HER2 positive & HER2 negative: I have both at the same time

Humor is so important for us going through this journey. I had one breast mastectomy. I am now known as the Unaboober 🤣

Humor is so important for us going through this journey. I had one breast mastectomy. I am now known as the Unaboober 🤣

Just remember, none of us have a “best by” date stamped on our back. I read research papers every day, it gives me a constant source of hope. There is an army of people around the globe working on this.
The reason I asked about children and genetics is there is other genes besides just “the breast cancer gene” that can predispose a person to breast cancer. I have one of the other genetic predispositions.
I am going to tell you a story that will hopefully give you hope. My best friend was diagnosed with an incurable cancer (multiple myeloma) in 2004. She passed after a brutal year in 2006. In 2010, just 4 years later, my husband was diagnosed with multiple myeloma. His cancer is currently under control and he is not on any treatments for it. It will start moving again, as it always does but there are a dozen treatments left in the box to treat him with, and more all the time.
I make it a point to enjoy every day with him. The day he was diagnosed the average lifespan of a myeloma patient was around 30 months. That was 11 and a half years ago. MBC is starting to get multiple tools in the box to treat with. This is making our lives better and longer all the time.

Thank you so much for this response, I've thought of it often over the past week. My uncle died from multiple myeloma, so I'm a little familiar with it, he died about 12-13 years ago. It's not a very common cancer so I'm always surprised how much I hear about it. It was a rough cancer for him, my Mom donated her stem cells for him that allowed him to live about 2 years past what he would have. The story about your friend and then your husband is incredible, I'm glad you told me.
I know my daughter didn't just have the test for the breast cancer gene, it was a panel of various ones, but is there something specific you'd recommend she get tested for?

I have something called cowden syndrome. Which pretty much means everyone in my fathers line got cancer. In the past they died and sometimes pretty young, but today I am still here 17 years and counting. My brother has a bad actor cancer, and he is way past his best by date. It is rare but my hat size prompted my doctor to test me along with family history.
Some weeks are definitely harder than others. Are you feeling a little more hope this week?

Yes. One breast was Her2+ and one was Her2- I called them “Dorthy and the wicked witch!”

me two left breast

Hello All, I am still battling HER2 + and HER2- at the same time the + appears to be responding to Herceptin and Perjeta. I started Piqray for the negative about 45 days ago & will know soon if it is getting the HER2 negative under control. Please let me know if anybody else has both a negative and a positive going on at the same time. Thanks