← Return to Has anyone had a 5-day EEG in a hospital?

Discussion
tonyde avatar

Has anyone had a 5-day EEG in a hospital?

Epilepsy & Seizures | Last Active: Aug 28, 2025 | Replies (23)

Comment receiving replies
Profile picture for cathy5161 @cathy5161

Hi - I have had 5 or 6 of them at NYU Langone. Not a big deal plus I had a penthouse room with amazing views of NYC. Also have done them at home. Someone mentioned the difference between an EEG and an SEEG. The SEEG was a bit horrifying. That is actual brain surgery in the sense that multiple "rods" are inserted in your brain to determine whether further more invasive brain surgery is viable. After two weeks with no seizures, despite no meds and sleep deprivation, the rods were removed. Unfortunately I had a blood hemorrhage followed by meningitis. After a complete work-up, discovered i had a rare autoimmune disease associated with GAD65. Went to Mayo for 3 weeks for a 2nd opinion on the GAD65. Unfortunately looks like there is no cure. So for me, EEGS are a pain, but no big deal. SEEGs are another story...considered relatively safe but can go awry.

Jump to this post


Replies to "Hi - I have had 5 or 6 of them at NYU Langone. Not a big..."

Thank you, I've heard about SEEG and now I know to never have one.