Grover's Disease

Posted by 43219876x @43219876x, Sep 23, 2016

I have been diagnosed with Grover’s disease under my breasts. I had a biopsy for diagnosis. Tried topical ointment with no really good results. Any ideas?

@gardeningjunkie

You are dealing with challenging health issues. Do doctors have any idea what causes your headaches. My father used to get migraines in his 40's (I do wonder how much this was caused by my mother) but he said after age 55 he didn't get them anymore. Maybe yours will wane. I think I am the only one that reacts to Free and Clear Shampoo, within a week my scalp is itching. As I mentioned there are 5 classes of steroids. I tested allergic to one. So you may have become allergic to Fluocinonide, but there are 4 other classes. If you want to use a steroid research what class Fluocinonide is in and avoid those and check out the other 4 classes and ask your derm which one of those you can substitute.

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The reason for The headaches are a mystery besides my Grandmother had them. My Dad used to get them but doesn’t anymore so yes there is hope. Interesting that you had a reaction to the free and clear. Thankfully there’s one I can use without a reaction!

Liked by gardeningjunkie

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@solroczile7

I have had Grovers disease for over four years, diagnosed for 1 1/2. None of the patent medicine was effective enough. Then I learned that the rash is triggered by eating foods containing SULFITES. They are naturally occurring in several commonly eaten foods ie. grapes (vinegar, wine etc,), peppers, onions, garlic, soy, peanuts, cabbage, brussel sprouts, molasses, mushrooms. Sulfites are added to many packaged foods and sprayed on much American produce for preserving a fresh look. SOLUTION: Buy organic produce and meats, grow your own, use rice vinegar. Knowing this has GREATLY REDUCED my occurances of the Grover's rash. Also a very effective topical cream is available on Amazon called "Eczur Cream" by Elimia. It costs $23 +/- for a very small plastic jar. But you don't need much and it works, especially after showering with a low chemical soap.Now I go weeks at a time with no itchy bumps!

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Wow – I had no idea sulfites are naturally occurring in certain foods. I have been clear for awhile now, but am starting to feel itching and a single, crazy itchy bump on my midriff area. My diet is very high in mushrooms, brussel sprouts and asparagus. I will definitely start eliminating and see what happens. Thanks for that information!

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@babbs

Wow – I had no idea sulfites are naturally occurring in certain foods. I have been clear for awhile now, but am starting to feel itching and a single, crazy itchy bump on my midriff area. My diet is very high in mushrooms, brussel sprouts and asparagus. I will definitely start eliminating and see what happens. Thanks for that information!

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This is my 1st day on this group. I developed Grover's 11/2/20 New unwashed Dark Green Tee Shirt sleeping under electric blanket. Treated with Steroid Cream. Five weeks later got fissures on finger tips right hand. (never told correct procedure. Back of hands itch if skin temperature hits 90F. Hands look like 90 year old man. Made the mistake of not going to U of Penn Dermatology Dept. Going this week to see what can be done. I and 77 and was in great health. Low blood pressure, Low sugar ride bike 5 miles each day. Work in my garage on 21 dodge and 38 pontiac. Was a happy camper till this dreaded disease got me. Thanks to feedback from fellow Grovies.

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@grovercleveland

This is my 1st day on this group. I developed Grover's 11/2/20 New unwashed Dark Green Tee Shirt sleeping under electric blanket. Treated with Steroid Cream. Five weeks later got fissures on finger tips right hand. (never told correct procedure. Back of hands itch if skin temperature hits 90F. Hands look like 90 year old man. Made the mistake of not going to U of Penn Dermatology Dept. Going this week to see what can be done. I and 77 and was in great health. Low blood pressure, Low sugar ride bike 5 miles each day. Work in my garage on 21 dodge and 38 pontiac. Was a happy camper till this dreaded disease got me. Thanks to feedback from fellow Grovies.

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I want to give you hope which you won't hear from any dermatologist. I had even written up what we have done on this site and shared with my 2 dermatologists and they seem uninterested. No money to be made in this home remedy. As you have learned steroids give only a small percentage with of us any relief. Those of us who had been blogging for a while learned about a metal detox using cilantro and it works for around 50% of us. Recent studies tie heavy metals to Parkinson's and GD. Google it. Heavy metals have been know to lead to Alzheimer for years.
Kimass1 learned of this treatment from an EarthClinic GD blog and I believe that posting was Feb 17, 2019. Her contribution gave me my life back. I consider her my guardian angel.
I am still clear to this day as well as many others. It's fantastic to be able to be active outside in the summer heat, look forward to getting into bed without back pain and itching.
Most of us that did get relief with this treatment noticed improvement within a month.
Best wishes.

