HCM-ers: Introduce yourself or just say hi

Welcome to the Hypertrophic Cardiomyopathy (HCM) group on Mayo Clinic Connect - a place where you can connect with others, learn about living HCM, share experiences and exchange useful information.

I invite you to follow the group. Simply click the follow icon image-f6386d0357e2 on the group landing page

I'm Colleen, and I'm the moderator of this group, and Community Director of Connect. I look forwarding to welcoming you and introducing you to other members.

Why not start by introducing yourself here?

Interested in more discussions like this? Go to the Hypertrophic Cardiomyopathy (HCM) Support Group.

Profile picture for Jamie Olson @jamienolson

Hello @fitchizumi, I would like to Welcome you to Mayo Clinic Connect. We are happy to have you joining our HCM group. I'm sorry to hear about your chronic long term health issues.

I would like to introduce you to other HCM members- please meet @lisa7, @debcrawford, @lynnkay1956, @quinn, @PatMattos. All people who are here discussing HCM. While we wait for the mentioned members to read your post- What questions do you have for them? Would you like to ask about exhaustion? Maybe there is something that is working for others that will also help you?

Have you had more than one opinion on a surgical option?

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Do you feel tired, or more like out of breath? If the problem is feeling sleepy, maybe they can adjust your meds? You might be able to try a different dosage, or another type of drug like a beta blocker or maybe diltiazem, which is a different calcium channel blocker. Do you know if you are obstructed or not?

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Profile picture for jeffjonestn @jeffjonestn

60 yr old diagnosed 3 yrs ago. Mild symptoms and currently on zero Rx. I would like info on where & what specific genetic tests I should have done. I assume blood can be drawn anywhere and shipped to testing lab. What lab & what tests to help my children be evaluated?

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Hi Jeff,
You may be interested in watching this Connect Video Q&A with Steven Lester, M.D., cardiologist, at Mayo Clinic in Arizona. He talks about hypertrophic cardiomyopathy and genetics http://mayocl.in/2sgOtSn
I also encourage you to read the comments from members. Feel free to ask them questions too.

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Profile picture for Jamie Olson @jamienolson

Hello @fitchizumi, I would like to Welcome you to Mayo Clinic Connect. We are happy to have you joining our HCM group. I'm sorry to hear about your chronic long term health issues.

I would like to introduce you to other HCM members- please meet @lisa7, @debcrawford, @lynnkay1956, @quinn, @PatMattos. All people who are here discussing HCM. While we wait for the mentioned members to read your post- What questions do you have for them? Would you like to ask about exhaustion? Maybe there is something that is working for others that will also help you?

Have you had more than one opinion on a surgical option?

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Get a date for surgery.

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Profile picture for Jamie Olson @jamienolson

Hello @fitchizumi, I would like to Welcome you to Mayo Clinic Connect. We are happy to have you joining our HCM group. I'm sorry to hear about your chronic long term health issues.

I would like to introduce you to other HCM members- please meet @lisa7, @debcrawford, @lynnkay1956, @quinn, @PatMattos. All people who are here discussing HCM. While we wait for the mentioned members to read your post- What questions do you have for them? Would you like to ask about exhaustion? Maybe there is something that is working for others that will also help you?

Have you had more than one opinion on a surgical option?

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What can I do about being exhausted all the time. I walk each morning about 1/2 to 3/4 of a mile. After a full night sleep I still wake up exhausted .

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Dr. Omen did mine from Mayo.

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60 yr old diagnosed 3 yrs ago. Mild symptoms and currently on zero Rx. I would like info on where & what specific genetic tests I should have done. I assume blood can be drawn anywhere and shipped to testing lab. What lab & what tests to help my children be evaluated?

REPLY

Hello @fitchizumi, I would like to Welcome you to Mayo Clinic Connect. We are happy to have you joining our HCM group. I'm sorry to hear about your chronic long term health issues.

I would like to introduce you to other HCM members- please meet @lisa7, @debcrawford, @lynnkay1956, @quinn, @PatMattos. All people who are here discussing HCM. While we wait for the mentioned members to read your post- What questions do you have for them? Would you like to ask about exhaustion? Maybe there is something that is working for others that will also help you?

Have you had more than one opinion on a surgical option?

REPLY
Profile picture for fitchizumi @fitchizumi

Hi, I added my profile ..Not sure if I'm hooked up right.HCM is my prob. My user name is fitchizumi saw it on member list but now I don't.

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Yes I have lots of drug allergies . Yes a blood thinner and verapamil 120mg. It's been changed lots of times.Exhaustion all the time.
Don't know about surgery. Dr. Said something else would kill me. I might be to old plus I have other health problems some long term chronic.

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Profile picture for fitchizumi @fitchizumi

Hi, I added my profile ..Not sure if I'm hooked up right.HCM is my prob. My user name is fitchizumi saw it on member list but now I don't.

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Welcome, @fitchizumi. I can see your profile here: http://mayocl.in/2tx2mJX. To see your profile or anyone else's profile, simply click their @name. In your bio, you mentioned that you're having trouble with meds. Are you managing HCM with medication at this time? What issues are you having? Is surgery an option for you?

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Hi, I added my profile ..Not sure if I'm hooked up right.HCM is my prob. My user name is fitchizumi saw it on member list but now I don't.

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