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Starbright
@gulfer

Posts: 14
Joined: Jul 12, 2017

How are you dealing with fatique and constipation in PD?

Posted by @gulfer, Sun, Jul 16 11:11am

My mom told me today she is having extreme fatigue today. She was ok yesterday. She is also experiencing constipation problem. I will suggest her probiotic vitamins or supplements besides leafy veggies or salad. Do you think that might be a good idea to get probiotics or not? Also what would you recommend her for extreme fatique? What might cause that? She is wondering if that fatigue and constipation is a side effect of pexola? We really need your suggestions pleas.
Thank you!-Gulfer

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Teresa, Volunteer Mentor
@hopeful33250

Posts: 2447
Joined: Mar 28, 2016
Posted by @hopeful33250, Sun, Jul 16 5:22pm

@gulfer Fatigue and constipation are certain part of the PD symptoms. Keeping hydrated is important – so drinking lots of water is a good thing. Also some stool softeners can be a good idea. MiraLax can be used daily, if needed, for help with constipation. Here is a document from the National Parkinson’s Foundation that gives some good ideas for dealing with constipation, http://www.parkinson.org/sites/default/files/Constipation%20in%20Parkinson%27s%20Disease.pdf.

Fatigue is a chronic problem for us all. I limit exercise and activities – because being overtired can create heavy fatigue that will last for several days. I still do mild exercise – but I try not to keep up with the same level of activity that I did pre-Parkinson’s. Here is another article that you might find helpful, http://www.parkinson.org/sites/default/files/fatigue-and-parkinsons.pdf.

You are asking great questions!

Do any of our other members have any suggestions regarding fatigue or constipation? @chrisj2491 @denie57 @johnjames @trouble4343 @ggopher @tntredhead @aperob @caryp43 @burgle @macbeth @knightkris @mariemarie @pjsammy @techi @sandycerem @bobbieingeorgia

Teresa

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ggopher
@ggopher

Posts: 50
Joined: May 24, 2016
Posted by @ggopher, Sun, Jul 16 7:31pm

I've cut back a little on frequency of use of Miralax by adding probiotics. Dehydration has been an issue for years and I hope someone else can help with that. Having a problem last few weeks with fast shallow breathing leading to fatigue when physically

or mentally stressed. Have appointments next couple weeks and I'll let y'all know what develops. Good articles.

Steve  


Teresa, Volunteer Mentor
@hopeful33250

Posts: 2447
Joined: Mar 28, 2016
Posted by @hopeful33250, Sun, Jul 16 7:35pm

@ggopher Hi Steve: Glad to hear that the probiotics have helped. Yes, let us know if you find out any additional information at your appointments. Teresa

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TNTRedhead
@tntredhead

Posts: 48
Joined: Aug 03, 2016
Posted by @tntredhead, Sun, Jul 16 7:40pm

@hopeful33250 I am going to back away from this group. I wish everyone the very best of medical care and finding solutions to this terrible disease. However, I find that it is not good for my mental health to keep reading the posts and going back to trying to figure out what I could have done better for my Tom. I will keep each of you in my prayers and pray for positive results. You are all important to me but I need to take care of me right now.


Colleen Young, Connect Director
@colleenyoung

Posts: 3689
Joined: Jul 23, 2014
Posted by @colleenyoung, Sun, Jul 16 7:57pm

Trish, I completely understand. To no longer receive messages from the Parkinson’s group, simply click the unsubscribe link at the bottom of the next email you receive.

Here is more information about Update Your Notification Settings: https://connect.mayoclinic.org/discussion/tip-how-to-update-your-notification-settings/


Teresa, Volunteer Mentor
@hopeful33250

Posts: 2447
Joined: Mar 28, 2016
Posted by @hopeful33250, Sun, Jul 16 8:59pm

@tntredhead Trish: I will also remove you from my Parkinson’s email group. Teresa


Teresa, Volunteer Mentor
@hopeful33250

Posts: 2447
Joined: Mar 28, 2016
Posted by @hopeful33250, Sun, Jul 16 9:01pm

@tntredhead I understand Trish. Your love and devotion to Tom was wonderful. Parkinson’s isn’t curable – which is most unfortunate. You were undoubtedly a great help to him in his struggle. Wishing you well as you move forward. Teresa


mojo1965
@mojo1965

Posts: 11
Joined: Apr 13, 2017
Posted by @mojo1965, Mon, Jul 17 7:00am

Thanks for this info on constipation. We are facing challenges in this area. My dad can only have water by spoon due to choking hazard and minced food. So there is no way to get 8 glasses of water in…he’s not awake long enough in day. He can’t take pills unless they are crushed.
He’s getting every bit of fibre possible with pureed veggies, prunes, oatmeal etc. But it’s not enough. Do you know if Senokot can be crushed or is it time release and needs to be intact?
He is currently getting Lansoyl but I don’t know the long term issues. Thanks!


