High calcium score: I'm in shock

Posted by sjy70 @sjy70, Jun 14, 2021

Hi everyone... just wanted to share my last few days - I'm scared and lost and was just hoping to hear from some people who have been in my place. Long story short - I went in for a "routine" checkup at age 50 to make sure my heart was okay. I had a stress test two years ago that was fine. But I do have a family history, and somewhat high LDL and blood pressure so the doctor sent me for a cardiac calcium score. It came back at 407 at age 50!!! That's like the 98th percentile for my age, which is shocking. I do Crossfit and have done half marathons so it was totally unexpected. Now I'm going for another stress test in two weeks to make sure no blockages are over 70%, and I'm not sure of the steps after that.... I'm terrified of needing open heart surgery - I've gotten myself into a place of being okay with a stent if needed. I know it's better to know than not know, but I just feel like my life was suddenly ripped out from under me and to be honest I'm spinning right now... every waking second I feel like I'm going to drop over..

Interested in more discussions like this? Go to the Heart & Blood Health Support Group.

Relax. Mine at 55 was 2,845. Plus I have the beginning of an aortic aneurysm. Countless tests later and I’m popping 40 mg of statins and we are wait and watch. Once a year I’ll go in for a test. So relax. Get your MRI echo and stress test. The key is how well your body and your heart is pumping blood. You can have arteries that are 95% blocked, but still ample floods flow gets through the opening that exists.

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@alaskat

It's great to hear your are up and hiking ! My PCP states I should choose the stent procedure regardless of the echo/stress test (which is mainly informative) which is happening in two weeks. I am 63 and play tennis, swim but I am still considered overweight: Body mass index 25-29 (8 1/2 ft- 176 lbs.) so I guess one of my next helpful steps would be to check with a nutritionist. I am worried. OK, but worried. 🙂

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I've learned to not put complete faith in Echo's, Stress, and Nuclear test results. Echo has been mostly good for evaluating the valves & structure, although I've had some that didn't make sense and when repeated it showed things are stable. So, Echo can occasionally be misleading but mostly reliable for valves & structures.
Nuclear results in my case was totally unreliable. It did not indicate any main vessel disease. However my doc was suspicious based on my stress and general fatigue. I never had any chest pain & the fatigue was new onset.
So, the cardiac cath is the gold standard and will remove all the guess work. I found it reassuring to really know exactly what was happening. Frankly, wish now they could have saved resources and just did the diagnostic cath straight away. They used my wrist so I considered it quick & easy.
Found a 90% right main block which was stented and 40% circumflex block not requiring treatment. Also, severe aortic stenosis. They stented the right main and did TAVR, as two more separate caths, both quick and easy. After about 4 hours bedrest after the procedures, I was up and about all evening, doing laps around the ward. Went home next morning feeling great. Breezed thru about 6 wks of cardiac rehab and after back to my normal hiking trips.
The treatment options are astonishing. If you are treated, then afterward do a Cardiac Rehab program. They will get you on track learning about a heart healthy diet and exercise.
Best Wishes!

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@jackbsharp

Hear you.... I'm 71 and was hit with similar news at 50. Your lucky in that there are so many options these days. Men in family are have horrible cardiac histories. I lost uncles very young and my Dad had 4 heart attacks with two open heart surgeries & passed with heart failure.
I switched to a vegetarian diet, vegan at times. Maxed out the statin dose keeping my total cholesterol under 150. It been as low as 80 and rarely over 120.
That said, at 68 I had a stent for a 90% right main block and have a 40% circumflex block, both from old sins I believe. Also at 70 had a TAVR for aortic stenosis. All easy 45 minute venous procedures & home the next day feeling better.
This said, you can't beat your genes forever, but you can fight them and delay, delay, delay.... Plus the heart treatment options are astonishing now. I spent all last summer hiking in the Rockies shortly after my TAVR at age 70 and have avoided any heart attacks. We are hiking the Canadian Maritimes all summer this year.
It not over for you by a long shot. Get great Docs & Fight the genes!

