Heart Rhythm Conditions – Welcome to the group

Welcome to the Heart Rhythm Conditions group on Mayo Clinic Connect.
Did you know that the average heart beats 100,000 times a day? Millions of people live with heart rhythm problems (heart arrhythmias) which occur when the electrical impulses that coordinate heartbeats don't work properly. Let's connect with each other; we can share stories and learn about coping with the challenges, and living well with abnormal heart rhythms. I invite you to follow the group. Simply click the +FOLLOW icon on the group landing page.

I'm Kanaaz (@kanaazpereira), and I'm the moderator of this group. When you post to this group, chances are you'll also be greeted by volunteer patient Mentors and fellow members. Learn more about Moderators and Mentors on Connect.

Let's chat. Why not start by introducing yourself?

Interested in more discussions like this? Go to the Heart Rhythm Conditions Support Group.

Hi Teresa, I'm Nancy (shortshot80) Its been a while since I'v been here. Have been doing some radiation on my right side as it has been making me cough upf blood. Jan.22 I had radiation. Right now as I'm trying to type my little friend "abbi" is standing on my lap and leaning on my left arm. Kinda hard to type.
I have finished my book and my daughter has it to proof read. Soon for printing. Yea! Glad It's done. I've been doing sorta ok, this last year Jan 19**19 I fell and broke my hip. I'm finally getting around some without the walker. All kinds of medical stuff for the whole year. I'm glad it's done. Still have some of the medial but hopefully not as much for this year. Will get on here more now.... Nancy

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@backpacker2020

Hi there, new member here and wondering if there is a way to search the discussions for a particular topic/condition?

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Hello, @backpacker2020 and welcome to Mayo Connect. If you want to search for a topic you can go to "Groups" (top of the page) and it will bring up a number of health-related group topics.
At the top of the page, you will also see a little magnifying glass. If you click on that it will open a text box where you can type in a subject, then hit "Enter" and posts about the topic will become available.
If you would like to mention the topic you are looking for, I can direct you to the best discussion group.
Once again, welcome to the Connect community!

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@shortshot80

Hi David, I'm Nancy (shortshot80) I did not know I was out of rhythm, nor I did not know I ever had AFIB as I have a pacemaker and have had for over 10 years, I'm on my 2nd pacemaker and have had it for over l year. I also have two kinds of lung cancer. I have mesothelioma on my left side and plain small cell cancer on my right side. I have had chemo, immune therapy, and finally radieation on my right side. Nothing can be done on the Meso side, (so far I don't have any pain) Radiation twce on my right side and that is because I was coughing up blood. That is all I can have. I found out that I had this in 2016. I had surgery and the doc put a 4 foot plastic tube in my lung and let it drain for for days, then told me I had "meso" . Nothing can be done for this. Next month I will be 87 years old. Yea!

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@shortshot80
So good to hear from you again, Nancy! I was not aware that you had A-Fib, nor that you had a pacemaker. I'm glad to hear that is working well for you.

Did you have symptoms that required the second pacemaker?

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@backpacker2020

Hi there, new member here and wondering if there is a way to search the discussions for a particular topic/condition?

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Nancy (shortshot80) I don't know..... I have been on the Lung Cancer program with Colleen Director and Teresa. I have visited with those people since 2018 --2017 - 2018-2019 as much as I could be after treatments... Nancy

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Hi there, new member here and wondering if there is a way to search the discussions for a particular topic/condition?

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Shortshot 80....... you are incredible

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@asianeagle

Hi, I’m David. I have 2 stents already and one day started having AFib when I walked. I was given pills and bought a monitor, checking 5 times per day. Apart from an episode a few weeks later, I have no signs of AFib showing up on my monitor. I do note that I get chest pain when my heart rate is up from walking up hills. However once I rest and then go in, it’s fine until another hill. I wonder if this is AFib or a small blockage.

