Horrible abdominal Pain- all tests say I am fine but I am not

Posted by jojo13 @jojo13, Sep 1 11:45am

I am new here and hoping you guys can help. I have had horrible abdominal pain for weeks now, once it was so bad I was on the floor crying. It is almost like a burning, gnawing feeling. It is in my abdomen and down by my hip bone- so more pelvic I guess. I am bloated and nauseas most of the time. I wake up with the pain and it can last all day. It ruins my day to day life. I had an endoscopy and a colonoscopy yesterday and both came back fine. I was told to go home and eat better. This morning I woke up in terrible pain and it has not let up all day. I know my body and something else is wrong, not just diet. There are also horrible noises that come from my stomach all day which I have been told is IBS but this pain can not be just IBS. Does anyone have any insight? I am thinking of going to the Mayo Clinic but don't know what tests they would do. Perhaps there are some blood tests I can get done on my own? Any help would be awesome. I just want to feel better again and not like I am crazy. I am a female 41, 5'4 and 127.

So very sorry for what you're going through. So many things can cause abdominal pain, and it is very difficult to diagnose. Have you talked with anyone about the possibility of an obstructed bowel? You would have to have a scan to detect it. In the meantime, lying down with a hot pad on your abdomen may give you a bit of relief. Don't give up! I hope today is a better day for you. Sue

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@jojo13
Are those the only test you have had? They are good for diagnosis, but the scopes cannot cover the entire intestinal track. they should at minimal add a CT scan.

If you cannot get answers from your doctors if possible seek better doctors in another nearby city. Right now with covid still ongoing it may be difficult to get an appointment. If you have to go to an emergency room.

Please write your symptoms in a journal if you are not already. If you haven't right down notes …. when symptoms began, what makes it better what makes it worse. Once you catch up write it down everyday.. what you ate, bowel habits.. is the pain traveling or in one spot.. do you have a fever.

As Sue said a heating pad will help. .. and there are so many things it could be..a journal will help in diagnosis. I make an outline of my journal before my doctor visits and questions for the doctor. My husband goes with he and he takes notes.

ZeeGee

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Have you had any abdominal surgeries? If so could be nerve entrapment or damage. Unfortunately, I have the latter and haven't worked in 14 years.
I have also read that you can get bone spurs in your pelvis.
I would try and get ultra sound done of pelvic area.
Not trying to be negative Nelly here,. Just wanted to give couple options of what it could be. May need to find a pain clinic also. Some things are very hard to diagnosis, so maybe you can something for pain, since most docs won't prescribe anything that's going to help.
Let me know what you find out.
Take care of yourself, you know your own body and may take a couple docs to find one you feel comfy with.
Carol

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Carol poses an interesting question. Have you had many abdominal surgeries? If you have, you may have some, or extensive, adhesions. Abdominal adhesions can cause chronic pain, among other things. I hope today is a good day. Sue

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My daughter had symptoms similar to yours (stomach pain so bad we ended up at emerg a few times). After about a year of this she was finally diagnosed with something called Functional Gastrointestinal Disorder. She tried the FODMAP diet and that did not work. Somehow she has finally found relief after quite sometime by it seems having smaller meals and increased physical activity. I hope you find some relief from your symptoms.

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Hey Sue, I feel your pain!! I’ve had Horrible pain since July 1st 2021..Everyday.. Like you I’ve had all the tests and bloodwork too.. Everything looks good 👍🏻.. But I’m in pain😔 .It’s depressing like know one will listen.. Registerer for Mayo I am… It could be a while before getting in.. But once they call I’M THERE!!
Good luck… I’m gonna pray for you and me tonight..

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@whattodo

My daughter had symptoms similar to yours (stomach pain so bad we ended up at emerg a few times). After about a year of this she was finally diagnosed with something called Functional Gastrointestinal Disorder. She tried the FODMAP diet and that did not work. Somehow she has finally found relief after quite sometime by it seems having smaller meals and increased physical activity. I hope you find some relief from your symptoms.

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Thank you for taking the time to comment. I am going to look up that disorder and definitely start keeping a food journal. I hope your daughter continues to feel better.

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@wishingtobepain

Have you had any abdominal surgeries? If so could be nerve entrapment or damage. Unfortunately, I have the latter and haven't worked in 14 years.
I have also read that you can get bone spurs in your pelvis.
I would try and get ultra sound done of pelvic area.
Not trying to be negative Nelly here,. Just wanted to give couple options of what it could be. May need to find a pain clinic also. Some things are very hard to diagnosis, so maybe you can something for pain, since most docs won't prescribe anything that's going to help.
Let me know what you find out.
Take care of yourself, you know your own body and may take a couple docs to find one you feel comfy with.
Carol

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Hi Carol. I appreciate you taking the time to reply. I have actually had 4 surgeries for endometriosis, a surgery for an ovarian torsion and recently a hysterectomy. I hadn't thought of the few things you suggested but I think I am going to see if I can get an ultrasound of my pelvis- that may give some good insight. I am so sorry to hear what you are dealing with and hope today you are having a good day. Joanna

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@sherrybecker

Hey Sue, I feel your pain!! I’ve had Horrible pain since July 1st 2021..Everyday.. Like you I’ve had all the tests and bloodwork too.. Everything looks good 👍🏻.. But I’m in pain😔 .It’s depressing like know one will listen.. Registerer for Mayo I am… It could be a while before getting in.. But once they call I’M THERE!!
Good luck… I’m gonna pray for you and me tonight..

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I am thinking about trying to go to the Mayo as well. Good luck !

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@ashby1947

Carol poses an interesting question. Have you had many abdominal surgeries? If you have, you may have some, or extensive, adhesions. Abdominal adhesions can cause chronic pain, among other things. I hope today is a good day. Sue

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Thank you Sue 🙂

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@jojo13

Hi Carol. I appreciate you taking the time to reply. I have actually had 4 surgeries for endometriosis, a surgery for an ovarian torsion and recently a hysterectomy. I hadn't thought of the few things you suggested but I think I am going to see if I can get an ultrasound of my pelvis- that may give some good insight. I am so sorry to hear what you are dealing with and hope today you are having a good day. Joanna

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@jojo13
Since you have had those surgeries you should definitely be checked out by your gynecologist too.

A few years back I had low pain on my left side.. lower than my occasional diverticulitis. I did get checked out by a gynecologist and he ordered a CT scan and it showed the diverticulitis and wall thickening. I thought it could be something to do with the hysterectomy I had many years ago. Sometimes the symptoms are confusing to me. When you think it is one thing it is another or more.

ZeeGee

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Maybe gastroparesis that can be detected by a gastric emptying test! I do have this & am lactose intolerant, both can be very debilitating. Small frequent meals with no raw foods or beef, except ground meats, and of course no dairy. I have to walk after every time I eat for at least 10 minutes. Prayers for Comfort & Answers.🙏❤️🥰

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