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Has anyone had a 5-day EEG in a hospital?
I am scheduled for a 5-day EEG in Tampa General Hospital. My first reaction was one of excitement; the first step to putting my seizures behind me. That excitement is turning into trepidation; everything from the impact on my health to impact on my wallet. There's a health risk to triggering a seizure and potentially a huge copay with a Medicare Advantage Plan.
Has anyone had one done? What's the good, bad and the ugly of a 5-day EEG?
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I think I just felt “woe so that’s what my people saw”. However I know that earlier in life my seizures were mild and sometimes even unnoticed.
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2 ReactionsHi - I have had 5 or 6 of them at NYU Langone. Not a big deal plus I had a penthouse room with amazing views of NYC. Also have done them at home. Someone mentioned the difference between an EEG and an SEEG. The SEEG was a bit horrifying. That is actual brain surgery in the sense that multiple "rods" are inserted in your brain to determine whether further more invasive brain surgery is viable. After two weeks with no seizures, despite no meds and sleep deprivation, the rods were removed. Unfortunately I had a blood hemorrhage followed by meningitis. After a complete work-up, discovered i had a rare autoimmune disease associated with GAD65. Went to Mayo for 3 weeks for a 2nd opinion on the GAD65. Unfortunately looks like there is no cure. So for me, EEGS are a pain, but no big deal. SEEGs are another story...considered relatively safe but can go awry.