Has anyone been diagnosed with Abdominal Wall Pain

Posted by rufus444 @smiles444, Dec 15, 2017

Starting on May 1, 2017, I began having abdominal pain that wraps around to my left back. The first time it happened, I went to the emergency room because I thought I might have an apendicitis. The hospital did a CT scan of my abdomen, everything looked okay. I went to the emergency room several times over the summer with excruciating abdominal and back pain. I had a hida scan done, a colonoscopy and an endoscopy and CT and ultrasound scans of my abdomen. Everything looked normal. In September of this year, a doctor at Mayo felt the area on my abdomen and did a Carnett’s test. He suggested it could be abdominal wall pain. I have had two steroid injections and I am still having pain in the same area. Has anyone out there had this type of diagnosis and still having pain?

Liked by graceandpeace

@christie6453

Hello. I have been diagnosed with this as well. My question is, what type of Dr. Does the ultrasound guided steroid injection or nerve block. I have been referred to an ob/ gyn who had never heard of such a thing and laughed in my face. I just want this pain to go away but don't know where to go. My Dr doesn't seem to know either.

Jump to this post

Dr. Kuppusamy at Arizona Pain Clinic is wonderful!

REPLY
@coderhomer

I've been having right upper abdominal pain for 5 years. Nothing can be found. Have had CT scans, EGD, colonoscopy, labs are normal. Had my gallbladder out in 2014. Every test is normal. Still dealing with pain. Started seeing the pain clinic doctor who said I could have Abdominal Wall pain. Have had a couple trigger point injections but didn't help much. Can I ask what type of pain you are having? Stabbing? Burning? Sharp? Would like to know if it's the same I've been having. Thanks. Am glad the treatment is helping you.

Jump to this post

Had my gallbladder removed in January 2012. Had of her pain in that area for over 6 1/2 years. Felt like they left scissors in my body or something. Had CAT scans went to the ER many times only to be told there was nothing wrong with me prescribed me dicyclomine which I finally stopped taking about six months ago. My pain has improved finally but I still have the dull pain there ! I believe they did some damage when I took out my gallbladder. Right after surgery they had clamped my bile duct shut and almost killed me! Never been the same since ! Praying for you to feel better soon and to get some relief

REPLY

I would like to know latest updates from people that have posted in the past. Now that I have been diagnosed with abdominal wall entrapment, and have suffered from it for the past 8 months with a million tests that came out negative and have undergone 2 injections, with no relief, what lies ahead for me and what do I do next????

REPLY

I too have been treated for ab wall pain. Have had right upper ab pain going on 5 years and have had every test possible. All negative. The pain dr performed trigger point injections to no avail. My next course of action is a MRI of the thoracic spine to see if the pain is being generated from the spine. Can I ask how your pain feels? Stabbing? Aching? Burning? For now I am on Tramadol and gabapentin for pain control; however they come withy their own side effects and after 5 years have become less effective in pain control. I've researched everything I can think of so hearing what someone else has done is helpful.

REPLY

I have been searching for 15 years. I had abdominal pain like gall bladder. They took out my gall bladder and I still had the pain. After 8months and 25 pounds less, they did every GI test with no diagnosis. I stopped going to drs and totally changed my diet (no processed foods, no gluten) and still no help. My internist finally said to go see a pain dr. I had a block and knew immediately that it worked so they did a Radio Theraphy Ablasion and I had peace (no Pain) for over a year, except for “attacks” which felt like a rooter-Reuter going through my digestive system, pain, and no eating for about a week. My doctor in Dec. ordered an Abdominal Ultrasound and it about put me in the hospital because of the pain from this procedure. I have had 2 more RFA within 2 months and it’s alleviated the pain about 65%. I’m now looking into Median Acurate Ligament Syndrome. Still searching for answer.

REPLY
@coderhomer

I too have been treated for ab wall pain. Have had right upper ab pain going on 5 years and have had every test possible. All negative. The pain dr performed trigger point injections to no avail. My next course of action is a MRI of the thoracic spine to see if the pain is being generated from the spine. Can I ask how your pain feels? Stabbing? Aching? Burning? For now I am on Tramadol and gabapentin for pain control; however they come withy their own side effects and after 5 years have become less effective in pain control. I've researched everything I can think of so hearing what someone else has done is helpful.

