HEART VALVE TRANSPLANT AND SUBSEQUENT ALLERGIES

Posted by ejs001 @ejs001, Jul 27, 2018

My husband had a heart valve transplant four years ago (animal, not mechanical). In the past few years, he now is prescribed a medication, takes it once and it is fine, and then the 2nd time has allergy symptoms. He never had this before. Amoxicillin-anyphylactic shock, Clemdomyacin- rash, itchiness, currently is on prednisone, furosemide and cymbalta- face flushed and upper chest, minor rash, another one I can’t think of at the moment , after he took it for ten days, his hand started peeling another allergic symptom. Before all dental work he has to take antibiotics, but now he can’t take amoxicillin, clemdomyacin, Keflex…. our doctor is trying to decide what he can give my husband before his next dental work. It is just interesting to me that all of these allergies have popped up since the heart valve transplant (also had quadruple bypass at the same time). I wish I were a scientist, I would like to investigate to see if there is a correlation between the transplant and subsequent allergies.

Hello, @ejs001 — I noted you just joined Connect today and wanted to welcome you.

I truly hope things are going well for your husband heart-wise post-transplant. Great that he was able to have that done.

That is a very interesting question about the heart valve transplant and subsequent allergies.

I thought you might like to meet a few members who have talked about heart-related transplant, like @lottyfeeble21 @glinda @buckeyegurl @lupedelarosa12 @fatherscaregiver. Hoping they may have some thoughts for you on a possible connection between the allergies and the transplant. I also wanted you to meet @rosemarya and @contentandwell.

@ejs001 — sounds like you mentioned this to your husband's primary care provider, which is wise. Have you gotten to ask him or her about this development of allergic symptoms and any correlation with the transplant?

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@lisalucier

Hello, @ejs001 — I noted you just joined Connect today and wanted to welcome you.

I truly hope things are going well for your husband heart-wise post-transplant. Great that he was able to have that done.

That is a very interesting question about the heart valve transplant and subsequent allergies.

I thought you might like to meet a few members who have talked about heart-related transplant, like @lottyfeeble21 @glinda @buckeyegurl @lupedelarosa12 @fatherscaregiver. Hoping they may have some thoughts for you on a possible connection between the allergies and the transplant. I also wanted you to meet @rosemarya and @contentandwell.

@ejs001 — sounds like you mentioned this to your husband's primary care provider, which is wise. Have you gotten to ask him or her about this development of allergic symptoms and any correlation with the transplant?

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@lisalucier @ejs001 I have not had any allergic reactions, but have had some other reactions — primarily diarrhea from the immunosuppressants. Other than that I'm good, thankfully.
I did suddenly realize recently that when they say to take the immunosuppressant either with or without food that perhaps if I changed my schedule and take it without food, my problem would improve, which it has. Primarily I did it though because the long-term effects of any drugs can be problematic. I went from taking four mg a day to 2.5, so I am very pleased about that. I end up setting an alarm to wake me up at 6:30 to take my pills, then go back to bed for another hour before I get up and have breakfast. It's a nuisance, particularly if I cannot get back to sleep, but I'm working on it, and I think for me it's the right thing to do.
JK

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Hi, My father has not had any allergic reactions to his medications. As mentioned by @contentandwell, he did have diarrhea caused by his immunosuppressant.

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@ejs001, I join others with a Welcome to Connect.
I am a transploant recipient, and I am wondering if you mean 'heart valve surgery'. Here is some information about heart valve surgery that I would like to share with you.
https://www.mayoclinic.org/tests-procedures/heart-valve-surgery/about/pac-20384901.
Have you investigated the Heart and Blood Health group?
https://connect.mayoclinic.org/group/heart-blood-vessel-conditions/

Liked by Lisa Lucier, lioness

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May I ask what kind of animal valve was used? I had an aortic valve replacement two years ago and my doctor used a cow valve which requires no additional medications. So far so good.

Liked by lioness

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@giller198

May I ask what kind of animal valve was used? I had an aortic valve replacement two years ago and my doctor used a cow valve which requires no additional medications. So far so good.

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@giller198 most of time its either a cow or pig valve they use

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@giller198

May I ask what kind of animal valve was used? I had an aortic valve replacement two years ago and my doctor used a cow valve which requires no additional medications. So far so good.

