← Return to Have you got Primary Progressive Apraxia of Speech? Let's connect

Discussion
Comment receiving replies
Profile picture for rickjudy2012 @rickjudy2012

My wife has been diagnosed with primary progressive aphasia & mild cognitive decline. She is 78 years old, physically active & healthy.
I am 80, have late stage COPD, & on oxygen 24/7 except when sitting still to read, watch TV, etc.
She has been to Mayo Jacksonville twice this summer & has been to many speech therapy sessions here at home in Arkansas. She is now almost non-verbal & communication, even between the two of us, is increasingly difficult.
However, both our conditions are progressive & I don’t know how long we can continue living at home.
We are care partners for each other. We’ve been married for over 13 years & bmnever anticipated growing old together would be like this.

Jump to this post


Replies to "My wife has been diagnosed with primary progressive aphasia & mild cognitive decline. She is 78..."

@rickjudy2012 Hello I just happened to read your posting. I’m Becky, a mentor for the Caregiving Support Groups. You said that living at home has gotten to be difficult and that you never anticipated growing old together would be do difficult or “like this.” Have you thought about assisted living? You would have a small apartment in a long term care/rehabilitation facility. The home makes all your meals, provides O2, and probably has physical therapy.
https://connect.mayoclinic.org/discussion/assisted-living-memory-care-how-did-you-find-a-good-facility/. Here is a discussion on assisted living. If you have questions, go to the Caregivers discussion group and ask the persons there. Here is the link.
https://connect.mayoclinic.org/group/caregivers/. I wish you the best!