Treating Osteoporosis: What works for you?

Posted by heritage1955 @heritage1955, Apr 1, 2016

Hi. I'm new to the site and am interested in treating osteoperosis. I'm 39 yo and recently had a bone density that showed I'm at -2.4. So, going through the intial "I can't believe it" stuff. 🙂

Interested in more discussions like this? Go to the Osteoporosis & Bone Health Support Group.

@lioness

@parrotqueed Good to hear from you . I,m glad to hear some have had good results on there Dexa ScanThis affirms what you told me and what I will tell my Dr when she starts in on me about those drugs. I'm still on my D3,K 2both mk4 and 7 Boron ,magnesium and calcium of course . I find my bowels bind up but am taking Benefiber 2 times a day and prunes about 4 I eat . Hope your doing well.

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Hello- what are the supplement brands you are using to get the MK4 and MK7 and Boron and Magnesium – is it one tablet? Thanks- new to this blog and new on this path.

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@kstoller22 Good morning I have used and studied but vitams minerals since the 70,s Parrotqueen is very knowledgeable about these naturel meds also .I use Vitacost as they are good quillty But K has the MK 4-@7 in it and make sure it is on the lable Magnesium Malete ,Boron I buy Life Extension brand.They are all seperate pills as Calcium Citrate . Strengthen exercise for your back equally important Plenty of water These are what I use .I was excited to hear those who follow this regimen dexascan should improvement

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@lioness ok what I understand it vitamin K had the Mk 4-@7, which I do not know what that is except for the Vitamin K. And I under stand that Magnesium and Boron is in the vitamin. I know Magnesium gives me diarrha (SP) unless this is a different kind of Magnesium. Can I order it from Amazon? Walked further today, but have to do short walks 2 or 3 times a day. I still get so tired and have some pain the worse pain is on my left side, but it feels better today, but I feel it might have been a muscle and I massaged it last night. Stay safe and Blessings to you. Jeanie

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@lilypaws Hi glad your getting better. Bit k wiyhk4 ,,@7 makes sure calcium doesn't go into your kidneys just into your bones There are a lot of different kinds of Magnesium do you should research which is better to take Boron is a vitamin research this too ,,@parrotqueen. is very knowledgeable I buy from Amazon

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@kstoller22

Hello- what are the supplement brands you are using to get the MK4 and MK7 and Boron and Magnesium – is it one tablet? Thanks- new to this blog and new on this path.

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Good evening @kstoller22, Welcome to Connect. I was so glad to see you telling us that you are new on this path. If you are speaking about the world of osteoporosis and all of its options and afflictions, we are all sort of new to this part of the aging process. Remember though that as we keep pushing the aging envelope higher and higher, we run into more and more of our body parts that encounter some roadblocks, and others that just need a lot of help from the food we eat and the exercises we do in hopes that we are doing our best to live a healthy life, rich on the quality side with family, friends, activities, and experiences and attentive on the quantity side to make sure we are doing everything we can to age peacefully and without undue pain and suffering.

As time passes we find that osteoporosis often creeps up and weakens our bones. There are quite a few different strategies to deal with this inadequacy. Some of us are on a natural path. Some of us need help from medications and supportive regimens. What we have been doing for the last few months is trying to get all of us to join together as we encounter different options and choices. It appears that we all will have to make some pretty major decisions. There is no one solution for all. There are medically trained clinicians who will help us learn about osteopenia and then osteoporosis. There are folks on Connect who will share their helpful stories.

What are you considering at this point @kstoller22? Would you be comfortable sharing more of your medical situation and whatever in your life has led you to this point?

May you be safe and protected from inner and outer harm.

Chris

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It is so helpful to hear from people experiencing osteoporosis and learning about options. My doctor has recommended Zometa infusions. Does anyone have experience with this? I know there are side effects to consider. At this time I am leaning toward getting the infusions. From the reading I have done this option supposedly can result in 70% fewer vertebral fractures and 41% fewer hip fractures. Now to balance tis against the side effects.
Thanks for any help, Denise

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@artscaping

Good evening @kstoller22, Welcome to Connect. I was so glad to see you telling us that you are new on this path. If you are speaking about the world of osteoporosis and all of its options and afflictions, we are all sort of new to this part of the aging process. Remember though that as we keep pushing the aging envelope higher and higher, we run into more and more of our body parts that encounter some roadblocks, and others that just need a lot of help from the food we eat and the exercises we do in hopes that we are doing our best to live a healthy life, rich on the quality side with family, friends, activities, and experiences and attentive on the quantity side to make sure we are doing everything we can to age peacefully and without undue pain and suffering.