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@gardeningjunkie

I read that post and almost commented but hoped others would know by now not to fall for these scams Those of us that have had eczema for years have seen these scams come and go. In fact about 6 years ago a man kept promoting his cream that cured eczema and many of us reported this and got him blocked. There is no cure for eczema. It can go into remission, but this autoimmune disease is incurable. When I first got eczema I didn't understand that.
I've had people requesting to be my friend, which I accepted at first even though they weren't regular posters and they talk you into sending them your email address and then hustle you to sign up for their miracle product which only can be sold with a monthly automatic payment from your bank account. Believe me they are convincing and when suffering we become desperate. They tell you stories about their child that was cured by their product. Now I never give my real name or addresses.
Only purchase grooming products from companies with a good reputation and all active and inactive ingredients are listed. If they say it is a secret formula those are warning flags- do not buy it. I would be afraid to even put on the free sample which is probably coming from China.
I've been targeted by sellers reporting their melaleuca oil, emu oil, secret cure formula and so on could cure me. If that was the case eczema would be a thing of the past.
If a group of regular bloggers reported success with a treatment and I could check out the ingredient list to see if it was safe for me I would try it and have tried many recommendations I felt were safe. But a stranger with no history selling an unknown product?

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It went into the bin. The world is full of these scam merchants.

Liked by gardeningjunkie

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I am seeing more and more about mercury being tied to Parkinson's and Grovers. Now, if only the medical community would concentrate on the mercury removal instead of steroids we might see some progress. Many other sites are touting the benefits of cilantro now and many are having success with it. It is wonderful to know that this group was the first to share the cilantro success story. I am forever grateful because once my Grover's went away, it STAYED away. I do have an occasion cilantro smoothie eery once in a while just to be on the safe side.

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MariannJ I'm so happy that like me your GD was put into remission with cilantro. You make a good point about the need of the medical community to focus on successful alternatives to steroids. I hate to be negative, but they have no motivation because steroids are only a temporary fix and there is big money in them.
You are more diligent with the occasional cilantro smoothie. Since Dec of 2019 I have only had one or two. I got used to the taste drinking it daily and even started to find it refreshing, but ugh I've lost the taste for it. I will go back on them again if symptom's come back.

Liked by kimass1, MariannJ

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MariannJ and Gardeningjunkie It seems we are the OG's of the Cilantro "cure" and are it's biggest proponents! Who would have thought that mercury removal is actually something that works for GD? I was super skeptical about Cilantro, it seemed like just another "snake oil" but I was desperate and willing to try anything. I am so glad I did! I am happy to hear more and more people are taking this seriously, even though we can't get anyone in the medical community to do the same. We have all learned that WE must be our own best advocates. We need to keep spreading the word so that less people suffer needlessly with this horrible disease. I know it doesn't help everyone, but for those it does, it's a godsend. One day the medical community may catch up, but it's unlikely as they won't make any money off of a cure you can get at the supermarket for less than a dollar a day! I should probably do a maintenance "dose" too! It's been over a year and a half since my last smoothie! Thank you both for all you do in this community! Happy Holidays and well wishes for the New Year!

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@kimass1

MariannJ and Gardeningjunkie It seems we are the OG's of the Cilantro "cure" and are it's biggest proponents! Who would have thought that mercury removal is actually something that works for GD? I was super skeptical about Cilantro, it seemed like just another "snake oil" but I was desperate and willing to try anything. I am so glad I did! I am happy to hear more and more people are taking this seriously, even though we can't get anyone in the medical community to do the same. We have all learned that WE must be our own best advocates. We need to keep spreading the word so that less people suffer needlessly with this horrible disease. I know it doesn't help everyone, but for those it does, it's a godsend. One day the medical community may catch up, but it's unlikely as they won't make any money off of a cure you can get at the supermarket for less than a dollar a day! I should probably do a maintenance "dose" too! It's been over a year and a half since my last smoothie! Thank you both for all you do in this community! Happy Holidays and well wishes for the New Year!

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Hello again. This is where I stand now. Back of hands itching will wake me if I don’t keep them uncovered. Use ice back to fall back asleep. Also dermatologist did not tell me to keep Triamcinolone Acetonide 0.1% off my hands. Right hand finger tips thin skin with fissures. (very sensitive) Back of left hand has thin skin that looks like 90 year old person.
Took me 25 days and 3 pounds steroid twice a day on chest and back to get here. Took showers 87F between applications.
So three things remain now; 1)itching hands, 2)thin skin back of left hand, 3) right hand finger tips thins skin and split. Additionally, have developed Neuropathy. Skin feels like mild sun burn plus gets hot spots here and there off and on, and tingling. (I can live with the neuropathy, is does not itch.