Teresa, Volunteer Mentor
@hopeful33250

Posts: 2447
Joined: Mar 28, 2016
Posted by @hopeful33250, Mon, Jul 17 7:18am

Hello @mojo1965 I am glad that you asked this question. I’m not a medical professional so I don’t have an answer to your question about weather Senokot can be crushed or not. You should probably call your dad’s doctor to answer this question. I had not heard of Lansoyl before but I did a google-search and found it an interesting over-the-counter remedy. It is not recommended for long term use, however. How long ago was your father diagnosed with Parkinson’s?

Teresa


mojo1965
@mojo1965

Posts: 11
Joined: Apr 13, 2017
Posted by @mojo1965, Mon, Jul 17 8:00am

Hi Teresa,
My dad was diagnosed 6 years ago at 75. PD and dementia. I believe he is at endstage but of what? Its so hard to tell because end stage of both diseases seem to become so interwoven. ..no one can tell how long he will be in this situation. The family doctor has told us not to worry about dependency at this point…but I want to make sure nothing will actually hurt him or cause eventual pain. I feel like doctors see people in the last stage of life so often, it’s all routine to them. But not to us. Everything I ask is answered with “this can be normal at this point” of course I understand this but I’m trying to prevent any possibility of suffering down the road. Hence the laxative questions. ..its fine if he’s dependent but can something worse happen? Thank you for your answer and I will for sure ask the doctor next time he comes. The articles you posted were excellent, thank you.
I wish someone could estimate how long end stage is…he sleeps 22 hrs a day but has a decent appetite. Thanks to my mom who entices him with 10 different mini minced things every day.
Thanks monika


Teresa, Volunteer Mentor
@hopeful33250

Posts: 2447
Joined: Mar 28, 2016
Posted by @hopeful33250, Mon, Jul 17 8:48am

@mojo1965 Hi Monika: You are asking great questions! It sounds like your dad is getting very loving and consistent care at this stage of life. I doubt, however, that any doctor knows how long this end stage will last. When I looked at the website regarding Lansoyl it did indicate some problems, here is the website I was referring to, http://www.livestrong.com/article/273318-lansoyl-jelly-side-effects/ . If you look at the paragraph titled, Long Term Side Effects, you can see some of the problems that can occur if it is used on a regular basis.

Have you considered Palliative Care? Palliative Care is not the same as Hospice Care, but it does offer relief for many of the problems associated with serious health problems at all stages. Here is a Mayo website that can give you more information about Palliative Care, http://www.mayoclinic.org/tests-procedures/palliative-care/in-depth/palliative-care/art-20047525. Take a look at this article and see if this might be a helpful option for your dad and the rest of your family. Please stay connected with us and we will try to offer as much support as we can. Teresa


Teresa, Volunteer Mentor
@hopeful33250

Posts: 2447
Joined: Mar 28, 2016
Posted by @hopeful33250, Tue, Aug 8 6:23pm

@mojo1965

Hello Monika,

I was just thinking about you and wondering how you and your family are doing with your dad’s Parkinson’s problems. Please keep in touch with us and let us know how we can be supportive of your family during this time.

Teresa


mojo1965
@mojo1965

Posts: 11
Joined: Apr 13, 2017
Posted by @mojo1965, Thu, Aug 10 6:53am

Hi Teresa, thank you so much for checking in. We are managing my Dad with daily mini doses of laxatives along with his prune juice and pureed veggies. He having more and more challenges swallowing and really has to concentrate to make it happen. It’s birthday week for our family…my Dad yesterday and my Mom today. He got all his fave mushy desserts…lol! And even though he can’t read anymore, he knows how to take the cards out of the envelopes and is a bit stubborn about getting them back in by himself…I love that!
So, we are hanging in day by day. Tonight we are taking my mom to a beautful restaurant for an entire evening out. I hope she loves it!
Thanks again, Teresa and I hope you are enjoying the summer.
Monika


Teresa, Volunteer Mentor
@hopeful33250

Posts: 2447
Joined: Mar 28, 2016
Posted by @hopeful33250, Fri, Aug 11 4:48pm

Hi Monika, @mojo1965

Thanks for the update – your family sounds just wonderful!! Your dad sounds like a delightful person who hangs in there and keeps trying to be as independent as possible. I hope your mom has a lovely birthday dinner – how nice that she can have a night out.

Teresa


Teresa, Volunteer Mentor
@hopeful33250

Posts: 2447
Joined: Mar 28, 2016
Posted by @hopeful33250, Tue, Jul 18 11:22am

Hi all: I received some information about constipation and the use of OTC laxatives from a Mayo Clinic newsletter. I thought it might be an interesting tie in to our discussion. Here is the website address: http://www.mayoclinic.org/diseases-conditions/constipation/in-depth/laxatives/art-20045906

What have you have experienced from using OTC laxatives? Any ones that work well for you?

Teresa

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