Welcome to the Hypertrophic Cardiomyopathy (HCM) group on Mayo Clinic Connect – a place where you can connect with others, learn about living HCM, share experiences and exchange useful information.
I invite you to follow the group. Simply click the follow icon on the group landing page.
I’m Colleen, and I’m the moderator of this group, and Community Director of Connect. I look forwarding to welcoming you and introducing you to other members.
Why not start by introducing yourself here?
Well, after all the recliner, recliner, recliner talk…I broke down and we purchased one from our local Lazy Boy. It's an "electric chair". Just what I need I suppose. I think after I've gotten what I need from it I will pass it along to my 92 year old dad. He'll get a kick out of it.
Thanks for your response. That's one more thing I can check off my list! Best Regards
Hello @janemiracle,
I moved your message to this discussion so that people could read more of your post to help with your question about insurance. Simply click VIEW & REPLY in your email notification to find your post.
At most U.S. universities, health insurance specialists are usually available to advise students about their options. Health insurance policies and costs can vary quite a lot, and requirements may also depend on your daughter’s visa category.
Here is an article with some more information: https://www.usnews.com/education/best-colleges/articles/2019-02-12/what-international-students-should-know-about-health-insurance-in-the-us
@janemiracle, when was your daughter diagnosed? How has she been managing her condition?
Hi Wayne here .I live in Ontario Canada and have HCM. So happy I found you and feel I have people I can relate to. I am in need of a total knee replacement and Dr.s are worrying me with the risks.
Liked by Colleen Young, Connect Director
Thank you for sharing your story. I'm happy your husband is doing so well. It's encouraging to hear these stories and have the benefit of being able to "look back", hindsight I suppose, and help others who now face what you have already gone through. I have read about how common depression is in recovery, and glad it didn't last long. I suppose it's helpful to know all the things, good and bad, that go along with something so major. Thank you for sharing. I appreciate the information. Best regards
Hi I’m Terry and I live in Michigan. I’ve known I have HCOM for 9 years. First discovered during Ecco To prepare for blood cancer treatment. I knew there was an issue but doctors said it was anxiety. I have a small aneurysm and scarring. I have a defibrillator implanted. I tire easily! I go to U of M and Cleveland alternately. Doing ok. Just too chunky!
Liked by Lisa Lucier
Well, just like I didn't see HOCM or Open Heart Surgery in my future, and just when I believed I had accepted the plan…COVID-19 mass hysteria manifested. Didn't see that one coming. So yesterday, literally, 8 hours before our trip to Sacramento International, we made a decision to cancel. I felt deflated like a balloon. After the US Surgeon General, Dr. Adams, was urging hospitals to cancel all non-emergent cases, and then met with the leaders in AHA and President Trump urged state Governors to urge hospitals to cancel cases, I wondered if mine would be cancelled. It was to be this Friday, March 20th. Then all the shut downs started in our State. And the talk of the chance of domestic travel restrictions from certain areas. Probably California, although we are in Northern California and not like the rest of the state. I communicated with Mayo Clinic Cardiovascular Dept. yesterday and they completely understood, so we are scheduling another surgery in the next 8 weeks or so after this virus loses power. I can't describe how stressful it's been, but I am not in control. God is. Trusting is my job. He has the rest. Thank you for all the great support, thought I'd give an update. I also have a little "cold" right now so really all the signs were there, and cancelling, though a difficult decision, seems like the right thing to do. Probably a bad idea to have open heart surgery and be traveling during a global pandemic, which looks to peak when I would be coming home, during massive shutdowns, travel advisories, and public hysteria. Looks like I get to stay on the rollercoaster longer!
@mosaic
Most universities offer health insurance for international students. You need to get a copy of the policy and read its limits, including the amount of deductibles, copays, and what is covered and not covered, including pre existing conditions. Please do not rely on what a college admissions officer says. The insurance policy is a contract and will control what is covered. Each policy is different. Welcome to the US, where health insurance and care is a nightmare!!
Liked by Kanaaz Pereira, Connect Moderator