Horrible abdominal Pain- all tests say I am fine but I am not

Posted by jojo13 @jojo13, Sep 1, 2021

I am new here and hoping you guys can help. I have had horrible abdominal pain for weeks now, once it was so bad I was on the floor crying. It is almost like a burning, gnawing feeling. It is in my abdomen and down by my hip bone- so more pelvic I guess. I am bloated and nauseas most of the time. I wake up with the pain and it can last all day. It ruins my day to day life. I had an endoscopy and a colonoscopy yesterday and both came back fine. I was told to go home and eat better. This morning I woke up in terrible pain and it has not let up all day. I know my body and something else is wrong, not just diet. There are also horrible noises that come from my stomach all day which I have been told is IBS but this pain can not be just IBS. Does anyone have any insight? I am thinking of going to the Mayo Clinic but don't know what tests they would do. Perhaps there are some blood tests I can get done on my own? Any help would be awesome. I just want to feel better again and not like I am crazy. I am a female 41, 5'4 and 127.

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Same here for two years. Every test under the sun. All negative. 6 Doctors. Number 6 gastro did look at my meds and said not the pill you need the powder. I mentioned Bili Rubin in the toilet.
All the extra bile and bili Rubin wasn't able to go to my gallbladder because it was removed 40 years ago. The COVID booster upset my immune system and all of the bile etcetera was going right into my small intestine. I was very sick the powder works very well. I still deal with IBS. Cholestyramine for oral suspension USP. Good luck

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Perhaps consult with a doctor specializing in pelvic floor symptoms.

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@grace29

Same here for two years. Every test under the sun. All negative. 6 Doctors. Number 6 gastro did look at my meds and said not the pill you need the powder. I mentioned Bili Rubin in the toilet.
All the extra bile and bili Rubin wasn't able to go to my gallbladder because it was removed 40 years ago. The COVID booster upset my immune system and all of the bile etcetera was going right into my small intestine. I was very sick the powder works very well. I still deal with IBS. Cholestyramine for oral suspension USP. Good luck

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for 3 years my daughters had stomach pains and all the Dr's. said nothing was wrong. Finally got results,one daughter had a hernia with her appendix inside the hernia. She had emergency surgery. The surgeon said the appendix was twisted inside of hernia and they almost had to remove the appendix. The second daughter had "cystes " that ruptured every time she had a period. 10 yes later, she had a bad gallbladder. over 100 gallstones inher body they removed inside. the gallbladder was producing gallstones every period. that's pains my daughter had. Don't give up. I hoped this helped you a little.

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Wow thought I had it rough. Nice knowing that there was an issue and hopefully resolved now. It would be nice to not have chronic pain.

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Do you have a gripping habit, ie, clenching or sucking in your stomach?
It can cause a myriad of physiological symptoms, from poor digestion to pelvic and, diaphragmatic pain.

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@ashby1947

Carol poses an interesting question. Have you had many abdominal surgeries? If you have, you may have some, or extensive, adhesions. Abdominal adhesions can cause chronic pain, among other things. I hope today is a good day. Sue

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Hi Carol, I have been looking for someone to help me with regards to my stomach. I have constant pain in the upper part of my stomach in the middle. It is a 24 hour pain. I have had xrays done a sonar and they cannot pick anything up. BUT I had a stent put into my heart and i was wide awake. It took them 4 hours as they did not want to give me a bypass. Ever since then I have cronic abdominal pain. Could it have been an adhesion? And how can they pick it up. I suffer from anxiety and now I am on Xanax to calm me down regarding the pain.

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@wishingtobepain

Have you had any abdominal surgeries? If so could be nerve entrapment or damage. Unfortunately, I have the latter and haven't worked in 14 years.
I have also read that you can get bone spurs in your pelvis.
I would try and get ultra sound done of pelvic area.
Not trying to be negative Nelly here,. Just wanted to give couple options of what it could be. May need to find a pain clinic also. Some things are very hard to diagnosis, so maybe you can something for pain, since most docs won't prescribe anything that's going to help.
Let me know what you find out.
Take care of yourself, you know your own body and may take a couple docs to find one you feel comfy with.
Carol

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I found your page. I have stomach pain in my upper abdomen for 11 years since my heart surgery. They put a stent in (took them 4 hours as they did not want to give me a bypass) I went through hell during the operation. I have never been the same again. My stomach pains 24 hours a day. I have had xrays done they saw nothing only that i am severely constipated. I had a ultra sound done, they cannot see anything just a alot of gas. And some urine stays in my bladder even when I have gone to toilet. Did they hurt me somehow and now they cannot find it? It feels like something is stuck in my stomach. I take xanor for the anxiety i go through due to this pain.

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@rolly

I found your page. I have stomach pain in my upper abdomen for 11 years since my heart surgery. They put a stent in (took them 4 hours as they did not want to give me a bypass) I went through hell during the operation. I have never been the same again. My stomach pains 24 hours a day. I have had xrays done they saw nothing only that i am severely constipated. I had a ultra sound done, they cannot see anything just a alot of gas. And some urine stays in my bladder even when I have gone to toilet. Did they hurt me somehow and now they cannot find it? It feels like something is stuck in my stomach. I take xanor for the anxiety i go through due to this pain.

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If pain started immediately after surgery I would say something might have gone wrong. If it didn't start for months, year or so it could be scar tissue which can cause all kinds of problems. They say scar tissue doesn't "hurt" but it depends on where it's at, how much you have and what it's pushing onto. The bad thing is every time you have surgery it just causes more scar tissue.
I am like you as far as constipation, I take a med called symproic which is basically for people that are on narcotics to help poop. There are several meds out there that are for this and can be a trial and error situation to find what is right for you.
I am not a doctor I am talking from experience and so many years of going through this.
Have you gone to a pain clinic? That can make a huge difference if you find the right one. Some have had surgeries or complications from, etc, so they understand. These days they are about only place that will prescribe pain meds and anything else that will help.
I was told I needed to have my colon resection. That lining of my stomach were separating to it was all in my head. So don't get frustrated by being told untruth statements, keep looking for doctor that will listen to you. Write down all your questions and take with you. If a doctor is not taking the time you need with them, go elsewhere.
I hope I helped a little bit, message anytime.
GOOD LUCK

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Hello,
I've been having terrible abdominal pain, like in my bladder, however I had a cytoscope, CT, etc
Now they say nothing is wrong despite this pain that's been going on for 6 weeks now, on top of my regular CRPS, it's either I'm a hypocondriach or the CRPS has spread there which is what I'm left with.
However my pain Dr kind of laughed it off. And will not raise my meds beyond hydro 5's. I'm so tired with what seems like a baby aspirin for pain contro.

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I'm sorry that you all are dealing with such pain. I have different types of pain, but one thing I've been able to do was find and adopt a few tools to communicate "better" with doctors. I put better in apostrophes to indicate that it's a relative "better" - taking on some of their language rather than bringing them to yours.

One is I found this pain scale - I like it because a numbers only scale never worked for me. It uses words to describe the pain, using concepts related to what's called "activities of daily living" - https://myhealth.alberta.ca/Health/pages/conditions.aspx?hwid=stp1310& I print it out and bring it with me to the doctors appt so they can see what I mean.

In other words how is it affecting your ability to conduct your life. Things to consider are nicely discussed here: https://www.eastridgeatcutlerbay.com/2024/01/19/what-are-iadls-vs-adls/

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