Has anyone been diagnosed with Abdominal Wall Pain

Posted by rufus444 @smiles444, Dec 15, 2017

Starting on May 1, 2017, I began having abdominal pain that wraps around to my left back. The first time it happened, I went to the emergency room because I thought I might have an apendicitis. The hospital did a CT scan of my abdomen, everything looked okay. I went to the emergency room several times over the summer with excruciating abdominal and back pain. I had a hida scan done, a colonoscopy and an endoscopy and CT and ultrasound scans of my abdomen. Everything looked normal. In September of this year, a doctor at Mayo felt the area on my abdomen and did a Carnett’s test. He suggested it could be abdominal wall pain. I have had two steroid injections and I am still having pain in the same area. Has anyone out there had this type of diagnosis and still having pain?

Liked by graceandpeace

@coderhomer

I saw a pain specialist who suggested ACNES. Since then I have had a diagnostic ab lap where adhesions were found in the area where the gallbladder had been. Surgeon took down the adhesions which were very thick. I also received TAP. Blocks. It all helped tremendously with the RUQ ab pain I had been experiencing.

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Was your gall bladder surgery done via open incision or lap
surgery? My scarring has happened after 2 lap surgeries.

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@bubbleshdr

Was your gall bladder surgery done via open incision or lap
surgery? My scarring has happened after 2 lap surgeries.

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It was taken out laprascopically. Am glad the trigger point injections worked for you. They worked for me too but only lasted a few days. It was time to find out what was causing the pain. Fortunately the Lysis of adhesions has made a big difference.

Liked by bubbleshdr

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@coderhomer

I saw a pain specialist who suggested ACNES. Since then I have had a diagnostic ab lap where adhesions were found in the area where the gallbladder had been. Surgeon took down the adhesions which were very thick. I also received TAP. Blocks. It all helped tremendously with the RUQ ab pain I had been experiencing.

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Thank you!!!

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@aesmayo01

I am currently at Mayo Clinic Rochester MN. I have had severe (worse than childbirth pain) for 23 yr after I had gallbladder out. I was diagnosed based on symptoms not testing and by this was reconfirmed by dozens of ER visits over the years. Pain began in center or upper abdomen and always radiated to the back. I had to take Morphine or Dilaudid it was the only thing reducing my pain below 7. Last 2 years huge increase in stress plus more fat than usual resulted in episodes up to twice a wk for nearly a yr.

Moved 7 mo ago and the original doc who dx me with chronic pancreatitis 17 yr ago decided it wastnt because I have not lost tons of weight or been hospitalized. Meanwhile I got a prescription for percocet that reduces pain enough I usually dont end up at ER.

I came to Mayo to find out if I had chronic pancreatitis or not. I was told my wonderful GI doc here that it is abdominal wall pain and I am getting a shot for it Monday. I dont know if ultrasound will be used. She also said she can prescribe pain meds if the shots dont work. I do not have chronic pancreatitis or an ulcer.

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Abd pain started after I split a load of firewood. Thought it was an abd muscle tear or pull and let it go for 2 months. Pain bad enough I went to the ER in Sept 2017. Tests all negative, scans all negative, I had the works to rule out gastroenterologic problem. It is now 21 months later after having been prescribed 21 meds and have been brushed off by 17 physicians. I hit the internet doing research and found Carnett's description so I have essentially had to diagnose myself with abdominal cutaneous nerve entrapment pain. After reading Mayo's Dr. Seth Sweetser's CME posted in Mayo Clinic Proceedings, I tried again for an appointment. Mayo sent me a form letter stating, in part, "we do not believe a visit to the Mayo Clinic would add to the care you have already received." Since I have received NO CARE AT ALL, other than pain meds, Mayo's response makes no sense–based on Dr. Sweetser's detailed post of Feb 2019, there ARE more options for treatment other than pain meds (which I DO NOT want). Thanks a lot Mayo for nothing.

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@juliepm Hi, I could be totally wrong but perhaps you tension in internal nerve plexus that is affecting nerve functions / producing pain. Think about how it feels to get punched in the solar plex (or for men kicked in the crotch; for ladies menstrual cramps). Tension internally on a nerve can make it malfunction and that causes a viscious cycle of pain.

