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HCM-ers: Introduce yourself or just say hi

Hypertrophic Cardiomyopathy (HCM) | Last Active: Mar 10 9:47pm | Replies (763)
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@thiles

I have just been informed I have HCM. The genetic testing was positive. Waiting to here from Doctors. I switch to the Mayo Clinic on Oct 23 2017 after going through a stroke 5 years ago. Then 2 years later I had a SCA was shocked 9 time by EMT’s. Had a ICD implanted at this time, and since then I have been Shocked 15 times in the last 2 years by my ICD. I look forward to learning more from others who have been there done that.

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Replies to "I have just been informed I have HCM. The genetic testing was positive. Waiting to here..."
Kanaaz Pereira, Connect Moderator | @kanaazpereira | Nov 29, 2017

Hello @thiles,

Welcome to Connect. I can only imagine your worry! I’m tagging fellow Connect members @cynaburst @lynnkay1956 @PatMattos @mistymopps3 @daisygirl to bring them into this discussion and possibly address your concerns about sudden cardiac arrest and ICDs.

In the meantime, I found an interesting journal article about HCM and strokes and/or sudden cardiac death which you may wish to view:https://www.sciencedaily.com/releases/2016/08/160829094043.htm

@thiles, you mentioned, "I have been Shocked 15 times in the last 2 years by my ICD." May I ask why this occurs so frequently? What do your doctors say about these shocks?

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