Heart Rhythm Conditions – Welcome to the group
Welcome to the Heart Rhythm Conditions group on Mayo Clinic Connect.
Did you know that the average heart beats 100,000 times a day? Millions of people live with heart rhythm problems (heart arrhythmias) which occur when the electrical impulses that coordinate heartbeats don't work properly. Let's connect with each other; we can share stories and learn about coping with the challenges, and living well with abnormal heart rhythms. I invite you to follow the group. Simply click the +FOLLOW icon on the group landing page.
I'm Kanaaz (@kanaazpereira), and I'm the moderator of this group. When you post to this group, chances are you'll also be greeted by volunteer patient Mentors and fellow members. Learn more about Moderators and Mentors on Connect.
Let's chat. Why not start by introducing yourself?
Interested in more discussions like this? Go to the Heart Rhythm Conditions Support Group.
Maybe if several doctors experienced what we experience, they would be more serious about research to get answers. Thanks for the tip to press just below the ribs during an episode. Worth the try.
Similar response on my end. "They're just benign palpitations", and the cardiologists covered under my insurance plan won't even see me. They're reviewed my echo, stress test, blood work and a 2 day holter monitor (which kept becoming unattached but did show some episodes of bradycardia and tachycardia). When I asked to consult with one of them, just for peace of mind (and to pay for it with my private insurance), they would not allow me to have an appointment with them saying, "they're just benign palpitations". Poor patient care, in my opinion. And, it sounds like it's not uncommon care, unfortunately....
My experience is similar to yours. Doctors say " just don't let it bother you". It's hard to do that when you feel like you are about to keel over. If I walk, they almost always stop. I just noticed yesterday, that if I take both hands and press on my abdomen just below my ribs, they also stop. Have no idea what that's all about.
Get a new doctor.
@jamienolson I grab anything in front of me, lean forward, put my head down and close my eyes as everything goes black. Stay there for a minute, then everything gets light again. I am extremely weak after that. Sometimes the weakness last a day or so. 🙁
Hello @jeannieg7 and @mommabyrd. Welcome to Mayo Clinic Connect! Thank you for posting!
Jeannie, has the yoga and meditation helped? And Sonja, how are you controlling the blackouts?
@predictable- Martin,you can borrow my moniker anytime! Dr. Lynch was blown away by the questions and I told him that a friend responded on the Mayo Connect Group site when I was at a lost for questions to ask at my appt.. He did answer everyone and others I had put together and some will need further time after analysis. I would welcome any questions that our group members have and look forward to any dialogue we can have on these issues. I will keep you & our other friends filled in once I hear back.
Again, thank you for taking the time to help me formulate questions that were specific as to my condition and to the Dr. as well. @thankful.
Hi Judith
I am also 72. I have been diagnosed with SVT also. Iam taking 20 mgs of Propanolol for the irregular heart beat. I started having a irregular heartbeat in my late 20 s. It was PVCs. Iam in the process of having it checked out again. I have bad Anxiety that is hard to control. This may be contributing to my increased events with my heart.
Hey @thankful! I'll steal your moniker to say I'm thankful for your after-exploration report on your visit to Mayo Clinic Scotsdale. I know all our fellow members will be glad to read your report -- not only for its fascinating details, but also for the multiple reasons it feeds our pleasure at seeing how a member commands his own medical voyage over the many miles from Oregon to Arizona.
In a special way, your report documents what an exemplary second-opinion consultation with Mayo Clinic can be all about. The services from Dr. Lynch and his staff assistants -- from a thorough examination to a comprehensive discussion of your questions -- appear to have given you a concrete new baseline of your situation that can pave the way for any further medical care you may need.
Perhaps other Connect members who come upon your contribution here could benefit from our exchange back in February and about your preparation for your visit to Mayo Clinic in Arizona. That can be accessed at https://connect.mayoclinic.org/discussion/on-going-shortness-of-breath/?pg=1#comment-90737.
We'll be watching for more good news on your medical issues and be grateful for your continuing advice for other Connect members who could all benefit from your experience in this adventure. Martin
Hi, so glad to join this group. My name is Jean, many call me Jeannie. I have had PVC’s since I’m around 12. Have gotten worse over the years. Now have a fib. Had numerous tests and recently had an echo cardiogram in such I was experiencing msny PVC’s and one showed up on the test. IMy meds were recently changed but the palpitations are still there. I don’t do caffeine, alcohol, but am a high anxiety person. My cardiologist told me to relax, do yoga & meditation. The PVC’s are so darn annoying. Thank you