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Hi David, I'm Nancy (shortshot80) I did not know I was out of rhythm, nor I did not know I ever had AFIB as I have a pacemaker and have had for over 10 years, I'm on my 2nd pacemaker and have had it for over l year. I also have two kinds of lung cancer. I have mesothelioma on my left side and plain small cell cancer on my right side. I have had chemo, immune therapy, and finally radieation on my right side. Nothing can be done on the Meso side, (so far I don't have any pain) Radiation twce on my right side and that is because I was coughing up blood. That is all I can have. I found out that I had this in 2016. I had surgery and the doc put a 4 foot plastic tube in my lung and let it drain for for days, then told me I had "meso" . Nothing can be done for this. Next month I will be 87 years old. Yea!

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@predictable

Three quick points about training my brain to knock off its pressure to have me urinate. First, my problem may be different from yours. For example, I have an inherited kidney defect that causes me to rely on Amiloride, a specialized diuretic designed to preserve/reclaim potassium. The diuretic speeds removal of water (and wastes) from my body. As a result, my brain has been trained to respond earlier and more often to stimuli that suggest my bladder needs relief. Second, perhaps I made a mistake in using the word "exercising," suggesting a regimen that we haven't yet developed fully. Third, I was a victim of benign prostatic hypertrophy (BPH) that stole a lot of the space in my bladder and encouraged my brain to take that into account; a golf-ball sized hunk of prostate flesh was removed by a transurethral resection of the prostate (TURP) several years ago. That said, here's the other advice from my nephrologist.

First and foremost, I am much more conscious about hydrating my system regularly and more often than in recent years. By over-consuming water somewhat, my brain is expected to learn that I need more water in my organs and that my bladder should tolerate more pressure than my urine has been developing there. This helped us understand why rolling over in bed at night -- in effect, simply irrigating bladder lining on one side that has been "drying out" from lying horizontal for a couple of hours -- wakes me up and sends me to the bathroom. The challenge here is to find a position in bed that I can maintain for longer periods.

I should try to drink each day at least 8 cups of water between arising in the morning and 3-4pm (we have dinner about 6pm and retire about 11pm). Routinizing the schedule here might train my brain to expect hydration at fixed times, so changing the schedule every day is being tested for effects. We're looking for a way to slowly increase water consumption over a couple of months in order to increase my capacity for maintaining better hydration without resorting to urination.

I also should try to consciously reject bladder signals to urinate when they are triggered by an environmental experience. So far that has meant "holding" my urine when thoughts of drinking water, washing hands, taking a shower, doing the dishes, or getting my feet wet triggered an impulse to urinate. It remains to be seen whether routinizing my daily exercise, conducting it longer, changing motions, and changing start times and duration might have an effect. Martin

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That is a lot of good advice. I grew up in home that had a pot at night, (9 children) I trained myself to keep topping off. Socially I developed a "Tiny Tank" 3 things have helped me in old age. 1) Staying hydrated with out excessive fluids can be accomplished by saturating a jar of water with Himalayan Pink Salt . You start by taking 1 teaspoon of the fluid in a glass of warm water early before breakfast. Drink it down and it will pass through the stomach and be absorbed quickly. Do not start with more than 1 teaspoon 3 time a week. In time, increase to 1 table spoon at a session. Too much will cause diarrhea.
Google health effects. 2) I sleep on the left side as recommended by the sleep people 3. I am a Senior proffessor Emeritiss in Biofeedback. I used electrodes to train the pelvic floor to hold off the urge and prolong the periods with guided imagery. I learned to defeat the social habit of childhood. Other people have more serious issues. Women have short urethera 7" compared to men 16". So child birth and pelvic floor issues are greater.

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@asianeagle

Hi, I’m David. I have 2 stents already and one day started having AFib when I walked. I was given pills and bought a monitor, checking 5 times per day. Apart from an episode a few weeks later, I have no signs of AFib showing up on my monitor. I do note that I get chest pain when my heart rate is up from walking up hills. However once I rest and then go in, it’s fine until another hill. I wonder if this is AFib or a small blockage.

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David. I only had Afib. I did not realize how much I needed a demand pace maker at 60 demand from St Jude until the cardiologist Implanted it. Could this be a direction for you? So simple and effective.

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