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It's great to hear your are up and hiking ! My PCP states I should choose the stent procedure regardless of the echo/stress test (which is mainly informative) which is happening in two weeks. I am 63 and play tennis, swim but I am still considered overweight: Body mass index 25-29 (8 1/2 ft- 176 lbs.) so I guess one of my next helpful steps would be to check with a nutritionist. I am worried. OK, but worried. 🙂

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Hear you.... I'm 71 and was hit with similar news at 50. Your lucky in that there are so many options these days. Men in family are have horrible cardiac histories. I lost uncles very young and my Dad had 4 heart attacks with two open heart surgeries & passed with heart failure.
I switched to a vegetarian diet, vegan at times. Maxed out the statin dose keeping my total cholesterol under 150. It been as low as 80 and rarely over 120.
That said, at 68 I had a stent for a 90% right main block and have a 40% circumflex block, both from old sins I believe. Also at 70 had a TAVR for aortic stenosis. All easy 45 minute venous procedures & home the next day feeling better.
This said, you can't beat your genes forever, but you can fight them and delay, delay, delay.... Plus the heart treatment options are astonishing now. I spent all last summer hiking in the Rockies shortly after my TAVR at age 70 and have avoided any heart attacks. We are hiking the Canadian Maritimes all summer this year.
It not over for you by a long shot. Get great Docs & Fight the genes!

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@wisconsin2267

Usually does not decrease. Probably higher now that I have been on 5mg Rosuvastatin last 3 years. No symptoms and Passed nuclear stress test. Have not had another scan since initial.

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Understood. If I don’t perform well on the nuc and stress test then he will increase the statin dose. He -sort of- understands I do not want any invasive procedure (putting a stent on the arteries just takes two hours and is 100 % accurate as far as getting things in control). Thanks for your response. Be well.

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@writer418

I'm not a doctor but I would not do anything invasive, not yet anyway. I'm in a similar position to you. You need to visit a good cardiologist, start taking statins to lower your LDL whatever it is. I now use Praluent which is an injectable twice a month and it lowered my LDL tremendously to the point where I almost do not need statins. Now I take a minimum does of 10 mg. You should also get a nuclear stress test and sonogram to determine if you have good blood flow. If you do and you get that LDL down, you have minimal worries, no more so than anyone else. Of course, you should cut down on red meat, lose weight and exercise but it sounds like you know that. good luck. please do not jump to invasive procedures before trying these measures. best of luck.

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My cardiologist stated that the Eco and Stress test are option 1 to determine blood flow and if there are any hiccups he will see if he adds on a higher dose of statin. Currently I am taking Rosuvastatin 10mg. The other option would be to expand the arteries with and angioplasty and put a stent. Pretty much he narrowed it to that. I am being proactive with the food choices and exercise. Thanks for your feedback 🙌🏼

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Good to know. I guess it is all about what is comfortable for each of us at this point. I'll been following Dr. Berg on Youtube. He has some interesting ideas. Check it out.

BTW, I was wondering about there second book. Thanks for commenting on that.

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@alaskat

Hi, you mentioned “you had a 2267 score 3 years ago. Does that mean you a lower score now?

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Usually does not decrease. Probably higher now that I have been on 5mg Rosuvastatin last 3 years. No symptoms and Passed nuclear stress test. Have not had another scan since initial.

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@wisconsin2267

If you have calcified plaque that means you have soft plaque also. The soft plaque is what causes strokes and heart attacks. Statins will calcify the soft plaque making it less likely to rupture. A great book is “beat the heart attack gene” by Bradley Bale and Amy Doneen. ( Bale-Doneen method). I had a 2267 score 3 years ago and follow their advice and see a Bale-Doneen doctor. Best of luck to you.

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Hi, you mentioned “you had a 2267 score 3 years ago. Does that mean you a lower score now?

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@steveny9, @wisconsin2267 and others thinking about the book “beat the heart attack gene” by Bradley Bale and Amy Doneen, you might also find the following discussion helpful since it's about the low carb healthy fat diet/lifestyle.

-- Low-carb healthy fat living. Intermittent fasting. What’s your why?: https://connect.mayoclinic.org/discussion/low-carb-healthy-fat-living-intermittent-fasting-whats-your-why/

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