HCM-ers: Introduce yourself or just say hi
Welcome to the Hypertrophic Cardiomyopathy (HCM) group on Mayo Clinic Connect – a place where you can connect with others, learn about living HCM, share experiences and exchange useful information.
I invite you to follow the group. Simply click the follow icon on the group landing page.
I’m Colleen, and I’m the moderator of this group, and Community Director of Connect. I look forwarding to welcoming you and introducing you to other members.
Why not start by introducing yourself here?
Interested in more discussions like this? Go to the Hypertrophic Cardiomyopathy (HCM) group.
Hi @loyo,
Welcome to Connect. I see that you posted an empty message; did you mean to post something more, or reply to a member's post?
If you would like more information on how to use Connect, you can find it here: https://connect.mayoclinic.org/get-started-on-connect/
@loyo, what brought you to the HCM discussion in the Heart & Blood Health group?
Hello! Do u still have any problems after ur surgery?
Hi ,My husband had the surgery 6 months back.We did the surgery at Mayoclinic.He is doing great by the grace of God.
I am orginally from southern part of India now living in the US. I know its hard to find HCM experts in India.I am glad to help you if you need any informations regarding the sugery and diagnosis i can help you .Hope you can find some experts soon..
I found there are 2 types of cardiologist – The "know it alls" and the curious.
Hello just received 5 emails from this thread. so Hello
I went back and found my original post here is as you tell from the date I did make it 🙂
Aug 7, 2015 · I have Hypertrophic Obstructive Cardiomyopathy and SAM and a ICD implanted
I have Hypertrophic Obstructive Cardiomyopathy and SAM and a ICD implanted have had the myectomy surgery and have had my mitral valve repaired. after a year went and had a echocardiogram and the MR is back to severe. the first surgery went well but was a couple of days coming off the respirator. the second for the valve repair i spent 11 days intubated in a chemical coma now they want to install a mechanical valve. what do you think my chances are this time.
I had a real fine surgeon young and steady hands
I doubt anyone here could give you chances – But, you have a lot of issues going on. Where and when did you have your surgery? How long between the surgeries? Have you gotten a 2nd opinion? (hopefully from a surgeon & not someone online!)
Hi, got ur message. can you tell me how can I avail the treatment at Mayo clinic with the help of any charitable organization for an average Indian like me .
Welcome back, @rmcmillan; I'm thrilled to see you return!
May I ask if I'm correct in noting that the information you've shared in these recent posts – "I have Hypertrophic Obstructive Cardiomyopathy and SAM and a ICD implanted have had the myectomy surgery and…" – is your copied post from 2015?
I can imagine a lot has happened since then, and we'd love to hear about your experiences – what worked, what didn't – and any questions or tips you'd like to share. It sounds like you had an accomplished surgeon; how did you find him/her?
Thank you, @lina2017.
Hi @sankarpinaki,
Here's some information about Charitable Care and Financial Assistance at Mayo Clinic:
https://www.mayoclinic.org/patient-visitor-guide/billing-insurance/financial-assistance
Hi, i have read the link but international patients are not covered under charitable schemes. can u inform me further about how can I avail such facility.