Horrible abdominal Pain- all tests say I am fine but I am not

Have you considered consulting a gynecologist for pelvic pain?

Good Morning

Thank you so much for responding to me. I never thought of scar tissue! I have made an appointment with the Gastro Dr. I never thought of a pain clinic. I will most definitely look into that!! I hope they can figure out what is going on. I absolutely agree when it comes to Dr's. They do not listen to you even when you jot things down. It is so frustrating. I will keep you posted. Once again thank you.

Absolutely, any time. Good luck.

I have had the SAME issues. I have a very small and bland menu of what I can eat. I dont have a B.M. at times for 2 to 4 days. I used to have it (B.M.) the same time in the AM everyday. It gets so bad that I cant eat. My water I drink and Miralax do not do it. Ive gone to the ER. I also had my colon completely cleared. I had 4 polyps. I had two tiny ones 5 years ago. Yes, i ended up with Hemeis (yuck) Large ones this time. Anyhow, my water I try to push the food down with stretches my esophagus to the point that clear water with no food comes out and out and out and out. Then once the valve in my belly opens and the waste finally begins to travel. But, not for long. My small intestine has some muscles (sort of like a snake when I eat) and a valve that's not getting a signal to push the waste to my large intestine and then my colon. I had to go to the ER. They did a CT scan and i had no blockage. The ring type muscles that expand and contract in a way to push waste down and out. Here is the issue, im 98% sure. I had head and neck cancer. For treatment I had a tube put into my stomach so i could feed myself while I was being zapped with radiation twice daily, 4 days apart. And Chemo in between my two radiation sessions (the four hours, 4 hours apart two times a day is the MOST radiation one can get BY LAW in Texas. This went on until I had completed 168 radiation sessions. NO ONE BELIEVES ME. They all say they cant give anyone that much rad. for that long , and two times a day. Screw them, I did it. I rang the bell several months later. I felt okay except for the first onset of side effects. Finally, they got that PEG tube out of my stomach and the Port out of my chest. Im glad because it was pulling away from my corotid artery going to my brain. (Now they are getting sued) I missed out on that).

Here is the worst part, two years after they said I was now going to heal up in about two months, they began scanning me. Praise God Im still cancer free. But, I have take thyroid pills (Levothyroxine) for the rest of my life. I also give myself Testosterone injectons every two weeks. Also for the rest of my life. I must carry water with me everywhere I go because I no longer produce saliva, my mouth stiicks to itself and sleeping in terribe. I have to reach for my water many times in the night. I get very cold sometimes. And I get very HOT other times. Ive had two heat strokes. Matter of fact Ive woken up in the hospital on several occassions and had no idea why I was there with that fat tube shoved down into my lungs. My hands were tied to the bed. First time, i thought I must have been in a wreck and killed someone. I thought the ties were handcuffs. I slept for a couple days, so no one was there when i first awoke. Well, here it is 4.5 years later and I still have horri le bouts of my stomach bloating, unable to eat and vomitting. Still carry water with me at all times or my mouth will dry out. I also now have a what they call a stricture in my esophagus cardiologist too. And I found out I also have diverticulitus. So, food can get hung up in my colon. Matter of fact Im going into Houston July 30th 2025 to a different kind of gastro man. He is going to perform a motility study. My memory is shot. MY cognitive skills no longer work as they should. I cant do my IT work now. I lose my memory while talking mid-stream. I have nightmares. I get angered easily. I am just miserable. Thats the extremely short version. I pray this specialist on the 30th this month can help me. I have a problem with the front left temporal lobe of my brain. Its dying in that area. I am raising my 18 year old son by myself. He is on the spectrum, therefore its so much more diffiucult. But, im proud of him. He graduated H.S. Now, i have to take him somewhere and teach him how to drive. The schools do not do that anymore. Im a pot head of sorts. My oncologist gives me an Rx for gummies to assist with pain and confusion. Also, to help me sleep. As I was saying, this is the shortest version. I hope what i have shared with you gives you an idea as to what/why/where your body is malfuntioning. I never had migraines. Now, I know all about them. There is so much more to tell. I feel i e put a good amount of info out there. I know how it is and i wanted to try to help. DO NOT FREAK OUT! I dont feel like yours is cancer related. Im fixing to meet with a very expensive and top notch doctor. Meanwhile if need be ill go to the ER. My understanding is that this type of Digestive system issue can and is dangerous. It can and will kill you if you do not find out whats up. God Bless you!

