Help With Home Supplies

Posted by cyd @cyd, Aug 5, 2020

Hello all, I'm looking for suggestions on how to cut down on some of the costs with incontinence supplies after bringing a loved one home from long term care. He is not expected to make any great improvements with his health. The family simply could no longer afford the $7000 a month care and on top of that he had a total of 3 falls with 2 hospital stays while in that facility so they brought him home. I've tried to research this topic, it seems as there is no help financially through Medicare with the costs of adult diapers. Any information would be appreciated. We live in Florida. Thank you.

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@cyd Welcome to Mayo Connect. Have you been able to connect with any senior services in your area, like Area Agency on Aging? Alternative routes might be to post on a community Facebook page what you need, and let your faith family/neighbors/friends know the dilemma you find yourself in. Will you be looking in to getting some in-home assistance, even if just for respite care? I hope this gives you a few ideas, and I look forward to hearing other's suggestions.
Ginger

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Cyd, my husband and I had this same problem. Colon/Pancreatic stage 4 and no insurance. Here’s what we did until the state (OR) approved the last five months of his life. Cloth. Cloth is of course, a pain. But, according to my husband they were much more comfortable. We MacGyver’d the heck out of it, pennies count, and my thoughts are with you. I would also suggest if you have a church you go to, or one in your neighborhood. For the most part, they’re happy to help. Hang in there my friend, you’re doing a powerful and difficult and fulfilling kind of care.
You’re Stronger than you know, and Braver than you think.
~E

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Cyd, If and when your husband qualifies for hospice care, I believe hospice can provide the incontinence products needed and under certain conditions the costs may be covered by Medicare.

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Try looking up Diaper Banks in your area. Most larger cities have these. They are organizations that offer products and services for incontinence on a volunteer and donation basis. Just type Diaper Banks into a google search and your zip code and one of them should come up. Hope this helps.

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@candywocrn

Try looking up Diaper Banks in your area. Most larger cities have these. They are organizations that offer products and services for incontinence on a volunteer and donation basis. Just type Diaper Banks into a google search and your zip code and one of them should come up. Hope this helps.

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I did forget to say that I apologize for the name "diaper bank" but this is what they are truly called. They really do help with your concerns in many ways.

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@fwentz

Cyd, If and when your husband qualifies for hospice care, I believe hospice can provide the incontinence products needed and under certain conditions the costs may be covered by Medicare.

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Thanks so much.

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@candywocrn

I did forget to say that I apologize for the name "diaper bank" but this is what they are truly called. They really do help with your concerns in many ways.

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Thank you very much.

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@gingerw

@cyd Welcome to Mayo Connect. Have you been able to connect with any senior services in your area, like Area Agency on Aging? Alternative routes might be to post on a community Facebook page what you need, and let your faith family/neighbors/friends know the dilemma you find yourself in. Will you be looking in to getting some in-home assistance, even if just for respite care? I hope this gives you a few ideas, and I look forward to hearing other's suggestions.
Ginger

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Thanks very much.

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@cyd I am sorry I am behind in Connect post. I had to put my mom in a hospice facility yesterday.

Everything is provided for her in the facility… but to be in such a facility they have to be at end of life. I think estimated 3 months. We could have had home hospice but they do not provide 24 hour care (we would have to hire a sitter and we do not have money enough for that). I and my husband are not able to do the diaper changes. We had a hard time when she was in them last year.. I have arthritis in my hands. We finally found some pull-ups that were great that even worked for night with only an occasional leak. It was cheaper to buy them online than at the local medical supply stores or any retail store. Mama was able to go to the bathroom during the day, but sometimes could not hold it long enough to get there. So we were not going through as many as you might. We had washable pads to go under her to catch any leakage.

You have had some good advice. You might also want to check with your local Easter Seal facility… someone may have donated their remaining supply to help others. There was a group on facebook where people either had leftover supplies to either sell or give away a few years back.. sometimes those groups come and go. There may be other groups that could be found on an internet search.

I had a feeding tube myself for a little over a year. I had supplies left over. I think it was more than one case of formula and several of the bags for the formula and water. I gave them to Easter Seals. A six year old boy was helped by the formula and an elderly lady got the bags.

Zee Gee

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@fourof5zs

@cyd I am sorry I am behind in Connect post. I had to put my mom in a hospice facility yesterday.

Everything is provided for her in the facility… but to be in such a facility they have to be at end of life. I think estimated 3 months. We could have had home hospice but they do not provide 24 hour care (we would have to hire a sitter and we do not have money enough for that). I and my husband are not able to do the diaper changes. We had a hard time when she was in them last year.. I have arthritis in my hands. We finally found some pull-ups that were great that even worked for night with only an occasional leak. It was cheaper to buy them online than at the local medical supply stores or any retail store. Mama was able to go to the bathroom during the day, but sometimes could not hold it long enough to get there. So we were not going through as many as you might. We had washable pads to go under her to catch any leakage.

You have had some good advice. You might also want to check with your local Easter Seal facility… someone may have donated their remaining supply to help others. There was a group on facebook where people either had leftover supplies to either sell or give away a few years back.. sometimes those groups come and go. There may be other groups that could be found on an internet search.

I had a feeding tube myself for a little over a year. I had supplies left over. I think it was more than one case of formula and several of the bags for the formula and water. I gave them to Easter Seals. A six year old boy was helped by the formula and an elderly lady got the bags.

Zee Gee

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@fourof5zs I am sorry to hear you have had to place your mom into hospice. It is not an easy decision, to be sure, and you must be exhausted mentally and emotionally. Your input here is greatly appreciated!

@cyd How are you doing these days? Have you been able to track down any sources that be of assistance for your loved one?
Ginger

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