High Coronary Calcium Score: How do others feel emotionally?

Posted by mcphee @mcphee, Dec 14, 2016

I have a calcium score of 1,950 which is extremely high which means I am at a very high risk for a cardiac event,heart attack,stroke or sudden death.

I take a statin and baby aspirin. I have never been sick, have excellent cholesterol, low blood pressure and I am not overweight. I have no other health problems and I have never been sick. But I feel like a walking time bomb which has caused me a lot of stress. I am 70 yrs old.

I wonder how others with this condition feel emotionally?

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@rochelle369

Here's a link to one study Intensive Lifestyle Changes for Reversal of Coronary Heart Disease: https://jamanetwork.com/journals/jama/fullarticle/188274

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rochelle,

I can find nothing in the linked study that leads to your statement - "By changing to a whole food plant based diet with no oils you are not injuring the endothelium lining any longer creating more plaque."

I may have missed it, but the binary nature of your statement just doesn't align ... sure, the folks in the study who lost 20 pounds reduced fat consumption to 10%-fat vegetarian (does this include eggs and milk products?). No mention of "injuring the endothelium lining."

Here is a quote from the linked document -

"Program Intervention
Experimental group patients were prescribed an intensive lifestyle program that included a 10%-fat vegetarian diet, moderate aerobic exercise, stress management training, smoking cessation, and group psychosocial support previously described in detail.3,7-10 Patients were encouraged to avoid simple sugars and to emphasize the intake of complex carbohydrates and other whole foods. Only 1 patient in the experimental group was actively smoking at baseline, and she quit at entry. Control group patients were asked to follow the advice of their personal physicians regarding lifestyle changes."

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@mayoconnectuser1

rochelle,

If you are going to say absolute things like your comments on plant based diets, you need to provide links or citations to those independent studies that shoe this.

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Here's a link to one study Intensive Lifestyle Changes for Reversal of Coronary Heart Disease: https://jamanetwork.com/journals/jama/fullarticle/188274

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@mrossi

Hi there, since your original question was about emotional response, I would first say remember stress is a big killer, so try not to worry. I 'm 79, and have had high cholesterol at least since my mid-fifties, but was never advised, along with a choice between improving my diet and increasing exercise, or go on meds, to get my calcium score done (and why that information was so important.) Making lifestyle changes helped some, but not enough. Finally this year a new PCP told my she wanted me to get my calcium score (which Medicare did not cover) because she was very concerned about my high cholesterol, especially as my father had died of a heart attack when he was 37. I did, and it was way high, putting me in the 99% range for my age of a cardiac event within the next 2-5 years. The thing that astonishes me about the medical profession is that no one, up until this year, had ever mentioned this test to me, and I cannot for the life of me understand why it would not be universally considered one of the first lines of defense, and covered by insurance, since the eventual costs of treating heart disease can be so devastating. So I would very much like to hear from any Mayo cardiologist who happens to read this to address this question, since not just I but apparently many of us were never told to get a calcium score until we were into old age.
Anyway, as I said, try to let go of the ticking time bomb vision, and keep doing what you're doing, and you'll probably be fine. I figure I've lived through at least four 2-5 year prognoses of a heart attack within that period of time, and I'm still here and thriving.

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Agree 100% with your statement ..."and I cannot for the life of me understand why it would not be universally considered one of the first lines of defense, and covered by insurance, since the eventual costs of treating heart disease can be so devastating. "

I had never heard of it until about a week ago. My doc suggested I get one and my CAC score is 2354. Seeing a cardiologist in three weeks to see where to go from here.

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@rochelle369

My understanding is that it's normal for your CAC to go up as the plaque calcifies. It's the soft plaque that is dangerous and can rupture. By changing to a whole food plant based diet with no oils you are not injuring the endothelium lining any longer creating more plaque.

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rochelle,

If you are going to say absolute things like your comments on plant based diets, you need to provide links or citations to those independent studies that shoe this.

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@anniehall56

I feel your pain. Standard of care is broken, and I'm married to a gastroenterologist! Been told for years by doctors that I didn't have to worry about my cholesterol because I had high HDL and because it was the men in my family who dropped dead. Now I'm looking at a 256 CAC score at 64 years old. Thought I was in great shape, now feel like the "walking time bomb" because that score puts me in the 92 percentile which is considered high risk for heart attack. Saw a cardiologist who gave me the same standard of care BS so had my husband order all the tests that tell you what you need to know- LPa, APOB, fasting insulin, etc. and repeating lipids, etc. On a very low carb diet and doing my own research to stop the progression. Seeing one of the top researchers at UCLA tomorrow. Will report back to see what he has to say but statins do raise CAC scores so I'm not sold on taking them yet.