YEAH, WHATS WITH THE DOCTORS NOW. IVE BEEN IN ALL 7 OF THEIR OFFICES AND THEY DO NOT ACKNOWLEGE ME WHEN i AM TRYING VERY HARD TO SHOW THEM OR TELL THEM WHAT I EITHER FOUND OUT. OR JUST HOW BAD THINGS ARE. I PAY THEM FOR ANSWERS AND HELP. lOOK I HAVE A VERY WELLKNOWN GASTRO MAN SENDING ME TO ANOTHER GASTRO MAN. I DONT GET IT. MY PRIMARY IS JUST PLAIN SICK OF ME, I THINK. HE TOLD ME HE FEELS LIKE MY SECRETARY BECAUSE HE HAS 6 OTHER DR'S HE HAS TO WRITE REFERRALS FOR OR BLUE CROSS BLUE SHIELD WONT PAY. HE WRITES THEM FOR A YEAR. iNSURANCE CANCELS THE AFTER 3 TO 6 MONTHS. I THOUHT I WAS ALONE WHEN IT COMES TO THE DRS. COMING INTO THE EXAM ROOM, THEN THEY HAVE TWO GIRLS IN THERE. ONE TYPING ON THE PC AND THE OTHER RUNNING IN AND OUT OF THE ROOM. WHEN i SPEAK UP, "NO ONE EVEN BLINKS" .ITS AS IF IM THE ONLY ONE IN THE ROOM. THAT SH!7 IS SO WRONG.

Hi jojo13,
Some of my worst pain, usually uncontrollable by pain meds, happens when I have burning diarrhea. You didn't mention your bowel habits, but I thought this information might be helpful to you.
Things that I do that help me:
- A duvet is very helpful as you can rinse the burning material off immediately after expelling it. The water wash reduces/relieves the burning on the outside. I have a duvet seat, which you can add to any toilet.
- After a burning BM, I find Imodium helps reduce some of the internal burning. I take a tiny dose, a partial tablet only. I am very careful with Imodium, as I need to avoid constipation as well.
- If burning diarrhea is an ongoing issue, a bland diet helps me. My go-to is baked chicken and baked potato.
Everyone is different, so your solution will likely be a unique combination of things that work for you. My solution is a mishmosh of my experience, suggestions from others, along with help from my docs. Hope this helps you.

I'm so sorry you are struggling. I do know how it feels to be left in pain and feel unheard. Sometimes you need to be your own doctor and look up symptoms and give the doc some ideas you would like to eliminate. Just be careful of the Google rabbit hole lol.
"Pudendal neuralgia" My friend had pain for years - of course they said it was in her head. Her lower stomach and pelvic area.
Eventually she saw a doctor who ran some tests and it was Pudendal neuralgia. Not a very common diagnose. Good luck

I realize that dry mouth is a relatively small problem given what you are going through. I just wanted to mention that I also suffer from an extremely dry mouth. Have you tried the various products that either stimulate saliva production or simulate saliva with a lab made product. There are many to choose from. I used biotin for a long time now I use this product.
Lubricity Xtra Dry Mouth Spray - Advanced Formula - Hyaluronic Acid and Xylitol, Saliva Substitute Moisturizing Oral Spray, The Most Satisfactory Solution in Dry Mouth Products (2 Fl. Oz., Strawberry) https://a.co/d/auf06oW