Has anyone been diagnosed with Abdominal Wall Pain

Posted by rufus444 @smiles444, Dec 15, 2017

Starting on May 1, 2017, I began having abdominal pain that wraps around to my left back. The first time it happened, I went to the emergency room because I thought I might have an apendicitis. The hospital did a CT scan of my abdomen, everything looked okay. I went to the emergency room several times over the summer with excruciating abdominal and back pain. I had a hida scan done, a colonoscopy and an endoscopy and CT and ultrasound scans of my abdomen. Everything looked normal. In September of this year, a doctor at Mayo felt the area on my abdomen and did a Carnett’s test. He suggested it could be abdominal wall pain. I have had two steroid injections and I am still having pain in the same area. Has anyone out there had this type of diagnosis and still having pain?

Liked by graceandpeace

I have had abdominal pain, on my left side wrapping around to my back, on and off for about six months. I am a lymphoma survivor, with a stem cell transplant history. So, it’s easy to put off… Did too much, ate too much, stressing too much, just don’t feel well. But it begin to become more painful and I started dropping weight, 20 pounds in a month. I eventually got a upper GI to rule out a transplant related issue. I had some gastritis, but nothing really remarkable. They put me on a PPI and that has helped, but I still have on and off pain. I’m curious what test you have had beyond the CT scans and what they showed.

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@rsmith0822

Yes!! Been sick for 6 1/2 yrs. Finally diagnosed with Abdominal Wall Syndrome with nerve entrapment on Dec 6th, 2017.

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No one replied

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@edda

Yes, I had the same thing happen to me. I would wake up in the middle of night with tremendous pain and ended up going to the ER several times. They took CT scans and blood tests, but everything came back normal. I can take pain and I am not a nervous hypochondriat. Ended up going to a gastroentologist, who came to the conclusion, that I had IBS, after some endostropies. But I still wake up at night with terrible pain and I do not know,
what causes it. I have sometimes put some hot or warm water bottle on it and it seems to help. But is that the answer? And I wake up two or three times.
Doctors seem not be worried, but I am, since I never had problems before. Could eat and drink anything. Travelled internationally a lot, and never even
had an upset stomach. Of course used common sense, when eating some things unknown to me. Now I skip dinner often, because I am afraid of that terrible pain! Does anybody had that problem?
I take ducalex and stool softeners and also a probiotic VSL 3 every day, to make sure, that I do not get constipated.
Should I seek more medical advise?

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Hi:
Why don’t you look up MALS

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@jamienolson

Hi @smiles444. I would like to add my welcome to @pagray24‘s. Welcome to Mayo Clinic Connect! It looks like you have a nice start to information that @pagray24 has offered to you. I’m going to call in @giza and @rdrdhap in hopes that they have even more thoughts to add.

I’m sorry you are having to deal with daily pain- I bet that’s tough to do.
Here is some information that Mayo offers on Abdominal pain- https://www.mayoclinic.org/symptoms/abdominal-pain/basics/definition/sym-20050728

Did the steroid injections you had touch the pain at all? Have you thought about adjusting your diet to see if that makes a difference?

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Abdominal wall pain may be caused by poor blood flow to the affected area. Consult with your doctor about taking a baby aspirin daily. Also, doing abdominal stretches may help too.

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@jamienolson

Hi @smiles444. I would like to add my welcome to @pagray24‘s. Welcome to Mayo Clinic Connect! It looks like you have a nice start to information that @pagray24 has offered to you. I’m going to call in @giza and @rdrdhap in hopes that they have even more thoughts to add.

I’m sorry you are having to deal with daily pain- I bet that’s tough to do.
Here is some information that Mayo offers on Abdominal pain- https://www.mayoclinic.org/symptoms/abdominal-pain/basics/definition/sym-20050728

Did the steroid injections you had touch the pain at all? Have you thought about adjusting your diet to see if that makes a difference?

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Abdominal wall pain may be caused by poor blood flow to the affected area. Consult with your doctor about taking a baby aspirin daily. Also, abdominal stretches may help too. Hope this helps @smiles444 and @pagray24 and @lucie2 and @rufus444 and @edda and @dschaefer and @rsmith0822 and @aesmayo01

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Hello,i'm so sorry to hear all the pain you feel here,even i'm in the same trouble for 7 years,up to now i'm still trying to find a diagnosis for my pain and in the 2 next day i'm gonna meet a vascular surgeon to make a diagnosis about a Celiac Ligament Compression or Dunbar Syndrome,it is a very rare disease and very hard to figure out and there are specific examinamination process to make the diagnosis such as specific CT the regular CT couldn't see it,talk about it to your doctor and don't lose hope…even me i don't know if i have this or not,i will see it with the doctor soon,hope the best for all of you…

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I have been having abdominal pain for months but no one seems to know why they took out my appendix and my gallbladder but on still have the pain. It doesn't go away but gets worse if I eat or drink. Any one experience that before their diagnosis? At this point I am just grasping at straws trying to figure out what's happening to me

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@hgarm

I have been having abdominal pain for months but no one seems to know why they took out my appendix and my gallbladder but on still have the pain. It doesn't go away but gets worse if I eat or drink. Any one experience that before their diagnosis? At this point I am just grasping at straws trying to figure out what's happening to me

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@hgarm Its so hard to diagnose without having test and hopefully your Dr Monday will get the ball rolling for you but you sound so much better then first time you posted Congratulation to YOU .

