Heart Rhythm Conditions – Welcome to the group

Mine 3 years ago was first at 470.. I was asymptomatic.. untill recently well I actually thought I had epilepsy having seizures in my sleep.. I got an iud placed in to help with my pmdd.. that's when things got serious my potassium was life threateningly low and my score went to 490.. but again like yourself it fluctuates. The doctors don't know much about this heart condition.. all I know it cab lead to svt or tdp! Which scares the hell out of me! How are you managing your symptoms when present? Because like I said 2 3 years ago I was diagnosed but never had a problem untill now.. please be safe and take care of yourself.. I feel so alone in this and I don't know what to do.. im on a beta blocker and 1.2 grams of potassium a day! I just found out my uncle passed away from this... but he did not take care of himself AT ALL! I'm hoping with the right life style changes and check ups I can avoid going into afib or set. I'm so sorry you have to go through this... you think they would have more research... some doctors are saying it's the leading cause of SIDS! They don't say much because again research is vague and I'm sure the doctor isn't trying to stress you out also, just being a good doctor knowing stress will throw you into a fib!

Thank you so much I take 1.2 grams of potassium a day in this drink its so gross... those foods are some of my favorites so thank you so much for your advice!!

I just looked up hypokelmic which is being low in potassium. And Doc Google also said it can cause heart problems when low in potassium. Add some of your favorites from the following list to your diet every day.

Banana, Potatoes, Spinach, Beets, Swiss Chard, Butternut Squash, Tomato Paste, Avocado, Dried Apricots, Watermelon, Pomegranates, Orange Juice, Coconut Water, Beans, Lentils, Plain Yogurt, Salmon,

@mellyq I drink low sodium V-8 which has a lot of potassium (used in place of salt for taste).

I have had EKG's with prolonged QTc interval. My EP doctor last week told me it tends to be higher in females. Mine is generally in the 460's but during afib went up to 504. Some of my EKG reports say "borderline QTc" but doctor seems unworried.

The QTc uses a formula to adjust the score. I am not sure whether that formula has any flaws. My QTc score seems to fluctuate quite a lot and afib raises it, it seems.

In general I avoid medications that might prolong my QTc further, like zofran and zithromax.

What is your QTc score?

Hi Everyone, I have Congestive Heart Failure and recently wore a heart monitor for 6 days. It showed tachycardia and bradycardia plus PVS's and PAC's. My endocrinologist had ordered blood work for my yearly thyroid check and my Alkaline Phosphatase, AST. ALT and cortisol were very high. She said my CHF is stressing my liver. She had me send these reports to my cardiologist. How do you de-stress CHF? I eat a low salt diet- under2000mg. I need to lose weight but I am never hungry and I eat about 600 -900 calories a day. and have lost 2 lbs since Dec. Even though I have Sjogrens, I have been told to limit my liquids to under 64oz a day. I have gotten dehydrated so am upping it to 70 and eat ice chips- but I measure them too. Any help would be appreciated.

Has anyone had the procedure for hypotrophic cardiomyopathy "Alcohol Septal Ablation?" And if so, your experience and where did you have it done?

Hypokalemia means out side of the lower limit for normal potassium values in the blood. I tend to be that way as well, and have to supplement. I eat peanut butter, a lot of it, and peanuts have potassium. So do potatoes, beets, coconuts, kiwi fruit. How I could be swirling around the drain of hypokalemia is a mystery to me, but when I had to go to the ER two years ago for a heart arrhythmia, they gave me two large white tablets and told me I needed more potassium (after the blood assay).

Alas, I am not up to speed on long QT intervals. My problem was atrial fibrillation. Have you done any reading on your own?
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7252925/

Hey I'm Melissa, just wondering more about anyone with prolonged QT syndrome. I was asymptomatic for 3 Years.. out of no where I started having seizures mostly in my sleep. I'm thinking this is an ecliptic episodes... one day again going back in the ER they told me again I had a positive ekg. I was hypokelmic.. just haven't felt right since thr first positive ecg
If anyone has any advice at all I'd love to hear.. I'm 35 years old and my uncle also passed from this! Thank you

My heart and lungs are perfect. Had all the tests. Used to walk and hike before this. Lost 50lbs and no change. Still overweight but am doing exercise. Had physical therapy and helped a bit. Have no pain in my back unless I’m trying to stand up straight and walk.

Hi, I’m Bonnie and have A fib and on Eliquis. I also have a slow heart rate which seems to cause fatigue. It makes me nervous but my cardiologist says not to worry unless I have fainting or other symptoms.