Heart Rhythm Conditions – Welcome to the group
Welcome to the Heart Rhythm Conditions group on Mayo Clinic Connect.
Did you know that the average heart beats 100,000 times a day? Millions of people live with heart rhythm problems (heart arrhythmias) which occur when the electrical impulses that coordinate heartbeats don't work properly. Let's connect with each other; we can share stories and learn about coping with the challenges, and living well with abnormal heart rhythms. I invite you to follow the group. Simply click the +FOLLOW icon on the group landing page.
I'm Kanaaz (@kanaazpereira), and I'm the moderator of this group. When you post to this group, chances are you'll also be greeted by volunteer patient Mentors and fellow members. Learn more about Moderators and Mentors on Connect.
Let's chat. Why not start by introducing yourself?
Interested in more discussions like this? Go to the Heart Rhythm Conditions Support Group.
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It seems to me it isn't all physical, what about your emotional life? And all the grief from TV news showing us images of starving children in Yemen. I think this has an effect on us even if it bypasses the brain and goes directly to the heart. I'd take a fast from world suffering.
I read your post to my husband, he thinks you are having an anxiety reaction.
Hello, sorry to hear about your suffering. I also have PVCs but they were originally classified as rare 2 yrs ago. They now seem to be ramping up as I have had several episodes in just the last month.
I am told that my symptoms are unusual, so if anyone else has the same symptoms please let me know.
Episodes start with elevated BP, 200/90 ish, my heart is pounding 100+, I get diarrhea pretty fast after it all starts, then sometimes I throw up or just feel nauseous. The episodes last anywhere from 1-5 hours. I’m told that these symptoms are not typical.
I have a Doc appointment tomorrow to discuss next steps.
BTW, I have the Kardia app, it doesn’t have the capability to report PVCs, so now I’m not sure why my Doc told me to get it!? Any heart rate data over 100 doesn’t get captured and shows as “unclassified”, so not real helpful.
@johnpny
You are of course correct about the information. I had beed victim to PVCs for a very long time and have the resultant damage they cause. Various tests, including 2 of those stress inducing tests done with chemicals as I could not run a tread mill prior to my bypass and then the increase from 10/minute(2013) to 20/minute(2015). While I was in hospital for 3 days prior to and then 4 days following the bypass the monitors were able to give a very clear picture to the M.D.s so they were able to basically spot the exact location to ablate.
Had not realized until now that those days of monitoring were what were needed to pinpoint the exact location of the nerve that was misfiring. I still get them, but not more than 3/minute and then only under great stressful conditions. My cardiologist told me that having the Bradycardia (as low as 36BPM while sleeping) can allow the stray PVC, but they happen while my BPM is often higher, and not while I'm sleeping.
To monitor the PVCs I own a portable ECG device that slaps on the back of an iPOD or could go on an iPhone. It is from Kardia. I do not feel the PVCs as they are not as strongly felt, but that could be due to the damage initially done to my heart by the excessive PVCs.
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1 Reaction@lalton , @johnpny thank you both. I seem to have lucked into a string of experienced cardiologists with good credentials. The PVCs were dramatic enough (number, effect) for them to skip quickly to ablation before more damage to the muscle occurs. I only wish I could blame it on being a high end athlete but I am not that rigorous. The docs did the monitor and are pretty sure of the general location of the aberrant cells so I’m hopeful. Thanks again.
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1 ReactionSorry to hear of your problems. This is rarely a medical condition with a quick fix. PVCs can often be thought of in oversimplifjed terms as an electrical signal bouncing off a zone of bad tissue. The signal can often be rerouted by destroying the related path, but only if a specific location giving rise to the pvc can be observed. This is often done by observing the number and types of pvcs recorded on a 24 hour test, or when mapping during a study when an ablation is to be attempted.
Then there are meds
Doctors will almost always start with safe medicines that might not be as strong. They can often rotate through medicines, or combinations, to see which work and what you can tolerate. It’s always about balancing the risk of the PVCs vs the side effects of the meds. In some cases they will not start a new med unless you are in the hospital hooked up so that you can be observed
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1 ReactionHi Tom,
high end athletic stress on your heart can cause it. many olympic athletes have it.
best wishes,
Larry
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1 ReactionAs I understand it, Vagal stimulus include bearing down, inflicting pain upon yourself, inducing vomiting, and a host of other types of methods to stimulate an epinephrine response to change your rhythm. No meds prescribed yet because they didn’t know exactly what they were dealing with.
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1 ReactionHi my name is Tom. I’m a seventy year old white male. I have recently been diagnosed with PVCs. They came on like a thief in the night with the principal symptom being inability to draw breath (fluid in left lung). My PCP, refered me to a Pulmonologist who in turn sent me to a Cardiologist. ECG disclosed the PVCs. Echo cardiogram showed really bad efficiency. Cardiac MRI to look for damage (still waiting for interpretation), and ablation scheduled in two weeks. Currently taking metropololol and a diureticbut the condition is barely controlled. I would love to know a couple of things like: what did I do to cause these? I’ve always been a competitive or amateur swimmer and distance runner. Heart never had a problem before.
What are "vagal maneuvers"? Have you tried meds to keep the heart in rhythm?