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Managing fibromyalgia

Posted by mrs artavia @mrsartavia, Aug 29, 2013

Hello everyone, I am looking for anyone who suffers from fibromyalgia and can suggest healing methods, medication and I would like to compare symptoms. Mine feels as if I had the flu, headache, joint aches, terribly tired, pain around the glands, stomach pain, low back. If lyou can please write with any comment or suggestion for relief, or any idea what causes it I will appreciate it thank you.

Interested in more discussions like this? Go to the Bones, Joints & Muscles group.

ladyjane85 | @ladyjane85 | Jul 21, 2016
In reply to @disgusted "I also had the added difficulty that as a man they did not think that Icould..." + (show)
@disgusted

I also had the added difficulty that as a man they did not think that I
could have fibromyalgia because they think it is a “woman’s problem”. I
also had intense back pain and my doctor ran me through a complete cycle of
tests for other things, all of which came up negative. At that point I was
hoping that I would have a fatal illness that would at least end the pain.
When he applied pressure on the tender points and I responded he determined
that i had fibromyalgia.

Then it got amusing. He asked me if I had any ideas as to how to proceed.
I did not know much other than Lyrica was being advertised, so he started
me on that. After a couple of days (it was Mother’s Day and I was out of
town with my family) I broke out in hives, so that ended Lyrica. Then I
suggested gabapentin and he started me on that. I began to get relief from
the pain when I got into megadoses of it and it has been working for me
since then. The side effects have not been too bad for me, so I have been
a happy camper, counting myself extremely fortunate, and hoping and praying
for other fellow sufferers.

Jump to this post

@disgusted from ladyjane85 That is right, they tend to think fibro as
a female ailment, but common among men also. Lycra was very bad for me.
Gabapentin – I have tried 2 x’s thru the years, never in megadoses bec also
side effects. Tthank you for your good note, The best to you.

REPLY
JohnWBurns | @johnwburns | Jul 21, 2016
In reply to @ladyjane85 "I was thinking this was my support group for fibro and back pain . Haveheard some..." + (show)
@ladyjane85

I was thinking this was my support group for fibro and back pain . Have
heard some diff meds, altho I never respond well to anything. But thank
you @disgusted (that’s the way I have felt for 30 years now with 5
surgeries on back and all the diff procedures which do not work. @ladyjane85

Jump to this post

Well there are people here pulling for you. Do you have any sources of diversion such as reading, watching some favorite programs?

REPLY
disgusted | @disgusted | Jul 21, 2016
In reply to @disgusted "I also had the added difficulty that as a man they did not think that Icould..." + (show)
@disgusted

I also had the added difficulty that as a man they did not think that I
could have fibromyalgia because they think it is a “woman’s problem”. I
also had intense back pain and my doctor ran me through a complete cycle of
tests for other things, all of which came up negative. At that point I was
hoping that I would have a fatal illness that would at least end the pain.
When he applied pressure on the tender points and I responded he determined
that i had fibromyalgia.

Then it got amusing. He asked me if I had any ideas as to how to proceed.
I did not know much other than Lyrica was being advertised, so he started
me on that. After a couple of days (it was Mother’s Day and I was out of
town with my family) I broke out in hives, so that ended Lyrica. Then I
suggested gabapentin and he started me on that. I began to get relief from
the pain when I got into megadoses of it and it has been working for me
since then. The side effects have not been too bad for me, so I have been
a happy camper, counting myself extremely fortunate, and hoping and praying
for other fellow sufferers.

Jump to this post

Responding to ladyjane85 who wrote – That is right, they tend to think fibro as
a female ailment, but common among men also. Lycra was very bad for me.
Gabapentin – I have tried 2 x’s thru the years, never in megadoses bec also
side effects. Tthank you for your good note, The best to you.

The best to you, as well.

REPLY
1langla | @1langla | Jul 22, 2016
In reply to @ladyjane85 "I was thinking this was my support group for fibro and back pain . Haveheard some..." + (show)
@ladyjane85

I was thinking this was my support group for fibro and back pain . Have
heard some diff meds, altho I never respond well to anything. But thank
you @disgusted (that’s the way I have felt for 30 years now with 5
surgeries on back and all the diff procedures which do not work. @ladyjane85

Jump to this post

Thanks!Hopefully,that means praying 4 me 2.Huh?I do read&watch tv.

