Have you got Primary Progressive Apraxia of Speech? Let's connect

Are you living with Primary Progressive Apraxia of Speech? Sometimes it's called progressive apraxia of speech or PPAOS. It reflects difficulty with speaking quickly and accurately. It may start with a simple word you can’t pronounce. Your tongue and lips stumble, and gibberish comes out. It can sometimes occur by itself (speech is the only problem) or develop into other neurologic syndromes like corticobasal syndrome or progressive supranuclear palsy.

On Connect we would like to bring together people who have been affected by PPAOS and provide a space to share your experiences and provide tips for managing it. Patients and family members are welcome.

Grab a cup of tea, or beverage of your choice, and let's connect. Why not start by introducing yourself?

Interested in more discussions like this? Go to the Brain & Nervous System Support Group.

@joedeb

My wife exibits a bit of normal conversation in the morning but as the day goes on the apraxia gets worse. It's very frustrating. I find myself interupting her conversations in fron of others because she's not making any sense.

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Can she write it down? Does have a AAC device? In early morning can you ask her how she wants you to act when communicating ?

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