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HER2 positive & HER2 negative: I have both at the same time
Breast Cancer | Last Active: Jun 12, 2023 | Replies (39)Comment receiving replies
I was just recently (July) diagnosed with both. My left breast tumor is HER2- but my lymph nodes are HER2+ I have a small cancerous lesion on my left pelvic bone. I am not sure what type it is yet. I just had my first round of (six scheduled) chemo treatments a week ago. I am taking Taxotere, Carboplatin, Herceptin, Perjeta and Neulasta. I will have surgery after I finish chemotherapy.
Replies to "I was just recently (July) diagnosed with both. My left breast tumor is HER2- but my..."
@michmom er
Oh my, you sure have a lot to deal with. I had two lesions in my breast but both were ER/PR+ and HER2- and was on taxotere and carboplatin, not all the extras you are receiving. Just recently though on PET scan a very small lesion was noted in my lung which they'll watch and do another PET scan in 3 months. Here's to all of your infusions going well. All the best to you.
WOW..... I hope you read my initial post. But just to quickly recap, I was diagnosed in April 2015 with HR+HER2- invasive ductile carcinomas. 2 surgeries/8 rounds of chemo/33 rounds of radiation and then declared NED until August 2019 when it came back in my chest. We thought it was negative & started Ibrance but about 30 days in we discovered it was HER2+.....& switched to Herceptin/Perjeta with a Faslodex shot. But in Jan 2020 we discovered lesions in my neck/spine that turned out to be HER2-. (My neck fractured... which resulted in 10 rounds of radiation & a very restrictive neck brace from 01/25-06/29)
It appears the + is responding well to Herceptin/Perjeta/Faslodex. The - is a bit more stubborn. I started Piqray in May, I am into round 3 of the Piqray and it appears it might be working 🙏🏽Scheduled to check my tumor marker again in about 3 weeks. If it’s going down we will stay with Herceptin/Perjeta/Faslodex/Piqray. I remain optimistic and faithful. This journey requires a positive attitude always.....otherwise cancer wins . Don’t give in..... Don’t give up..... Don’t give out!
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@michmom
The pelvic bone lesion is something which I worry about (bone lesions in general)... at my age, so many places hurt. How did you discover it? What were your symptoms, if you don't mind me asking?