As time passes we find that osteoporosis often creeps up and weakens our bones. There are quite a few different strategies to deal with this inadequacy. Some of us are on a natural path. Some of us need help from medications and supportive regimens. What we have been doing for the last few months is trying to get all of us to join together as we encounter different options and choices. It appears that we all will have to make some pretty major decisions. There is no one solution for all. There are medically trained clinicians who will help us learn about osteopenia and then osteoporosis. There are folks on Connect who will share their helpful stories.

What are you considering at this point @kstoller22? Would you be comfortable sharing more of your medical situation and whatever in your life has led you to this point?

May you be safe and protected from inner and outer harm.

Chris

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@kstoller22 I like what Chris Trout told you. I just thought I would tell you about my arthritis and weaken bones from osteoporosis. I also welcome you. Because of soft bones and osteoporosis, my Dex just showed Osteopenia, but I have osteoporosis. I had to have a surgery because of degeneration of my spine. It was a back fusion from T-10 to my pelvis, a big surgery. The degeneration from osteoporosis had caused a acoliosis, but also had stenosis in L4 and L5 I am in a brace for now and can't bend, twist, or lift anything over 7 pounds. I'm off of all of my pain medicine and doing pretty good. I still have pain, but I can tolerate it or take 2 tylenol and a muscle relaxant. I'm also on Tymlos, an injection with a very small needle into my stomach to increase my bone mass. I have to use it for 2 years and then go on another one, which I think is an injection every 6 months. I had my 9 hour surgery at Mayo at Rochester MN. I had the best surgeon!!! He was a professor of orthopedic and spinal surgery and had 3 other qualifications. I take calcium citrate too.
I am walking short distances several times a day.. The weather here in Iowa does get hot, but it doesn't bother me. Yesterday was great. I wish you the best. Make sure you get a Dex, but they are not always accurate. If in pain a pain doctor is a good start. I had one that just kept on giving me injections and didn't even mention I could have soft bones or needing surgery. Take care and I will be thinking of you. See a good doctor!

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@julie2020

Thanks for your feedback, Sue. My mother took Prolia and ended up in the hospital with severe low blood calcium. So, I'm reluctant to start that drug. Also, my Endo did say what you have commented, that with Prolia there is no stopping it. Doctor favored Reclast over Prolia because she indicated Reclast stays in the body longer once you stop infusions, thereby being able to take off a year or two. I am very active, exercise, eat super healthy, take additional vitamins, and am otherwise healthy. It's just my bones that are in such poor shape! I'm very frustrated by the fact that women with osteoporosis just don't have better options!

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Hi, Thank you for your message. I am starting with once weekly OsteoStrong, which means once week osteogenic work, an appointment with an integrative MD at Northwestern Medicine in Chicago, and continuing to try to find information about how to treat osteoporosis without the biosphosphonates. I just ended one year of Tymlos, and there have to be other solutions than just jumping on Reclast or an oral bisphonsphates. I would not take Prolia. My mom developed osteonecrosis after five years on Fosamax (early 2000s) and had spinal fracture while she took the Fosamax – so I have not wanted to take the bisphosphonates. I know stress reduction, diet (I also eat a lot of spinach and 5 prunes daily) and weightbearing exercise help. Do you know about AlgaeCal or Dr. Susan Brown of Save Our Bones? https://saveourbones.com/ I wish you well, and will update if I find any promising treatments.

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@angelas

Has anyone received their 1st BMD scan with a low t-score, like -3.1 in the spine, and been prescribed Forteo? I’m 50 and a little freaked out as I thought I doing a baseline BMD scan. I have no underlying conditions that can explain the extremely low score. Family history of estrogen-receptive cancer puts HRT out of the question. I would like to wait a year, increase calcium/vit D/exercise, and get another scan. Thoughts?

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FYI. I went through stage 3/ Chemo radiation and had 2.6. Moved around for 2 1/2 yrs finally settled got new numbers 3.2 3.4— so if that helps you decide – Was taking D3 and calcium but not a focused exercise program and no meds. Your choice but I honestly don’t understand all the discussions about starting meds or which one. I think everyone is used to the process, why is osteoporosis meeting such consternation? I just started some while the researchers decide if I should change post cancer pill as well. I’m not fazed by this. Maybe I’ve come to understand I truly am happy to be here. I’ll read up on what I’m taking. But I’m taking it you can be sure. Mayo has my 100% confidence in their decisions. for now. 😉

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@johnduo32

You can cure osteoporosis in several ways. The protein, calcium, vitamin D and exercise can treat your osteoporosis.

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I don'think this can be cured. I was just diagnosed a few months ago.

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