It depends on where the plexus or nerve is and where the pain is. It wasn't clear from your description. Myofascial tissue / muscles clamping on nerves is a common source of pain and there is no test / no imaging and meds don't help it much, either. Stretching and exercise just might.

If so, extremely deep breathing (especially inspiration) and stretching of the psoas – which attaches to diaphragm- might help. If possible, search for psoas stretches (sometimes called hip flexors). Include very deep breathing with those stretches. For the solar plex stretch grab a taller table and crouch over it pulling Google pandiculation) you’ll get an idea what to do while pulling and stretching the solar plexus (celiac plexus) region. See if that helps. That really could be the issue that drives your pain. That caused my back pain and sciatica – without a doubt. It took me a while as I had chains of trigger points- and I firmly believe I had digestive issues from a tight nerve plexus somewhere (for me it was psoas for sure and I believe my sitting pain was from tightness near the pelvic plexus (right near the sitbones from the hypogastric nerves and others)). For me, DDD drives the process, I think. I've had great luck with intense stretching and exercise (including TRX core work – I haven't had a backache in months since I tried that). I still have a little sitting pain and I know at least some to most of that is myofascial tension. Try the pandiculation and deep breathing and find some stretches / exercises. It’s worth a try. See if that helps. Best of luck, Rich

Liked by bubbleshdr

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@richman54660

@juliepm Hi, I could be totally wrong but perhaps you tension in internal nerve plexus that is affecting nerve functions / producing pain. Think about how it feels to get punched in the solar plex (or for men kicked in the crotch; for ladies menstrual cramps). Tension internally on a nerve can make it malfunction and that causes a viscious cycle of pain.

It depends on where the plexus or nerve is and where the pain is. It wasn't clear from your description. Myofascial tissue / muscles clamping on nerves is a common source of pain and there is no test / no imaging and meds don't help it much, either. Stretching and exercise just might.

If so, extremely deep breathing (especially inspiration) and stretching of the psoas – which attaches to diaphragm- might help. If possible, search for psoas stretches (sometimes called hip flexors). Include very deep breathing with those stretches. For the solar plex stretch grab a taller table and crouch over it pulling Google pandiculation) you’ll get an idea what to do while pulling and stretching the solar plexus (celiac plexus) region. See if that helps. That really could be the issue that drives your pain. That caused my back pain and sciatica – without a doubt. It took me a while as I had chains of trigger points- and I firmly believe I had digestive issues from a tight nerve plexus somewhere (for me it was psoas for sure and I believe my sitting pain was from tightness near the pelvic plexus (right near the sitbones from the hypogastric nerves and others)). For me, DDD drives the process, I think. I've had great luck with intense stretching and exercise (including TRX core work – I haven't had a backache in months since I tried that). I still have a little sitting pain and I know at least some to most of that is myofascial tension. Try the pandiculation and deep breathing and find some stretches / exercises. It’s worth a try. See if that helps. Best of luck, Rich

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Richman 54660 Interesting, and thanks for the reply. Worth a try!

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@juliepm. There is a book called “a headache in the pelvis” by Anderson and wise. They talk about Myofascial pain and trigger points. Some can be internal. Deep internal can be trickier to get rid of. Pilates reformer work might also help if I’m right and I’ve found combinations of flavonoids (rutin /quercetin), resveratrol, turmeric knock the pain down a bit (monitor blood pressure) and easy on the rutin. Good luck.

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@edda

Yes, I had the same thing happen to me. I would wake up in the middle of night with tremendous pain and ended up going to the ER several times. They took CT scans and blood tests, but everything came back normal. I can take pain and I am not a nervous hypochondriat. Ended up going to a gastroentologist, who came to the conclusion, that I had IBS, after some endostropies. But I still wake up at night with terrible pain and I do not know,
what causes it. I have sometimes put some hot or warm water bottle on it and it seems to help. But is that the answer? And I wake up two or three times.
Doctors seem not be worried, but I am, since I never had problems before. Could eat and drink anything. Travelled internationally a lot, and never even
had an upset stomach. Of course used common sense, when eating some things unknown to me. Now I skip dinner often, because I am afraid of that terrible pain! Does anybody had that problem?
I take ducalex and stool softeners and also a probiotic VSL 3 every day, to make sure, that I do not get constipated.
Should I seek more medical advise?

