HER2 positive & HER2 negative: I have both at the same time

Posted by rraw @rraw, May 25, 2020

Anybody experiencing both at the same time?

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My old doctor who retired would have said, let’s hit with everything, just in case. I think the doctor I have now would have a more measured approach. I can’t say what it will be but with all the targeted treatments they have now I just know you are going to come through this.
I would be for asking “if I was triple positive before and only double positive now, does that mean a third less treatment this time?”. That is for levity, but seriously I would ask if it possible this was there and they missed it, or is it a fast growing cancer because from May until now doesn’t seem like a lot of time to grow a tumor. Because of my own history, if this were me, I would be asking for a pet scan to make sure there isn’t any more hanging around.
This has to be a crushing blow, how are you doing?

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@justabumpintheroad

I was originally diagnosed with her2 triple positive BC in May. I finished my 6 rounds of chemo and at a post chemo MRI i found a second tumor that is HER2 negative and estrogen positive.

i am curious what the treatment is under this scenario.

Jump to this post

Ask for an ONCOTYPE before taking anti estrogen therapy ( tamoxifen or aromatase inhibitors. But you will definitely be a candidate for hormone therapy ( meds) .

I’m sorry you have to go this just when you were thinking you were done with treatment. 🌸

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