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Anybody experiencing both at the same time?
Unfortunately Arimidex did not work as well as I expected for me.
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I wish you every luck with your treatment and keep on fighting,💕💓
I was just recently (July) diagnosed with both. My left breast tumor is HER2- but my lymph nodes are HER2+ I have a small cancerous lesion on my left pelvic bone. I am not sure what type it is yet. I just had my first round of (six scheduled) chemo treatments a week ago. I am taking Taxotere, Carboplatin, Herceptin, Perjeta and Neulasta. I will have surgery after I finish chemotherapy.
The pelvic bone lesion is something which I worry about (bone lesions in general)… at my age, so many places hurt. How did you discover it? What were your symptoms, if you don't mind me asking?
Oh my, you sure have a lot to deal with. I had two lesions in my breast but both were ER/PR+ and HER2- and was on taxotere and carboplatin, not all the extras you are receiving. Just recently though on PET scan a very small lesion was noted in my lung which they'll watch and do another PET scan in 3 months. Here's to all of your infusions going well. All the best to you.
WOW….. I hope you read my initial post. But just to quickly recap, I was diagnosed in April 2015 with HR+HER2- invasive ductile carcinomas. 2 surgeries/8 rounds of chemo/33 rounds of radiation and then declared NED until August 2019 when it came back in my chest. We thought it was negative & started Ibrance but about 30 days in we discovered it was HER2+…..& switched to Herceptin/Perjeta with a Faslodex shot. But in Jan 2020 we discovered lesions in my neck/spine that turned out to be HER2-. (My neck fractured… which resulted in 10 rounds of radiation & a very restrictive neck brace from 01/25-06/29)
It appears the + is responding well to Herceptin/Perjeta/Faslodex. The – is a bit more stubborn. I started Piqray in May, I am into round 3 of the Piqray and it appears it might be working 🙏🏽Scheduled to check my tumor marker again in about 3 weeks. If it’s going down we will stay with Herceptin/Perjeta/Faslodex/Piqray. I remain optimistic and faithful. This journey requires a positive attitude always…..otherwise cancer wins . Don’t give in….. Don’t give up….. Don’t give out!
You can do this! Stay strong!
My daughter was 23 when she was first diagnosed with HER2 negative breast cancer in Nov of 2018. Had a lumpectomy right away, followed 4 rounds of chemo and 30+ rounds of radiation. Then in April of this year 2021 she was diagnosed with HER2 positive, same breast, different area, and a bone biopsy determined it's stage 4 cancer. She's having chemo #6 next week (in addition to the immunotherapy – herceptin/projetta). We do not have a history of breast cancer in my family, and her genetic markers are negative for the breast cancer gene. It's really terrible, I wish so much this wasn't happening to her.
I know your daughter is glad you are on her team. I was in my 30s with my initial diagnosis, and the conversations with my mom were the best. I know you both are going through it right now so if I can offer support please let me know. The good news is with immunotherapies we are living longer with MBC. I read an article in the last few days talking about someone who was over 6 years out. To me that is hope. Is your daughter confident with her medical team? Does your daughter have children who would be concerned about genetics?
My heart goes out to you. My daughter was diagnosed in February age (42) with HER negative, ER/PR +. She decided on a double mastectomy with reconstruction. As a mother it is so hard to accept that your "baby girl" has to go through this. I read all the time about breast cancer and treatments to educate myself so I can feel more in control. It helps me cope. I have learned through all the reading that there is hope with all the treatments available. Everyone is different and there are miracles out there too! Keep the faith and I will pray for you mama. It's hard.
Your daughter's diagnosis was exactly what my daughter's was almost 3 years ago. It seem like things are "out of order" for our daughters to have breast cancer. She really hopes to have children someday, but with the stage 4 diagnosis I'm not sure that'll be possible. I guess I'm the reverse, I can't research too much because of her staging, which gives her 3-5 years. Only God knows her last day here on earth, I'm so glad I don't know it, but I struggle immensely with her diagnosis. I have 4 younger children (ages 10-16) who are watching her go through this. I'm definitely praying for a miracle, they do still happen. I had a friend encourage me to find a support group for Moms with children who have cancer and I've not found one in my area (or they all meet remotely, which I don't want to do).
She does have a good team of doctors. I agree, treatments change and get better, but I want to be realistic and not think that I have time with her that I don't. She's not going to live a long life, she won't have children, and it breaks my heart. When she was little, I was a single mom, and we were SO close as she was growing up. She doesn't have the breast cancer gene, there isn't a history in my family. There are times I just really struggle with her reality and as her initial diagnosis date approaches, it gets harder (though I don't let her know).
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