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Hello, can you tell us what your UCLA researcher told you?

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My understanding is that it's normal for your CAC to go up as the plaque calcifies. It's the soft plaque that is dangerous and can rupture. By changing to a whole food plant based diet with no oils you are not injuring the endothelium lining any longer creating more plaque.

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@stanimal

I had my first CT angiogram about 11 years ago and my score was 320. Decided to go strict vegan and after two years had another CT angiogram and my score was 420.
I have been very active my entire life with exercise, running, weight lifting, cycling, yoga and racquet sports. I am 68 years old.

I remained about 95% vegan after my second CT scan. And continued my active lifestyle.

I had another CT scan last week and now my score is 1080

Disheartening to say the least.

I had an echo stress which was inconclusive and a nuclear which shows no blockages.

I am extremely discouraged . I thought I was doing everything right and nothing seems to stop the progression

Discouraged in NY

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@stanimal
I forgot to ask, in the time you chose to go Vegan, did you go onto any meds? Statins? Wondering if that what caused the increase CAC score.

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@drrawat

Oh yes. That’s what I do all the time:)
Early dinner, home made food, vegan whole food plant based diet, avoiding sugar, dairy and wheat, avoiding anger and criticising, good sleep hygiene, regular physical activities, pranayam, loud laughters,some form of meditation, good simple companies, self help book reading, some passion in life and avoiding over thinking/ judgements.. these my key recommendations. I try to do these as well.

Lastly, One should also consider why should one live longer & at what cost to nature? 😊

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I really appreciated and find your first paragraph helpful, but your concluding sentence: "One should also consider why should one live longer & at what cost to nature?" feels ageist and not helpful. I wouldn't want a cardiologist suggesting to my husband that with high CAC because he is approaching 70 he should consider himself a potential detriment to "nature." We are nature lovers and both of us work hard to make the environment a better place. Being kind to nature isn't age based. Ageism is rampant here in the US and can be a major source of psychological stress on older people and thusly not heart healthy.

Just something for you to consider, thank you.

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@stanimal

Hi jasper1072

Age at first scan was 57 Had a scan two years later at 59.
Last scan was at age 68.

I'm over the shock now and just trying to live my best life

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Hi @stanimal

I agree with some of the other comments, if your on statins, it is probably due to the statins---which in the long run may be a good thing! I work in the Radiological and Oncology field--I am NOT dispensing medical advice, but my own opinion is I personally will not repeat Calcium scoring. I don't require authorizations for CT angiograms or any other diagnostic imaging testing--I get them free from my employer, I just need a script.
I personally believe that if you have no symptoms and are following a good diet and exercise plan...and taking your meds you are doing good as long as you are symptom free. Stress tests are also great to give people pience of mind---and it is not invasive. Ultimatatly everyone needs to make the decison of what is right for them, but don't be discouraged....a decade went by and it sounds like your doing well.
I am not a proponent of doing unnecessary testing including heart caths---many people want to do it to see if their are blockages, BUT these are not risk free and have actually seen people have complications (rare but they do happen) where they tear a vessel which requires emergency surgery. Also...you hear people advocating for CCTA...again, often unnecessary radiation exposure and can open a can of worms for incidental findings that should not be touched. IMHO (and that is all it is) if you trust your Cardiologist and PCP and you have meaningful dialogue with them about options...that is the best course of action. Too many Dr. Googles out their and site so many studies how this works and this doesn't work...go with your gut. Best of luck. BTW, I am about 51 with a CAC of 170 with no other abnormalities and no symptoms---I have friends who have it in the 1000's and are symptom free for years--it is one test of many.

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@jasper1072

Hi @ stanimal

May I ask what age you were at the time of your first scan? Did you have the 2nd scan exactly two years after?

Stressing never helps…everyday you’re alive is a gift.

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Hi jasper1072

Age at first scan was 57 Had a scan two years later at 59.
Last scan was at age 68.

I'm over the shock now and just trying to live my best life

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