HCM-ers: Introduce yourself or just say hi

Welcome to the Hypertrophic Cardiomyopathy (HCM) group on Mayo Clinic Connect - a place where you can connect with others, learn about living HCM, share experiences and exchange useful information.

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I'm Colleen, and I'm the moderator of this group, and Community Director of Connect. I look forwarding to welcoming you and introducing you to other members.

Why not start by introducing yourself here?

Interested in more discussions like this? Go to the Hypertrophic Cardiomyopathy (HCM) Support Group.

Profile picture for mbi @mbi

I’m a 73 year old woman who was diagnosed with HCM two years ago.
In one year it got much worse and my Cardiologist gave me three options. Camyzoes , ablation or open heart surgery. I felt like a bomb dropped on me. I went to Mayo for a second opinion and after many tests, decided on surgery. I scheduled it for September 26th. Prior to that, I started walking 3-5 miles a day for 6 months so I would be as strong as possible going into it.
I had very little pain, just very tired . I was surprised how tired I was. My surgeon, Dr Dearani was AMAZING.
I was sent home on day four. Had I “pooped” on day 3, I would have been sent home then. Thank goodness for small miracles, lol.
I wanted to stay longer, but was told “fatigue” isn’t a reason to stay.
I am supposed to walk , starting out at 4 five minute walks daily and increase it as I feel stronger.
I chose surgery because I didn’t want the restrictions of medications or the possibility of having to redo an ablation.
After surgery you need to use your leg and stomach muscles a lot to move and get out of bed. If I’d known that, I would have tried to strengthen them more also.
I’m so thankful for Dr Dearani’s skill
and happy it was so easy.

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@mbi I am so glad to read your great report! I am impressed that you were discharged so quickly! Yes, I think those who are more fit recover quicker - core and sit-ups help as you pointed out, I discovered that going to the gym and walking paid off. I remember the fatigue you describe which may be more from the anesthesia, on day four I noted (I kept a small journal) that it was the first day the desire to nap disappeared. I was discharged on day 5, at home a week after surgery. Like you, I was no spring chicken at almost 76, but here we see age is just a number. Wishing you a continuing great recovery and I hope walking becomes a permanent activity for you.

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Profile picture for walkinggirl @walkinggirl

@mbi I am so glad to read your great report! I am impressed that you were discharged so quickly! Yes, I think those who are more fit recover quicker - core and sit-ups help as you pointed out, I discovered that going to the gym and walking paid off. I remember the fatigue you describe which may be more from the anesthesia, on day four I noted (I kept a small journal) that it was the first day the desire to nap disappeared. I was discharged on day 5, at home a week after surgery. Like you, I was no spring chicken at almost 76, but here we see age is just a number. Wishing you a continuing great recovery and I hope walking becomes a permanent activity for you.

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@walkinggirl
Thank you! I’ve always been a walker, but I stepped it up before the surgery. Hope to have more energy from now on.

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