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I had the cow valve and had to take coumadin for 3 months and then a 30 day monitor of the heart . The readings from the monitor showed minor afib so the specialist cardiologist did not want to add any medications at this time and I am not scheduled to see him for a year. My regular cardiologist did prescribe Xarelto daily though. I had the surgery in February and was in the hospital for 15 days because I was allergic to Heparin and became anemic. It was the first time I was ever in a hospital and hopefully my last. I have not had cardio rehab because I have arthritis in the hip and was limited to what exercises I could do. According to the surgeon I'm good for 20 years! 🙂

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@hazelnut

I had the cow valve and had to take coumadin for 3 months and then a 30 day monitor of the heart . The readings from the monitor showed minor afib so the specialist cardiologist did not want to add any medications at this time and I am not scheduled to see him for a year. My regular cardiologist did prescribe Xarelto daily though. I had the surgery in February and was in the hospital for 15 days because I was allergic to Heparin and became anemic. It was the first time I was ever in a hospital and hopefully my last. I have not had cardio rehab because I have arthritis in the hip and was limited to what exercises I could do. According to the surgeon I'm good for 20 years! 🙂

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@giller I had a triple by pass in 1996 so you have longevity with anykind of heart surgery TheDr when he did mine told me it was good for 10 yrs. Little did he know lol

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@lioness

@giller I had a triple by pass in 1996 so you have longevity with anykind of heart surgery TheDr when he did mine told me it was good for 10 yrs. Little did he know lol

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That's terrific…..22 years no problems ! 🙂

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@hazelnut

That's terrific…..22 years no problems ! 🙂

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@hazelnut Surgeon did a great job and God has keep me going ,good diet@exercise is the key also saying no at times when tired .hope you have the same 22a still going Im 75 soon 76

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I'd like to invite you to join us today, Tuesday, December 4th at 12 p.m. CT for a video Q&A with Dr. Joseph Dearani, Chair, Cardiovascular Surgery, and Dr. Juan Crestanello, cardiovascular surgeon, about heart valve disease and surgical options.
https://connect.mayoclinic.org/webinar/video-qa-about-heart-valve-disease-and-surgical-options/
Dr. Dearani and Dr. Crestanello will answer questions live. Post your question before and during the broadcast. You can participate in the Video Q&A on Connect by returning to the above page; the video will be shown at the top of the page.

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Last year I had open heart surgery and had my valve replaced with the cow part. Currently I am on Xarelto. I recently saw a rheumatologist to get the okay for hip surgery. The doctor also diagnosed me with severe fibromyalgia and suggested I try the medical marijuana ( not smoking though). I have only tried the liquid and the edibles and have had less pain and able to sleep. Now, I have read that I should be very cautious of the cannabis having past heart conditions.
The cardiologist did approve the CBD Daily which can be purchased anywhere but this spray does not have a true pain reliever or use for anxiety.The cardiologist does not know I have taken the advice of the rheumatologist and started using the cannabis. All of my doctors are from the same hospital and communicate via the computer so I assume that before recommending the cannabis the doctor considered the medications I am taking.
Has anyone been using the edibles and oils that has similar conditions and what was the advise of your cardiologist ?
I would appreciate your response.
Thank you.

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Hi @hazelnut,

Cannabinoids have been getting a lot of attention for their therapeutic potential in treating various conditions, but serious questions remain about the safety and efficacy of cannabis‐derived medicines. One of the few things researchers know for sure, about cannabis medications including smoking marijuana, and heart health is that people with a history of heart disease can develop complications earlier or faster than they would have otherwise.

According to the American College of Cardiology, “ its use…can precipitate an acute event in susceptible patients, and its use may be associated with increased mortality in patients with history of MI.” https://www.acc.org/latest-in-cardiology/articles/2016/09/22/08/58/marijuana-and-coronary-heart-disease

You might be interested in reading this study too, which highlights "…the adverse effects of cannabis use and the risk of acute coronary events, stroke, and possibly death.”
– Role of cannabis in cardiovascular disorders https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5542986harp

@hazelnut, I would sincerely encourage you to consult with your cardiologist; Mayo Clinic advises that people consult with their health care provider before making any changes to medications or treatment plan.

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@kanaaz Thank you for the info…. I was able to view the first site but the second article was not available. I did talk to one of the nurses for the cardiologist and waiting for her to discuss my concerns with my cardiologist regarding the cannabis for the pain and also the teeth bleeding from the blood thinners. At times the pain is unbearable , not so much from the hip that needs surgery but from the fibromyalgia. The rheumatologist had my complete medical history when she suggested the medical cannabis. I do my best to avoid taking pain pills and I can not take anti inflammatory drugs because of the blood thinner. I can not afford stem cell treatment and the steroid injections aren't working for me as I expected. So, what does one do to ease the pain ?

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