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@grovercleveland

Hello again. This is where I stand now. Back of hands itching will wake me if I don’t keep them uncovered. Use ice back to fall back asleep. Also dermatologist did not tell me to keep Triamcinolone Acetonide 0.1% off my hands. Right hand finger tips thin skin with fissures. (very sensitive) Back of left hand has thin skin that looks like 90 year old person.
Took me 25 days and 3 pounds steroid twice a day on chest and back to get here. Took showers 87F between applications.
So three things remain now; 1)itching hands, 2)thin skin back of left hand, 3) right hand finger tips thins skin and split. Additionally, have developed Neuropathy. Skin feels like mild sun burn plus gets hot spots here and there off and on, and tingling. (I can live with the neuropathy, is does not itch.

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Have you checked into allergy testing. 5 Day Extended Patch test, it will be possible if your back has cleared up. Even if it hasn't get in to see a doctor licensed to perform it for an evaluation.

Liked by nodgabnoj

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Will get to Allergy Test. Right now the "neuropathy" not bothersome, however the Hands are the itch place. Sleep with room temperature at 62 or lower, and hands not under blanket avoiding any heat. Works ok. My hands got skin atrophy from steroid. (Never warned to keep off hands) Going to hand specialist Christmas Eve daytime. Have been to this hand specialist several times before "Trigger Finger" (minor surgery). Note taking 300Mg Gabapentin for the nerve problem now. Want the hand problem examined first to see options. PS: Get a minor itch on back ( less than mosquito bite)on bank if clothing is too hot. My hobby, old cars (got 3) requires strong hands and fingers. I hope everyone has an Average Christmas. Average is good enough for me.

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@grovercleveland

Will get to Allergy Test. Right now the "neuropathy" not bothersome, however the Hands are the itch place. Sleep with room temperature at 62 or lower, and hands not under blanket avoiding any heat. Works ok. My hands got skin atrophy from steroid. (Never warned to keep off hands) Going to hand specialist Christmas Eve daytime. Have been to this hand specialist several times before "Trigger Finger" (minor surgery). Note taking 300Mg Gabapentin for the nerve problem now. Want the hand problem examined first to see options. PS: Get a minor itch on back ( less than mosquito bite)on bank if clothing is too hot. My hobby, old cars (got 3) requires strong hands and fingers. I hope everyone has an Average Christmas. Average is good enough for me.

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Working with old cars involves working with metals. You really should consider a heavy metal detox.

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@gardeningjunkie

Working with old cars involves working with metals. You really should consider a heavy metal detox.

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Yes, lead, zinc, etc… How does one brew cilantro? What would be schedule for taking it?
Next week I will plan allergy testing.
Dermatologist prescribed non-steroid for itching. Tacrolimus ointment 0.1% at $128 for 60g. After reading the the warning, too many doubts about using it. Plus the dermatologist is hard to assess.

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@grovercleveland

Yes, lead, zinc, etc… How does one brew cilantro? What would be schedule for taking it?
Next week I will plan allergy testing.
Dermatologist prescribed non-steroid for itching. Tacrolimus ointment 0.1% at $128 for 60g. After reading the the warning, too many doubts about using it. Plus the dermatologist is hard to assess.

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I buy cilantro and freeze in freezer bags. Usually a half stalk in each. Take one bag, put in blender with a small carton of Yoplait yogurt, add orange juice and liquefy into a smoothie. Makes enough for 2 glasses. I take one glass per day. Was on the wagon for a year but it’s come back a little so I’m back to smoothies. The yogurt and OJ make for a good drink. And my Grovers goes away.

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@frogger

I buy cilantro and freeze in freezer bags. Usually a half stalk in each. Take one bag, put in blender with a small carton of Yoplait yogurt, add orange juice and liquefy into a smoothie. Makes enough for 2 glasses. I take one glass per day. Was on the wagon for a year but it’s come back a little so I’m back to smoothies. The yogurt and OJ make for a good drink. And my Grovers goes away.

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Been doing the smoothies for almost a year now, every day. I also freeze the cilantro, similar recipe. Although my Grovers has not disappeared, I feel that the smoothies have limited it's spread. Right now, I suffer from small localized rashes and itching that will change location on, essentially, my stomach. I am usually unaware of it during the day. If I do start to itch, generic hydrocortisone comes to a temporary rescue.

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