HCM-ers: Introduce yourself or just say hi
Welcome to the Hypertrophic Cardiomyopathy (HCM) group on Mayo Clinic Connect – a place where you can connect with others, learn about living HCM, share experiences and exchange useful information.
I invite you to follow the group. Simply click the follow icon on the group landing page.
I’m Colleen, and I’m the moderator of this group, and Community Director of Connect. I look forwarding to welcoming you and introducing you to other members.
Why not start by introducing yourself here?
Interested in more discussions like this? Go to the Hypertrophic Cardiomyopathy (HCM) Support Group.
Thank you for reaching out to the Connect community with your information. I hope you are able to follow up with Mentor @cynaburst's suggestion. I am from India as well, and wanted to recommend two other options – one in Kolkata. Both are big institutions, ranked well in their management of HCM, and you've probably heard about them:
– Apollo Hospital (Kolkata): http://apollogleneagles.in/heart.php
– Fortis Health http://www.fortishealthcare.com/india/diseases/cardiomyopathy-553
@neha4, would you have any guidance or insight that might help @sankarpinaki ?
Thank you for being so kind to me. I will surely follow the links. I had been to Apollo kolkata but the visit was futile. Docs are more interested in treating CAD. However kolkata is viable to me .whom shall I consult there for that I need guidance. I am really suffering. I am planning for Delhi but a few months later!but kolkata I can avail in a month or so. Thank you dear friend.
Welcome to Connect. I see that you posted an empty message; did you mean to post something more, or reply to a member's post?
If you would like more information on how to use Connect, you can find it here: https://connect.mayoclinic.org/get-started-on-connect/
@loyo, what brought you to the HCM discussion in the Heart & Blood Health group?
Hello! Do u still have any problems after ur surgery?
Hi ,My husband had the surgery 6 months back.We did the surgery at Mayoclinic.He is doing great by the grace of God.
I am orginally from southern part of India now living in the US. I know its hard to find HCM experts in India.I am glad to help you if you need any informations regarding the sugery and diagnosis i can help you .Hope you can find some experts soon..
I found there are 2 types of cardiologist – The "know it alls" and the curious.
Hello just received 5 emails from this thread. so Hello
I went back and found my original post here is as you tell from the date I did make it 🙂
Aug 7, 2015 · I have Hypertrophic Obstructive Cardiomyopathy and SAM and a ICD implanted
I have Hypertrophic Obstructive Cardiomyopathy and SAM and a ICD implanted have had the myectomy surgery and have had my mitral valve repaired. after a year went and had a echocardiogram and the MR is back to severe. the first surgery went well but was a couple of days coming off the respirator. the second for the valve repair i spent 11 days intubated in a chemical coma now they want to install a mechanical valve. what do you think my chances are this time.
I had a real fine surgeon young and steady hands
I doubt anyone here could give you chances – But, you have a lot of issues going on. Where and when did you have your surgery? How long between the surgeries? Have you gotten a 2nd opinion? (hopefully from a surgeon & not someone online!)