Implantable neurostimulator for chronic pain

Posted by zjandre @zjandre, Apr 13, 2016

Has anybody had an implantable neurostimulator for chronic pain?

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My opinion, there’s no money to be made in the cure, only in the treatment.This is the best country in the world. Why is medicine, treatment so expensive. Other countries you pay for treatment,medicine little or no cost, and insurance through your taxes.Why not in the US. I use a Tens on my leg after negative relief three back surgeries and now numbness in my left leg after last back surgery.

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Check all the ads on TV. Who pays for the drug ads placed by the pharmacotherapy companies? US!

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@alysebrunella

Hi @zjandre, and welcome to Connect. I’m tagging @ladyjane85 and @mntnlaural as both members were recently discussing neurostimulators. I would also encourage you to check out the thread Chronic pain – Let’s Talk as I feel like you may find additional members to connect with in this group (https://connect.mayoclinic.org/discussion/are-there-any-discussions-for-chronic-pain/)

Are you considering an implanted neurostimulator or did you recently have one implanted?

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Has anyone used the stimulator for peripheral neuropathy, specifically in the feet?

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I had an implant about 3 years ago.. Love it & works great for the sciatica pain in leg as I have stenosis of my back..

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@marieh

Would like to hear from patients that have had a Nevro Stimulator implanted

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I actually had the St. Jude’s one implanted as well & have had it for about three years.it is actually working so well for me. still have pain but the sciatica is way better.

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I see a lot of posts about back pain and others, but no mention of how effective it is for idiopathic peripheral neuropathy. Has anyone had either a positive or negative experience with the spinal cord stimulator for neuropathy? My pain is mainly in my feet.

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@lisab62

I’ve had the Spinal Cord Stimulator for pain of Variant Angina
It has taken care of the pain however it does not cover the pain of a heart attack or a bad spasm. Took a little while to
Get used to it but now it’s part of my life and totally worth it.

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Have stable angina had many stents and it was time to have open heart surgery. Angina went, something I have to learn to live with that like I have been doing for the last seven years. The Open Heart what’s completed on December 2011. I learned feelings of my body when I have an angina attack. Started to have more pain with my angina attacks. Preformed catherization and found my right femoral artery was 100% blocked. Had a stent in artery that was 65%blocked. My stable angina continues with more pain and more episodes. Asked two cardiologists and one pain doctor, about the spinal cord stimulator and all of them do not recommended the stimulator. Success of this instrument it’s not worth the percentage of people it helps. The surgery to put in the stimulator and if it needs to be taken out is a major surgery. If my angina is different I could be having a heart attack and would not know it with the stimulator. As for the stent and the right side of my heart is all the cardiologists can do prognosis is not good. But will keep trying Stimulator thumbs down.

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@zjandre

I had one and then two stimulators placed to calm down my pain. They worked fine except every time I sat down I had to adjust the controls. I had to repeat this process when lying down, turning over in bed, and bending over. It just got too much for me, and eventually had both removed.

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@alysebrunella

Hi @zjandre, and welcome to Connect. I’m tagging @ladyjane85 and @mntnlaural as both members were recently discussing neurostimulators. I would also encourage you to check out the thread Chronic pain – Let’s Talk as I feel like you may find additional members to connect with in this group (https://connect.mayoclinic.org/discussion/are-there-any-discussions-for-chronic-pain/)

Are you considering an implanted neurostimulator or did you recently have one implanted?

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Yes, I had a St. Jude Medical DRG (dorsal root ganglion) stimulator put in earlier this year. It specifically targets both my feet. It works really good, I got significant relief, like 50-60%. Enough that I can go out and take a walk and do yard work and sleep without constantly being woken up by with shooting pains. Unfortunately not enough to be able to reduce my pain meds much. But if I over do it, the pain gets pretty bad in the evening.

I also have a regular neurostimulator in the epidural space across T7-T9 that helps a lot w my leg pain higher up.

One caution which I wish I had had better council on is knowing how to find out more about the Dr. doing the implant. On the original type stim unit it took 5 complete replacements over 2 years in Oklahoma before I moved to MN and was referred to a neurosurgeon who really knew how to install the permanent unit and secure it in place.

I still don’t know how to find out that info, but when I moved to MN I was referred to Dr. Schultz at MAPS Medical Pain Clinic in MN for the DRG and Dr. David Chang at United Pain Clinic to properly clean out the scar tissue from the earlier surgeries and place it in the optimal position. If u can figure out how, I would highly recommend flying up and having them do it here.

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@lisab62

I’ve had the Spinal Cord Stimulator for pain of Variant Angina
It has taken care of the pain however it does not cover the pain of a heart attack or a bad spasm. Took a little while to
Get used to it but now it’s part of my life and totally worth it.

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Hello @alll, and welcome to Connect. Thank you for sharing your story about living with the frustrating complications of stable angina with the other members of the chronic pain group. It sounds like your physicians do not think the risk/reward benefit is so much that it would be worth risking in a stimulator for your pain. Although frustrating, it is best to trust your medical provider’s input.

You mentioned that stents are the only option currently and the prognosis is not good. Only if you are comfortable, would you mind sharing a bit more about that?

Also, it may be beneficial to start a discussion in the Heart & Blood Health group, found here https://connect.mayoclinic.org/group/heart-blood-vessel-conditions/. I suggest calling the discussion “Stable Angina” or something along those lines so that we can bring members to the conversation. Do not hesitate to ask how to do this if you are having troubles.

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