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Take Magneseum before going to bed for chronic constipation

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@lasirvent

Take Magneseum before going to bed for chronic constipation

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Never had constipation except after 2 c-sections

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I have trouble swallowing food especially meats. most gets stuck in my throat above the flap. I have a motility disorder and only part of my esophagus works doe to damage for severe acid reflux and bile reflux form a bad gall bladder i took to long to get out. But for the past 6 months or so when i swallow especially meat i get a severe pain in the upper left part of my stomach. its only lasts a couple moments and once the food has passed that area the pain goes right way . has anyone else had this ?? im getting ready next month to have another endoscopy. about 2 years ago i had one and had a very small hiatial hernia in that area and im wondering if it has gotten worse and its what is causing the pain. again it mostly 95% of the time is cause form swallowing meats of any kind but beef and pork are the most severe.

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Hello All:

I thought you would find this video interesting. It deals with chronic abdominal wall pain. After you watch the video please share your thoughts.

Mayo Clinic gastroenterologist, Dr. Amy Oxentenko talks about an article published in Mayo Clinic Proceedings, detailing the complexities of chronic abdominal wall pain (CAWP) – a condition that seems elusive to any workup.

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@smiles444 I see that this discussion started a while ago- I assume you still have pain. I’m sorry! I experienced something similar for years before I was diagnosed with MALS – where a ligament from the diaphragm puts pressure on the celiac artery. I always had abdominal wall tenderness that did not have an explanation. Then , after meals I would have serious abdominal pain because of decreased blood flow to intestines. At Mayo I had trigger point injection at the one point, but there was no change.
After surgery for MALS the pain is gone. Don’t give up!

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@hopeful33250

Hello All:

I thought you would find this video interesting. It deals with chronic abdominal wall pain. After you watch the video please share your thoughts.

Mayo Clinic gastroenterologist, Dr. Amy Oxentenko talks about an article published in Mayo Clinic Proceedings, detailing the complexities of chronic abdominal wall pain (CAWP) – a condition that seems elusive to any workup.

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This video is not as informative as Dr. Seth Sweetser's post in the February 2019 Mayo Clinic Proceedings.Trigger-point injections–whether guided or freehand–do not last more than a few hours. I have not received competent care in my area and, in fact, have been brushed off by 14 MD providers over nearly 2 years, including Dr. Sweetser's gastroenterology group. I had to diagnose myself (via Carnett's) and still have no help. Patients posting on this site have had similar experiences, and "reassurances" from a well-meaning gastroenterologist are an insult. Yes, Dr. Oxentenko, it is very much a quality of life issue, and talk is cheap. Does Mayo know how to help us when injections fail, or not?

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@pagray24

@smiles444
Hi, I am going on 5.5 years since my first sudden onset of upper left quadrant abdominal pain. I have had many diagnoses and yet it is still a mystery and truly excruciating at times. My pain is 8-9 days out of 10. How often is yours? Can you walk normally? What have you tried that works? I have seen 18-20 specialist. I use heat, a TENs, meditation, pain meds, lying still on a 45 degree angle and a number of other meds. Does the pain cause you headaches and nausea when it gets severe? It has been a 5 year science experiment and imaging studies of all types to still not know what or why. Abdominal wall pain, visceral pain, chest wall pain, chronic pain syndrome, etc. It has been labeled all of these. I have received easily 100 injections in my upper abdomen and wrapping around to my back. So, I feel your pain.

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Just to let you know, I have severe abdominal pain and nothing helps. My pain is 24/7 and levels from 5 to 10 depending on meds I'm taking. I get a shot soon to see if it's my abdominal wall or something else, but the pain never goes away.

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@rbassett

Just to let you know, I have severe abdominal pain and nothing helps. My pain is 24/7 and levels from 5 to 10 depending on meds I'm taking. I get a shot soon to see if it's my abdominal wall or something else, but the pain never goes away.

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@rbassett, I'm crossing my fingers that you will find a diagnosis for your pain–and for some lasting relief. Please post after your shot with some details for the rest of us? Much appreciated, and good luck

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