Have you got Primary Progressive Apraxia of Speech? Let's connect

Are you living with Primary Progressive Apraxia of Speech? Sometimes it's called progressive apraxia of speech or PPAOS. It reflects difficulty with speaking quickly and accurately. It may start with a simple word you can’t pronounce. Your tongue and lips stumble, and gibberish comes out. It can sometimes occur by itself (speech is the only problem) or develop into other neurologic syndromes like corticobasal syndrome or progressive supranuclear palsy.

On Connect we would like to bring together people who have been affected by PPAOS and provide a space to share your experiences and provide tips for managing it. Patients and family members are welcome.

Grab a cup of tea, or beverage of your choice, and let's connect. Why not start by introducing yourself?

Interested in more discussions like this? Go to the Brain & Nervous System Support Group.

My wife has agraphia too. Most of the time her writing is not legible. Of all things, shw wants to watch football. She has never wanted to do that. She will watch it for hours.

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@joedeb

My wife has recently had trouble speaking and forming sentences. After her two minute speach to her primary care doc, the doc said I didn't understand a single word you said.

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