Jump to this post

I've had thoracic spine MRI also and even though I do have degenerative discs, I have been told that there is no possible connection with my pain on left side of abdomen. I have sharp stabbing pain. I have oxycodone pills from years ago due to knee, shoulder surgeries but try not to take them because I don't want to get hooked on them. In the meantime, after being an extremely active person all my life, I find myself in bed many days and am not able to do anything. Very depressing for me. I don't know if I will go for a third shot under ultrasound, I want to see if anyone has gone for surgery to take care of problem.

Liked by lasirvent

REPLY
@lasirvent

I have been searching for 15 years. I had abdominal pain like gall bladder. They took out my gall bladder and I still had the pain. After 8months and 25 pounds less, they did every GI test with no diagnosis. I stopped going to drs and totally changed my diet (no processed foods, no gluten) and still no help. My internist finally said to go see a pain dr. I had a block and knew immediately that it worked so they did a Radio Theraphy Ablasion and I had peace (no Pain) for over a year, except for “attacks” which felt like a rooter-Reuter going through my digestive system, pain, and no eating for about a week. My doctor in Dec. ordered an Abdominal Ultrasound and it about put me in the hospital because of the pain from this procedure. I have had 2 more RFA within 2 months and it’s alleviated the pain about 65%. I’m now looking into Median Acurate Ligament Syndrome. Still searching for answer.

Jump to this post

can you tell me what kind of doctor does RFA?

REPLY
@lasirvent

I have been searching for 15 years. I had abdominal pain like gall bladder. They took out my gall bladder and I still had the pain. After 8months and 25 pounds less, they did every GI test with no diagnosis. I stopped going to drs and totally changed my diet (no processed foods, no gluten) and still no help. My internist finally said to go see a pain dr. I had a block and knew immediately that it worked so they did a Radio Theraphy Ablasion and I had peace (no Pain) for over a year, except for “attacks” which felt like a rooter-Reuter going through my digestive system, pain, and no eating for about a week. My doctor in Dec. ordered an Abdominal Ultrasound and it about put me in the hospital because of the pain from this procedure. I have had 2 more RFA within 2 months and it’s alleviated the pain about 65%. I’m now looking into Median Acurate Ligament Syndrome. Still searching for answer.

Jump to this post

I've also almost given up on western medicine. Will be trying acupuncture to see if that helps. Have had this pain since I had my gallbladder out 5 years ago. Its an aching deep pain like something is pushing really hard in that area. Have had an abdominal ultrasound, CT, MRIs, colonoscopy, EGD and many lab tests. All normal. It was thought to be scar tissue at one point but no one will do an exploratory surgery for ab pain. I also went through testing for Sphincter of Oddi but that too was inconclusive. It is very depressing as I too used to be active but now I don't go anywhere much for fear of the pain flaring up. I pray for answers not only for myself but for you too.

Liked by lasirvent

REPLY
@coderhomer

I've been having right upper abdominal pain for 5 years. Nothing can be found. Have had CT scans, EGD, colonoscopy, labs are normal. Had my gallbladder out in 2014. Every test is normal. Still dealing with pain. Started seeing the pain clinic doctor who said I could have Abdominal Wall pain. Have had a couple trigger point injections but didn't help much. Can I ask what type of pain you are having? Stabbing? Burning? Sharp? Would like to know if it's the same I've been having. Thanks. Am glad the treatment is helping you.

Jump to this post

I had deep stabbing pain in my right lower abdomen. The ER was always concerned I had a kidney stone. I remember having a colonoscopy before my diagnosis. I was told
I had a tortuous colon. I notice some pain when my bowel is full. The deep tissue massage/scar mobilization has made the most difference. I had another lap surgery after my diagnosis. I have some scar tissue that has attached to my rib. I notice more pain there as I get closer to my every 3 month appointment. Don’t give up. I think this really takes time to figure out. I do use nortriptyline and I was on tramadol. I try not to do aggressive abdominal exercises or heavy yard work.

