Heavy perfume in medical facilities, or anywhere, really

Posted by chicagomichelle @chicagomichelle, Jan 19, 2017

How do we get through to people that this could actually cause great respiratory distress? Even death.

I told a hotel guest the other day, in the kindest way possible, that I was allergic to her and she needed to understand what her chemical scent could do to those with respitory issues. She was headed to Mayo. I imagined the poor patients with even more severe conditions. It was the first time I ever said that to anyone's face, but felt it needed to be said.

I've experienced this a great deal this week, even with clinic staff. To date, I've had 0 complaints about MC, but I hope they are listening now and will work to make their buildings perfume free.

Interested in more discussions like this? Go to the Lung Health Support Group.

Yes. Apparently the testing for much of this is not available outside of a clinical trial. I did however, find a Dr. that will do genetic tests for some of the drug reactions - it too is limited, but its better than not having a definite diagnosis on file with no parameters. I have my allergies and intolerances on a chart. It includes, drug - dosage - reactions - retry(s) with start and end dates with each one. I did this because I couldnt remember what drug did whatever- so thischart is taken with me to every doctor. Once I heard a doctor in the hallway quite loudly declare he didnt believe it - he did say to me later that I dont have a say - only the doctor does. So I said "Saranarha". (forgive the spelling).

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