Implantable neurostimulator for chronic pain

Posted by zjandre @zjandre, Apr 13, 2016

Has anybody had an implantable neurostimulator for chronic pain?

I did a trial with the new St. Jude product and it was a disaster… it didn’t help and the techs from St Jude didn’t know how to operate it… I certainly did not have them put it in for good and I am very glad i did not. I am using sublingual CBD from the marijuana plant, it works better than the stimulator did, it works quite well actually. NO THC in it, so you don’t get high, not illegal, and don’t smoke it… find a reliable source though.

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@timfitz

I did a trial with the new St. Jude product and it was a disaster… it didn’t help and the techs from St Jude didn’t know how to operate it… I certainly did not have them put it in for good and I am very glad i did not. I am using sublingual CBD from the marijuana plant, it works better than the stimulator did, it works quite well actually. NO THC in it, so you don’t get high, not illegal, and don’t smoke it… find a reliable source though.

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@timfitz Had the St Jude’s stimulator put in – looking for anything to
help my 30 yr back pain. Had it removed 1 1/2 yrs later. It did no good
but rumble away, not fooling my brain.Can take no pain meds, since I have
reacted to over 40 or had no relief. Is the CBD very expensive? Have tried
the THC oil, and I do not react to it, the same as all those meds. am at
wit’s end. Oh, I tried THC very recently. and it did nothing for me, the
same as all the strong pain killers. I did not react even with quite a
dose. @ladyjane85

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I was in the process of getting a temporary one. I had to tell them to stop. I do not wish my horrible experience on anyone. The information and my perception Mayo will be your best place to have this done .

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@elltd

I was in the process of getting a temporary one. I had to tell them to stop. I do not wish my horrible experience on anyone. The information and my perception Mayo will be your best place to have this done .

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I had to have the neurostimulator that St Jude’s dealt with removed – the
vibrating did nothing more than a TENS unit for my pain. I could still
feel it for 10 hours after shutting it off; and even removed get the
vibration at times. But I seem to respond to nothing…. ladyjane85

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My opinion, there’s no money to be made in the cure, only in the treatment.This is the best country in the world. Why is medicine, treatment so expensive. Other countries you pay for treatment,medicine little or no cost, and insurance through your taxes.Why not in the US. I use a Tens on my leg after negative relief three back surgeries and now numbness in my left leg after last back surgery.

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Check all the ads on TV. Who pays for the drug ads placed by the pharmacotherapy companies? US!

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@alysebrunella

Hi @zjandre, and welcome to Connect. I’m tagging @ladyjane85 and @mntnlaural as both members were recently discussing neurostimulators. I would also encourage you to check out the thread Chronic pain – Let’s Talk as I feel like you may find additional members to connect with in this group (https://connect.mayoclinic.org/discussion/are-there-any-discussions-for-chronic-pain/)

Are you considering an implanted neurostimulator or did you recently have one implanted?

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Has anyone used the stimulator for peripheral neuropathy, specifically in the feet?

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I had an implant about 3 years ago.. Love it & works great for the sciatica pain in leg as I have stenosis of my back..

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@marieh

Would like to hear from patients that have had a Nevro Stimulator implanted

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I actually had the St. Jude’s one implanted as well & have had it for about three years.it is actually working so well for me. still have pain but the sciatica is way better.

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I see a lot of posts about back pain and others, but no mention of how effective it is for idiopathic peripheral neuropathy. Has anyone had either a positive or negative experience with the spinal cord stimulator for neuropathy? My pain is mainly in my feet.

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@lisab62

I’ve had the Spinal Cord Stimulator for pain of Variant Angina
It has taken care of the pain however it does not cover the pain of a heart attack or a bad spasm. Took a little while to
Get used to it but now it’s part of my life and totally worth it.

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Have stable angina had many stents and it was time to have open heart surgery. Angina went, something I have to learn to live with that like I have been doing for the last seven years. The Open Heart what’s completed on December 2011. I learned feelings of my body when I have an angina attack. Started to have more pain with my angina attacks. Preformed catherization and found my right femoral artery was 100% blocked. Had a stent in artery that was 65%blocked. My stable angina continues with more pain and more episodes. Asked two cardiologists and one pain doctor, about the spinal cord stimulator and all of them do not recommended the stimulator. Success of this instrument it’s not worth the percentage of people it helps. The surgery to put in the stimulator and if it needs to be taken out is a major surgery. If my angina is different I could be having a heart attack and would not know it with the stimulator. As for the stent and the right side of my heart is all the cardiologists can do prognosis is not good. But will keep trying Stimulator thumbs down.

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@zjandre

I had one and then two stimulators placed to calm down my pain. They worked fine except every time I sat down I had to adjust the controls. I had to repeat this process when lying down, turning over in bed, and bending over. It just got too much for me, and eventually had both removed.

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