1. < Hypertrophic Cardiomyopathy (HCM)
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Moderator

HCM-ers: Introduce yourself or just say hi

Posted by Colleen Young, Connect Director @colleenyoung, Oct 25, 2016

Welcome to the Hypertrophic Cardiomyopathy (HCM) group on Mayo Clinic Connect - a place where you can connect with others, learn about living HCM, share experiences and exchange useful information.

I invite you to follow the group. Simply click the follow icon image-f6386d0357e2 on the group landing page. 

I'm Colleen, and I'm the moderator of this group, and Community Director of Connect. I look forwarding to welcoming you and introducing you to other members.

Why not start by introducing yourself here?

Interested in more discussions like this? Go to the Hypertrophic Cardiomyopathy (HCM) Support Group.

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debrasheila | @debrasheila | 3 hours ago
In reply to @bigheart12345 "@debrasheila my first symptoms were palpitations that lasted 3 days but looking back prior to diagnosis..." + (show)
Profile picture for bigheart12345 @bigheart12345

@debrasheila my first symptoms were palpitations that lasted 3 days but looking back prior to diagnosis there was a light bulb moment. Now I know why I cannot drink any caffeinated drinks after 11 am otherwise I will not sleep at all, I cannot sleep on my left hand side because the strength of my heart beat keeps me awake. Any amount of alcohol makes me feel dreadful the next day. Some foods will trigger palpitations like excessive potassium and artificial sugars are a real no because they trigger palpitations. I also can feel each and every heart beat which I now realise is not normal for many. So in reality, I actually had a fair number of indicators that something wasn't normal.

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@bigheart12345
Are you taking camzyos?

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diane2601 | @diane2601 | 1 hour ago

Thank you for the invitation to this group. I first learned I had HCM 7 years ago. It has been treated with drugs but a recent increase in medication drove my blood pressure so low, I spent 5 days in the hospital. The good news is new tests have given more information, and I will be seeing an HCM specialist next month.

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bigheart12345 | @bigheart12345 | 1 hour ago
In reply to @debrasheila "@bigheart12345 Are you taking camzyos?" + (show)
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@bigheart12345
Are you taking camzyos?

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@debrasheila no mine isn't obstructive.

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Mentor
Debra, Volunteer Mentor | @karukgirl | 1 hour ago
In reply to @diane2601 "Thank you for the invitation to this group. I first learned I had HCM 7 years..." + (show)
Profile picture for diane2601 @diane2601

Thank you for the invitation to this group. I first learned I had HCM 7 years ago. It has been treated with drugs but a recent increase in medication drove my blood pressure so low, I spent 5 days in the hospital. The good news is new tests have given more information, and I will be seeing an HCM specialist next month.

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Hi @diane2601, and welcome to Mayo Clinic Connect!
How scary that must have been to be in the hospital for five days with low BP! The beta/calcium channel blockers taken to control HCM symptoms certainly do come with side effects.

Yet how wonderful you are able to see an HCM specialist next month. That is so important. Have you had a chance to read up on HCM and learned as much as you can about what you have?

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