1. < Hypertrophic Cardiomyopathy (HCM)
Moderator

HCM-ers: Introduce yourself or just say hi

Posted by Colleen Young, Connect Director @colleenyoung, Oct 25, 2016

Welcome to the Hypertrophic Cardiomyopathy (HCM) group on Mayo Clinic Connect - a place where you can connect with others, learn about living HCM, share experiences and exchange useful information.

I invite you to follow the group. Simply click the follow icon image-f6386d0357e2 on the group landing page. 

I'm Colleen, and I'm the moderator of this group, and Community Director of Connect. I look forwarding to welcoming you and introducing you to other members.

Why not start by introducing yourself here?

Interested in more discussions like this? Go to the Hypertrophic Cardiomyopathy (HCM) Support Group.

reenj62 | @reenj62 | Mar 6, 2019
In reply to @rrowner2 "I also wondered because my husband waited 4 weeks but looking at the schedule we received..." + (show)
@rrowner2

I also wondered because my husband waited 4 weeks but looking at the schedule we received I realized why. Numerous appointment scheduled over 4 days when they are dealing with 4 different departments and several hundred more patients it all made sense. So don’t give up, everything will work out well with appointments for you

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Thank you rrowner2. That makes sense! I will just continue to wait.

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Kanaaz Pereira, Connect Moderator | @kanaazpereira | Mar 6, 2019

Thanks so much for sharing your insights, @rrowner2

Hi @reenj62,

I moved your message to this discussion as I thought it would be easier for you to connect with other members who’ve talked about appointments at Mayo Clinic.
If you click on VIEW & REPLY in your email notification, you will see the whole discussion and can join in, meet, and participate with other members.

I’m tagging @barbj @cynaburst @ronaldpetrovich @jshah as well, to see if they might have any additional thoughts to share.

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jmiracle | @janemiracle | Apr 12, 2019

Hi . I am Dr Jane from India. My daughter is diagnoised with hypertropic cardiomyopathy.

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Mentor
Teresa, Volunteer Mentor | @hopeful33250 | Apr 23, 2019

Hello All:

I subscribe to an online copy of a magazine produced by the American Heart Association. There was an article written by a man with HCM which I found interesting and I thought you might as well. Here is the link:
http://heartinsight.heart.org/Spring-2019/Living-Differently/
Just wondering how your life is different as a result of your diagnosis?

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rpoulo | @rpoulo | Apr 23, 2019

I had an alcohol ablation on 2-12-19. Doing well.

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1 reply
rrowner2 | @rrowner2 | Apr 23, 2019
In reply to @rpoulo "I had an alcohol ablation on 2-12-19. Doing well." + (show)
@rpoulo

I had an alcohol ablation on 2-12-19. Doing well.

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Awesome! so happy that it worked for you. Take care

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bordercollie | @bordercollie | Apr 23, 2019

Had surgery in 2009. So far so good. No afib. Still have a slight murmur. Checkups have been good once a year

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1 reply
rrowner2 | @rrowner2 | Apr 23, 2019
In reply to @bordercollie "Had surgery in 2009. So far so good. No afib. Still have a slight murmur. Checkups..." + (show)
@bordercollie

Had surgery in 2009. So far so good. No afib. Still have a slight murmur. Checkups have been good once a year

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My husband had surgery last October and is doing amazingly well

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thehound572001 | @thehound572001 | Apr 24, 2019

Hello my name is Paul, I was diagnosed with HCM in 2010, I watched my mother die who also had HCM she was 43. I currently have an ICD and I take nadolol to slow my heart down, was just diagnosed stage 3 heart failure and my mitral valve is also at stage three, I keep a good diet blending veggies and fruits is my breakfast, dinner and supper so I am only on one medication.

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