience fatigue. I've asked that your post be moved to another PD discussion on the subject of fatigue with PD.

Before your husband's diagnosis and treatment was he having similar problems with fatigue? Often the medications for PD do cause sleepiness. Sometimes a medication called Amantadine can be prescribed for fatigue. You might want to inquire if that would be a possibility for your husband to try.

It might be good to look at his activity level. Sometimes moderate exercise can improve fatigue. Has he had any physical therapy for his balance problems? If not, you might request a referral for physical therapy.

Often a low level of depression accompanies brain disorders like PD. Has he ever been treated for depression? There is a lot to consider when looking for reasons for fatigue, especially as we age.

Please keep posting your questions and concerns. We have a lot of members who are experienced with PD and someone may be able to offer some more strategies to deal with this very real problem.

Jump to this post

They are currently treating my husband for depression. He had a mild stroke last year and that is when he was diagnosed with Parkinson’s. He has other health issues as well. He has had 2 bad falls which resulted short stays in rehab to get him back on his feet.

REPLY
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