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@pagray24

@smiles444
Hi, I am going on 5.5 years since my first sudden onset of upper left quadrant abdominal pain. I have had many diagnoses and yet it is still a mystery and truly excruciating at times. My pain is 8-9 days out of 10. How often is yours? Can you walk normally? What have you tried that works? I have seen 18-20 specialist. I use heat, a TENs, meditation, pain meds, lying still on a 45 degree angle and a number of other meds. Does the pain cause you headaches and nausea when it gets severe? It has been a 5 year science experiment and imaging studies of all types to still not know what or why. Abdominal wall pain, visceral pain, chest wall pain, chronic pain syndrome, etc. It has been labeled all of these. I have received easily 100 injections in my upper abdomen and wrapping around to my back. So, I feel your pain.

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Check MALS

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@rsmith0822

Yes!! Been sick for 6 1/2 yrs. Finally diagnosed with Abdominal Wall Syndrome with nerve entrapment on Dec 6th, 2017.

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Hello. I have been diagnosed with this as well. My question is, what type of Dr. Does the ultrasound guided steroid injection or nerve block. I have been referred to an ob/ gyn who had never heard of such a thing and laughed in my face. I just want this pain to go away but don't know where to go. My Dr doesn't seem to know either.

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@christie6453

Hello. I have been diagnosed with this as well. My question is, what type of Dr. Does the ultrasound guided steroid injection or nerve block. I have been referred to an ob/ gyn who had never heard of such a thing and laughed in my face. I just want this pain to go away but don't know where to go. My Dr doesn't seem to know either.

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I don't know if it's the same in the US. But in the UK. l had my procedure in the pain clinic as a day patient! Carol

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@lucie2

Have you tried working the shoe angle? I have had chronic pain in lower left thoracic and left upper abdominal for 10 years. They have called it chest wall pain, and mostly were puzzled as to how to deal with it. It is most likely due to some scar tissue post op. During the day the pain is fairly low 2-4 generally. It increases when I exercise or walk or stand up for a time (I need to sit down after a few minutes unless I am using some support like a shopping cart.) I wake up from it at night. It is probably connected to some scar tissue. Generally stretching helps. Well, I lately pulled out some MBT shoes I had not used for a long time. They have pronounced rocker soles, and change one’s posture and the muscles one uses. It created almost instant change. The pain is milder and less disabling. I am able to stand comfortably for a much longer time. Pain at night has diminished considerably and wakes me up much less. I was very surprised, and I hope this maintains. Note that the new MBT shoes you might buy are not necessarily as good because the company was bought up, and some of the new shoes are not constructed in quite the same way. Look for shoes with good rocker soles and support, that use the original MBT technology. Do not use if you have balance problems though.

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@lucie2 don’t you miss the old mbt’s! I loved them. They helped me with plantar fasciitis and get a better gait. I guess sketchers or other types will have to do.

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I had the million dollar work up before I was diagnosed with ACNES. I have been getting injections since 2015. I also had 25+ sessions with PT for abdominal deep tissue massage to break up scarring. I am now getting injections every 3 months after 2 years of injections every 2 months. I’m in a good place. I have some right lower quadrant abdominal pain if I’m constipated and my bowel is too full. I keep hoping I’m in “remission” but I realize I will have this medical problem the rest of my life.

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I've been having right upper abdominal pain for 5 years. Nothing can be found. Have had CT scans, EGD, colonoscopy, labs are normal. Had my gallbladder out in 2014. Every test is normal. Still dealing with pain. Started seeing the pain clinic doctor who said I could have Abdominal Wall pain. Have had a couple trigger point injections but didn't help much. Can I ask what type of pain you are having? Stabbing? Burning? Sharp? Would like to know if it's the same I've been having. Thanks. Am glad the treatment is helping you.

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Yes, I’ve had every tests they can think of and they can’t find anything wrong. So now I had a RFA and nerve block on my Splanick nerve. It helped and gave me relief for almost a year. Now, im back and had both left and right sides done. Waiting for nerves to die off. Also, checking into vascular problems, NMALS? Desperate!

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