Have you got Primary Progressive Apraxia of Speech? Let's connect

Are you living with Primary Progressive Apraxia of Speech? Sometimes it's called progressive apraxia of speech or PPAOS. It reflects difficulty with speaking quickly and accurately. It may start with a simple word you can’t pronounce. Your tongue and lips stumble, and gibberish comes out. It can sometimes occur by itself (speech is the only problem) or develop into other neurologic syndromes like corticobasal syndrome or progressive supranuclear palsy.

On Connect we would like to bring together people who have been affected by PPAOS and provide a space to share your experiences and provide tips for managing it. Patients and family members are welcome.

Grab a cup of tea, or beverage of your choice, and let's connect. Why not start by introducing yourself?

Interested in more discussions like this? Go to the Brain & Nervous System Support Group.

@rlu0817

Thanks for your thoughtful post and sharing about writing your memoir- what a beautiful gift! Are there any resources or tools that have been especially helpful as you've navigated this diagnosis? Or information you're searching for that you haven't found?

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Finding the right neurologist--one who specializes in neurodegenerative disorders--was key. Mayo Clinic resources have been useful, as has the PPAOS Friends virtual support group run by Jackie Hurst out of Brooks Rehab in Florida.

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