Heart Rhythm Conditions – Welcome to the group

Welcome to the Heart Rhythm Conditions group on Mayo Clinic Connect.
Did you know that the average heart beats 100,000 times a day? Millions of people live with heart rhythm problems (heart arrhythmias) which occur when the electrical impulses that coordinate heartbeats don't work properly. Let's connect with each other; we can share stories and learn about coping with the challenges, and living well with abnormal heart rhythms. I invite you to follow the group. Simply click the +FOLLOW icon on the group landing page.

I'm Kanaaz (@kanaazpereira), and I'm the moderator of this group. When you post to this group, chances are you'll also be greeted by volunteer patient Mentors and fellow members. Learn more about Moderators and Mentors on Connect.

Let's chat. Why not start by introducing yourself?

Interested in more discussions like this? Go to the Heart Rhythm Conditions Support Group.

Profile picture for shebattine @shebattine

bfleurdelis

Have read many situations of which have shed light on my experience with AFIB. Currently on Eliquis with 2.5 dose, have been prescribed Flecainide which I am afraid to take after reading about it. Hesitant to approach my electrophysiologist as I have not started it.

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@shebattine There are thousands who use Flecainide for years, or they use it when required using a 'pill-in-pocket' approach. It's a safe drug, but as will all medications, some bodies object to them and they need to try another drug.

You have little to lose by not at least trialing it for a couple of weeks to see if it is a good fit, and who knows....you may find it's just the ticket. You can always stop if you know what the typical counterindications are, what the side effects typically are, and if you can see them building up in your system.

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Profile picture for newtoni48 (Jim) @newtoni48

@babheart The Fitbit Sense 2 and some other wrist worn devices will let you take a manual ECG and will identify when you're not in sinus rhythm. They're not as versitile or detailed as the Kardia, but it's one less thing to carry around. Fitbit worked for me. My episodes were never cooperative enough to show up in-office, at the ER or while wearing a Zio Patch.

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@newtoni48 thank you, FitBit had the highest rate of success with the the study I read. I don’t want to obsess about my HR but if I am in AFib for 16 hours and feeling lousy I want to know why.

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bfleurdelis

Have read many situations of which have shed light on my experience with AFIB. Currently on Eliquis with 2.5 dose, have been prescribed Flecainide which I am afraid to take after reading about it. Hesitant to approach my electrophysiologist as I have not started it.

REPLY
Profile picture for babheart @babheart

@mjohns For what it’s worth, I’ve found the KardiaMobile to be super helpful in detecting paroxysmal afib especially during the day as the Apple Watch or Fitbit inspire 3 will only recognize the arrhythmia if it persists for 10 min while you are still. So during the day, it was often missed- only registered when I was asleep. Since I’m pretty symptomatic the Kardia picks up short runs best for me during the day. Good luck!

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@babheart The Fitbit Sense 2 and some other wrist worn devices will let you take a manual ECG and will identify when you're not in sinus rhythm. They're not as versitile or detailed as the Kardia, but it's one less thing to carry around. Fitbit worked for me. My episodes were never cooperative enough to show up in-office, at the ER or while wearing a Zio Patch.

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Profile picture for babheart @babheart

@mjohns For what it’s worth, I’ve found the KardiaMobile to be super helpful in detecting paroxysmal afib especially during the day as the Apple Watch or Fitbit inspire 3 will only recognize the arrhythmia if it persists for 10 min while you are still. So during the day, it was often missed- only registered when I was asleep. Since I’m pretty symptomatic the Kardia picks up short runs best for me during the day. Good luck!

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@babheart thank you. Blessings with your health journey.

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Profile picture for mjohns @mjohns

@mjohns For what it’s worth, I’ve found the KardiaMobile to be super helpful in detecting paroxysmal afib especially during the day as the Apple Watch or Fitbit inspire 3 will only recognize the arrhythmia if it persists for 10 min while you are still. So during the day, it was often missed- only registered when I was asleep. Since I’m pretty symptomatic the Kardia picks up short runs best for me during the day. Good luck!

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Profile picture for osgilian @osgilian

@mjohns My EP also accepts at face value my Galaxy 4 Classic watch. Both the Galaxy 4 and 6 are FDA approved for accuracy of their arrhythmia detection functions (and won't break the bank, as @gloaming noted).

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@osgilian thank you

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Profile picture for mjohns @mjohns

@gloaming this is exactly the kind of thing I need to know, thanks. Full disclosure, I considered Apple Watch until I read of a man setting up his watch and going into cardiac arrest. His RN wife told a compelling story and it scared me.

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@mjohns My EP also accepts at face value my Galaxy 4 Classic watch. Both the Galaxy 4 and 6 are FDA approved for accuracy of their arrhythmia detection functions (and won't break the bank, as @gloaming noted).

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Profile picture for mjohns @mjohns

@sandw40 truth. Sometimes I have been that patient with a weirdo response. Do you monitor your rhythm at home?

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@mjohns Yes I do. At one time pretty religiously but that has worn off and now just an occasional glance. In my own opinion one can become a slave of some these devices in their never ending nagging to be doing something or trying to do better at something. I often wonder how many of us would continue using them if they have a countdown feature for how many "heartbeats left" was available.

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Profile picture for sandw40 @sandw40

@mjohns If you start reading reviews or articles about "anything" from refrigerator to cars to heart monitoring you will eventually read something that will be negative. Just like medications not everything works well with everyone 👍🏼.

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@sandw40 truth. Sometimes I have been that patient with a weirdo response. Do you monitor your rhythm at home?

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