REPLY
@captainsteve

I've had thoracic spine MRI also and even though I do have degenerative discs, I have been told that there is no possible connection with my pain on left side of abdomen. I have sharp stabbing pain. I have oxycodone pills from years ago due to knee, shoulder surgeries but try not to take them because I don't want to get hooked on them. In the meantime, after being an extremely active person all my life, I find myself in bed many days and am not able to do anything. Very depressing for me. I don't know if I will go for a third shot under ultrasound, I want to see if anyone has gone for surgery to take care of problem.

Jump to this post

@captainsteve Are you seeing someone in pain management? If the injections are not working for you then you need to ask the doctors to look at other things that could cause your pain. You may have to ask about any "incidental findings" that show up on your imaging reports. Most doctors ignore them but if they can't figure out what is causing your pain then they need to consider other things. Don't settle for being a pain patient and sit like that for years. You may need to see numerous doctors until someone is willing to pay attention to your ailments and dig in to what's actually causing it. This is what happened to me over the course of 15 years. Hope all goes well for you, take care!

Liked by lasirvent

REPLY
@qball2019

@captainsteve Are you seeing someone in pain management? If the injections are not working for you then you need to ask the doctors to look at other things that could cause your pain. You may have to ask about any "incidental findings" that show up on your imaging reports. Most doctors ignore them but if they can't figure out what is causing your pain then they need to consider other things. Don't settle for being a pain patient and sit like that for years. You may need to see numerous doctors until someone is willing to pay attention to your ailments and dig in to what's actually causing it. This is what happened to me over the course of 15 years. Hope all goes well for you, take care!

Jump to this post

qball2019–can you tell me how your problem was solved? I've been to urologists, gastroenterologist, orthopedic, nephrologists and finally the pain management dr. came up with the diagnosis of ABDOMINAL WALL NERVE ENTRAPMENT. This past week I have had a little bit of relief so maybe the tap block shot is kicking in.

REPLY
@captainsteve

qball2019–can you tell me how your problem was solved? I've been to urologists, gastroenterologist, orthopedic, nephrologists and finally the pain management dr. came up with the diagnosis of ABDOMINAL WALL NERVE ENTRAPMENT. This past week I have had a little bit of relief so maybe the tap block shot is kicking in.

Jump to this post

The pain I've been experiencing for the last 5 years has not been solved. We are going to revisit Sphincter of Oddi as a cause. Glad to hear you've found relief. I wish you well.

Liked by lasirvent

REPLY
@bubbleshdr

I had the million dollar work up before I was diagnosed with ACNES. I have been getting injections since 2015. I also had 25+ sessions with PT for abdominal deep tissue massage to break up scarring. I am now getting injections every 3 months after 2 years of injections every 2 months. I’m in a good place. I have some right lower quadrant abdominal pain if I’m constipated and my bowel is too full. I keep hoping I’m in “remission” but I realize I will have this medical problem the rest of my life.

Jump to this post

If you were diagnosed with ACNES, why have the doctors not tried a neurectomy? What type of physician did you see for the diagnosis of ACNES….GI, neurologist, pain specialist?? Lisa

REPLY
@wancio

If you were diagnosed with ACNES, why have the doctors not tried a neurectomy? What type of physician did you see for the diagnosis of ACNES….GI, neurologist, pain specialist?? Lisa

Jump to this post

I saw a pain specialist who suggested ACNES. Since then I have had a diagnostic ab lap where adhesions were found in the area where the gallbladder had been. Surgeon took down the adhesions which were very thick. I also received TAP. Blocks. It all helped tremendously with the RUQ ab pain I had been experiencing.

REPLY
@wancio

If you were diagnosed with ACNES, why have the doctors not tried a neurectomy? What type of physician did you see for the diagnosis of ACNES….GI, neurologist, pain specialist?? Lisa

Jump to this post

The GI doctor I had at the time was doing an endoscopy on me when she asked if she could inject my abdominal wall with lidocaine. The pain went away right away. The doctor had just read a case study about ACNES. Unfortunately I think this is a new medical condition to many doctors. The trigger point injections work for me now. If this changes, I will pursue a possible neurectomy.

REPLY
Please login or register to post a reply.