REPLY
beatricefay | @beatricefay | Jul 22, 2016

What did your doctor give you for sleep? My sleep is awful after a knee replacement. Focusing on the pain with different meds (percoset, gabapentin, acetaminophen), but still up every 2 hours. Beatricefay

REPLY
1 reply
cila | @cila | Jul 22, 2016

Hello, where did you find the Dr. that help you for sleeping? I myself have hard time sleeping, I only get 3 or 4 hrs.I have been taking sleeping pills for a long time and I don’t to use them anymore. Thanks for the info.

REPLY
1 reply
disgusted | @disgusted | Jul 22, 2016
In reply to @beatricefay "What did your doctor give you for sleep? My sleep is awful after a knee replacement...." + (show)
@beatricefay

What did your doctor give you for sleep? My sleep is awful after a knee replacement. Focusing on the pain with different meds (percoset, gabapentin, acetaminophen), but still up every 2 hours. Beatricefay

Jump to this post

In reply to beatricefay, who wrote – What did your doctor give you for sleep? My sleep is awful after a knee replacement. Focusing on the pain with different meds (percoset, gabapentin, acetaminophen), but still up every 2 hours.

I take three 15 mg. pills of temezapam about an hour before going to bed. My pain levels drop so I usually fall asleep without too much trouble and I stay asleep between four and seven hours.

REPLY
disgusted | @disgusted | Jul 22, 2016
In reply to @cila "Hello, where did you find the Dr. that help you for sleeping? I myself have hard..." + (show)
@cila

Hello, where did you find the Dr. that help you for sleeping? I myself have hard time sleeping, I only get 3 or 4 hrs.I have been taking sleeping pills for a long time and I don’t to use them anymore. Thanks for the info.

Jump to this post

In reply to cila, who wrote – Hello, where did you find the Dr. that help you for sleeping? I myself have hard time sleeping, I only get 3 or 4 hrs.I have been taking sleeping pills for a long time and I don’t to use them anymore. Thanks for the info.

There is really only one doctor in my area (Quad Cities – Iowa and Illinois) who handles sleep issues, usually sleep apnea. My GP referred me to him and he has been nothing short of excellent. If you can sleep without pills, so much the better. I wish I could and have tried to do so from time to time, but I can’t get to sleep and when I do it is very light.

REPLY
disgusted | @disgusted | Jul 22, 2016
In reply to @ladyjane85 "I was thinking this was my support group for fibro and back pain . Haveheard some..." + (show)
@ladyjane85

I was thinking this was my support group for fibro and back pain . Have
heard some diff meds, altho I never respond well to anything. But thank
you @disgusted (that’s the way I have felt for 30 years now with 5
surgeries on back and all the diff procedures which do not work. @ladyjane85

Jump to this post

In reply o 1langla, who wrote – Thanks!Hopefully,that means praying 4 me 2.Huh?I do read&watch tv.

I will pray for you. I have a wide circle of friends who pray for me and I know God hears and answers prayer.

REPLY
1langla | @1langla | Jul 22, 2016
In reply to @ladyjane85 "I was thinking this was my support group for fibro and back pain . Haveheard some..." + (show)
@ladyjane85

I was thinking this was my support group for fibro and back pain . Have
heard some diff meds, altho I never respond well to anything. But thank
you @disgusted (that’s the way I have felt for 30 years now with 5
surgeries on back and all the diff procedures which do not work. @ladyjane85

Jump to this post

I’ll pray 4 you 2.Thanks!Yes,He does.

REPLY
ladyjane85 | @ladyjane85 | Jul 22, 2016
In reply to @ladyjane85 "I was thinking this was my support group for fibro and back pain . Haveheard some..." + (show)
@ladyjane85

I was thinking this was my support group for fibro and back pain . Have
heard some diff meds, altho I never respond well to anything. But thank
you @disgusted (that’s the way I have felt for 30 years now with 5
surgeries on back and all the diff procedures which do not work. @ladyjane85

Jump to this post

Yes, of course, I do many intellectual things all day long……I used to be able to do my art work but everything is too back breaking in every medium. ladyjane85

REPLY
Keysgull | @keysgull | Jul 23, 2016
In reply to @disgusted "I have concluded that most ailments that are diagnosed as being fibromyalgia are not autoimmune diseases..." + (show)
@disgusted

I have concluded that most ailments that are diagnosed as being fibromyalgia are not autoimmune diseases at all and that rheumatologists are generally surprisingly inept at treating most forms of the disease. I got way better treatment from my general physician than anyone else. I made three trips to Mayo Clinic and the folks there never even were able to diagnose me properly, much less give me any effective treatment. One doctor glared at me and said, “Nobody every died of pain. Just go home and get over it.”

Jump to this post

Disgusting

REPLY
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