Has your dr. explained that aneurysms can be hereditary?

Posted by kebrpa20 @kebrpa20, Jun 10 10:05pm

My brother knew he had an abdominal aorta aneurysm for 3 years until it ruptured and killed him. His Drs didnt tell him it is hereditary. Sure could have saved me alot of grief. I had one and didnt know it. It ruptured and I did make it to the hospital and lived to tell about it. That was 11 yrs ago. My siblings were tested and my other brother didnt have one until a few yrs later. While he was getting it fixed he had a major heart attack and didnt pass away for 2 yrs. I do have a Ct scan every year and it does grow back slowly,thank God.

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My mother was one of three sisters. My mother and one sister died of a dissecting aortic aneurysms. KNe daughter of one of the sisters died of sudden cardiac death without an autopsy. Mother also had an abdominal aneurysm. Mom had me, a boy, 3 years after my sister. My mom passed at age 77. I was diagnosed at 68 with an enlarged ascending aorta. My cardiologist monitored yearly by ultrasound and two CT scans over 9 years. When it reached 4.5 cm, I asked about a genetic test. He ordered one and the report noted "no known genetic variant for aneurysm was found." However, the report indicates that there are likely many other genetic combinations related to aneurysms. The message is, genetic testing can tell you if you aneurysm is a caused but a known variant only. My only sister gets an ultyrasound yearly and is fine at age 80.

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Profile picture for relax2 @relax2

Almost anything you can think of is hereditary , the good and the bad Enjoy the good stuff and keep an eye on the bad .

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My sister passed away in 2009 but she actually had five brain aneurysms they fixed four of them but the last one ruptured and she didnt make it. She was 56. They did a case study on her because she had five of them.

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If you have an abdominal aorta aneurysm, should you have it checked after trauma (i.e. car accident, punch in stomach, etc).

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If you've been diagnosed with an abdominal aortic aneurysm (AAA), yes, absolutely—you should have it checked immediately after any trauma, especially to your abdomen, lower back, or chest. When the aorta is already weakened or ballooned (as it is in an AAA), any kind of blunt force—like a car crash, seatbelt impact, fall, or even a punch—can be enough to push it over the edge.

The risk here isn't theoretical. Trauma can cause an AAA to: Rupture suddenly, which is often fatal without emergency surgery; Expand rapidly, accelerating what had been a stable aneurysm; Dissect, meaning the inner wall tears and blood flows between the layers.

Even if you're not feeling symptoms right away, don't let that reassure you. Ruptures and dissections can sometimes start slow and escalate quickly. So yes—go to the ER, get imaging, and make sure the medical team knows you have an AAA. Insist on a CT scan with contrast or ultrasound, depending on your baseline and the facility. So trust me on this one: better safe and scanned than sorry

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I have had an ascending aneurysm for 22 years. At no time had anyone told me that it is hereditary. My 50 year old son died of an undiagnosed dissected ascending AA.
My primary care doctor’s nurse has a sister with an AA and she was not told to have her children or siblings checked. I have written to American Heart Association, NIH, with no results. I have an easy fix. A patient would be required to use that electronic pad we frequently have to sign saying that they have been advised to have their children and siblings checked and if it was not signed insurance will not pay for the physician visit or any testing done and the patient will not be liable for the charges.
That will fix it overnight.
I have surgery scheduled for Sept 3rd.

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Yes my doctor at the Mayo Clinic advised me of this. I notified my siblings and children. To The best of my knowledge my children were checked bu their doctors.

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Profile picture for skymaster1 @skymaster1

I have had an ascending aneurysm for 22 years. At no time had anyone told me that it is hereditary. My 50 year old son died of an undiagnosed dissected ascending AA.
My primary care doctor’s nurse has a sister with an AA and she was not told to have her children or siblings checked. I have written to American Heart Association, NIH, with no results. I have an easy fix. A patient would be required to use that electronic pad we frequently have to sign saying that they have been advised to have their children and siblings checked and if it was not signed insurance will not pay for the physician visit or any testing done and the patient will not be liable for the charges.
That will fix it overnight.
I have surgery scheduled for Sept 3rd.

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You are shifting the blame onto the patient and not the Drs actually fully discussing the situation. This isn't something that should simply go on a digital pad that never gets written. This sound like a lawyer bovine excrement move and/or insurance company dodge. Trust me, insurance companies don't wanting you informed and getting genetically screened. Mayo doctors informed me and I am waiting on genetic test results. I went round and round with the insurance company over this to get testing. I had surgery in September and it took until May to actually get approved after going through an mediation process.

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