HCM-ers: Introduce yourself or just say hi

Welcome to the Hypertrophic Cardiomyopathy (HCM) group on Mayo Clinic Connect – a place where you can connect with others, learn about living HCM, share experiences and exchange useful information.

I invite you to follow the group. Simply click the follow icon image-f6386d0357e2 on the group landing page

I’m Colleen, and I’m the moderator of this group, and Community Director of Connect. I look forwarding to welcoming you and introducing you to other members.

Why not start by introducing yourself here?

@timdines

The first thing is to talk with your primary doctor and get a referral to an interventional cardiologist. They may do an ultrasound of your heart called an echocardiogram. In the meantime, if caffeine bothers you then stay away from it. Reducing, sugar and caffeine will make a world of difference in how you feel.

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I went to my doctor that I seen in the past for a new patient visit last week showed him my mother's health history. He ordered the echo based on heart murmur and leaky valve he possibly heard. I did my annual visit may 28 with old clinic and nurse practitioner never mentioned hearing the 2 years i seen them. They also see my mom for her health issue and knew the cardiologist recommended her children get checked. It seems ridiculous insurance wants you to have a symptom before you can be checked.

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Somehow, lost my post in mid-sentence. The point was this: a stress test requires abstaining from beta blocker for 24 hours. Since my morning and evening Toprol literally saves me every time taken, will it be safe to go onto a treadmill without it?

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@archer

Somehow, lost my post in mid-sentence. The point was this: a stress test requires abstaining from beta blocker for 24 hours. Since my morning and evening Toprol literally saves me every time taken, will it be safe to go onto a treadmill without it?

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Yes it is safe. There is a cardiologist at the scene when you have the test 😊

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—Sincere thanks for the response. Will go tomorrow for the stress test.
—Another question, something brought up some months back: Does anyone take metoprolol? How much? My dosage is 50mg twice a day, and my symptoms have recently worsened. Wondering if it is at all common to have the dosage adjusted/increased?

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In reply to @2109 "Sylvia" + (show)
@2109

Why was metformin mtf by Sandoz off the market

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@archer

—Sincere thanks for the response. Will go tomorrow for the stress test.
—Another question, something brought up some months back: Does anyone take metoprolol? How much? My dosage is 50mg twice a day, and my symptoms have recently worsened. Wondering if it is at all common to have the dosage adjusted/increased?

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Hi, I have been taking metoprolol for several years..each year increased by 25mg…I'm now on 100 mg twice a day, plus 5mg of lisinoprol once a day. It has helped me and other docs I've been to say it is a good medicine. I have recently been diagnosed with Afib which I think has probably been a good share of my heart problems..anyway, he put me on a blood thinner Eloquist at $174.00 a month I pay after insurance!!!…So far I have chosen not to be on the coumadin which is far less expensive. Hope this helps…

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—Thanks. Your post does indeed help. My Toprol dosage is 50mg twice a day and Losartan 25mg once a day. Not sure why it is not Lisinopril (the ACE inhibitor). This, we are told, is fairly standard. My stress test is tomorrow afternoon. Really hope to survive it without my morning Toprol. Without it, there is usually continuous angina and unsteadiness. Have you ever had a stress test and had to abstain from the beta blocker? Again, sincere thanks.

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@archer

—Thanks. Your post does indeed help. My Toprol dosage is 50mg twice a day and Losartan 25mg once a day. Not sure why it is not Lisinopril (the ACE inhibitor). This, we are told, is fairly standard. My stress test is tomorrow afternoon. Really hope to survive it without my morning Toprol. Without it, there is usually continuous angina and unsteadiness. Have you ever had a stress test and had to abstain from the beta blocker? Again, sincere thanks.

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If you run into trouble on the test then stop. You are not expected to go beyond your limits.

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@archer

—Thanks. Your post does indeed help. My Toprol dosage is 50mg twice a day and Losartan 25mg once a day. Not sure why it is not Lisinopril (the ACE inhibitor). This, we are told, is fairly standard. My stress test is tomorrow afternoon. Really hope to survive it without my morning Toprol. Without it, there is usually continuous angina and unsteadiness. Have you ever had a stress test and had to abstain from the beta blocker? Again, sincere thanks.

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No stress test as I have had multiple schlerosis for almost 20 years and am in a wheelchair 24/7 and cannot stand. I only see my heart doctor once a year (wish it were a little more) and before he sees me he sends me down for an echocardiogram…Another doc put me on the Holter Monitor for 24 hrs and found the afib….I think they watch you very closely when giving the stress test and will take you off of it if you have any signs of distress….Be sure to tell them if you do….You will make it fine and hopefully it will give them more insight to your problem…

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—Thanks. Will dutifully take the stress test and will let them know of any difficulties. Will also send you a note here. —Sounds as though you have a fine system of care. My very best to you. Again, sincere thanks. Very kind of you to take the trouble.

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Please let us know how it goes and keep us updated on yourself…

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