Grover's Disease

Posted by 43219876x @43219876x, Sep 23, 2016

I have been diagnosed with Grover’s disease under my breasts. I had a biopsy for diagnosis. Tried topical ointment with no really good results. Any ideas?

@nodgabnoj

Not sure whether or not you are itching. If you have GD and don't itch, that's surprising, but count yourself as fortunate. At any rate, I have found that Cera Ve itch relief cream is pretty effective for temporarily dealing with GD's symptoms. Welcome to the club !!

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Mercifully, I do not itch. And, at this point, mine looks like tiny brownish freckles on my stomach. My skin is not completely back to normal but it isn’t red either. I’m not sure if these are permanent changes or just old spots that will take time to heal.

To be honest, the largest and reddest thing on me is the punch biopsy mark.

Right now, I’m doing cilantro smoothies with collagen powder, taking chlorella, garlic, and Metalloclear (to help eliminate heavy metals), and cutting out all sugar, dairy, grains, and seafood (again, metals) from my diet. I’ve been doing this for just over two months. No miracle cure but it has been helping. My right collarbone started healing shortly after I went grain free. My stomach still has the tiny brown (or maybe deep maroon — just not red) spots but they appear to be fading painfully slowly.

As far as topicals, I use zinc oxide on GD and CeraVe lotion everywhere else. I’d love to be one of the transient cases but, for now, I’m treating it as something systemic, likely caused by my environment or diet.

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I have been Grovers free for about a year now. I continued with the cilantro long past the time that Grovers disappeared JUST IN CASE! Recently, I have a cilantro shake only about once a week. On the GD Facebook site I continue to read that many have obtained success using Gold Bond powder. One person did an experiment and used a prescription on one half of her chest/midriff and Gold Bond on the other half. 4 to 6 weeks later she showed her derm the results. The Gold Bond side was completely clear. The prescription drug side was hardly clearing at all. She had been a GD sufferer for years. There are many other reports of the Gold Bond powder helping. Apparently, it is the menthol in the powder. She used extra strength. I am mentioning this because it might be something to try. I shall do so if my GD returns.

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@mariannj

I have been Grovers free for about a year now. I continued with the cilantro long past the time that Grovers disappeared JUST IN CASE! Recently, I have a cilantro shake only about once a week. On the GD Facebook site I continue to read that many have obtained success using Gold Bond powder. One person did an experiment and used a prescription on one half of her chest/midriff and Gold Bond on the other half. 4 to 6 weeks later she showed her derm the results. The Gold Bond side was completely clear. The prescription drug side was hardly clearing at all. She had been a GD sufferer for years. There are many other reports of the Gold Bond powder helping. Apparently, it is the menthol in the powder. She used extra strength. I am mentioning this because it might be something to try. I shall do so if my GD returns.

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That’s interesting as my zinc oxide has menthol in it. It is 0.44% rather than Gold Bond’s 0.8% but it seems to help. The one time I tried a different brand of zinc oxide without menthol and with balsam of Peru, it was a disaster.

So there could be something to that!

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What strength GB powder do you use, original .15% menthol or extra strength .8%? Zinc is a heavy metal and ingredient in GB powder but it is helping some. I think your idea about a weekly cilantro shake sounds good. As I have mentioned I took massive amounts of cilantro for 8 months and started noticing dark spots on my face about 7 months after my shakes started, a true side effect of too much cilantro, check internet Now 6 months later the spots are starting to fade.
I've started using a low percentage, 20%, pure zinc oxide ointment as a sunscreen on my face and neck. Only other ingredients are mineral oil and petroleum. It seems to be enough to protect and not noticing any break out on skin; even the safest sunscreens will cause facial irritation if used for multiple days. Surprisingly it does blend in fairly well, not wearing a white mask.

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JustMeMyself- The zinc oxide ointment I ordered on the internet is in a 16oz jar, Rugby. No fragrance: active ingredient zinc oxide 20%, inactive just mineral oil and petrolatum. I avoid all products with fragrances and Balsam of Peru is a big no no for many.
Would you tell us the name of the .44 % zinc oxide you use with and menthol? That could also be helpful for my husbands jock itch which he gets once the summer heat kicks in.

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I just Googled GD and it's link to mercury. I don't remember seeing any posts about the relationship between the two, mostly about Aluminum. Apparently there is a probability that high levels of mercury can cause an outbreak of GD. Not sure whether or not this has been addressed.

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Even if cilantro doesn't help some with their GD, both cilantro and chorella remove mercury from the body, yet couldn't find dosing info.
I did read that after injesting cilantro for 45 days it removes 87% of lead 91% of mercury and 74% of aluminum.

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The research linking Grover's Disease to high mercury levels is scant. One researcher, Dantzig, has published most of the articles linking the two. The fact that so many on this site have responded to ingestion of cilantro and chlorella implies heavy metal in etiology because these two foods are known to be detox agents for heavy metals. The problem is that the research of Grover's Disease is scant and dermatologists don't seem all that interested. We're on our own here, pretty much.

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@mariannj

I have been Grovers free for about a year now. I continued with the cilantro long past the time that Grovers disappeared JUST IN CASE! Recently, I have a cilantro shake only about once a week. On the GD Facebook site I continue to read that many have obtained success using Gold Bond powder. One person did an experiment and used a prescription on one half of her chest/midriff and Gold Bond on the other half. 4 to 6 weeks later she showed her derm the results. The Gold Bond side was completely clear. The prescription drug side was hardly clearing at all. She had been a GD sufferer for years. There are many other reports of the Gold Bond powder helping. Apparently, it is the menthol in the powder. She used extra strength. I am mentioning this because it might be something to try. I shall do so if my GD returns.

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I just bought my Gold Bond powder yesterday. It does make a bit of a difference. Thanks for mentioning it.

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@gardeningjunkie

Even if cilantro doesn't help some with their GD, both cilantro and chorella remove mercury from the body, yet couldn't find dosing info.
I did read that after injesting cilantro for 45 days it removes 87% of lead 91% of mercury and 74% of aluminum.

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Thanks. I've been taking the cilantro for at least 45 days and will continue to do so.

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Everyone here seems to have their own method, their own partial solution. Here's one I found just recently when I thought my skin was 'on fire' yet itchy beyond belief. I couldn't sleep at all, skin was hot, hot hot, even with A/C on. So I started cooling my skin with cold wet cloths. I did this 3X & after about 1 hr, I even felt calmer, my itch was at bay, my head was calm. This was at 1:00 a.m. I laid down to sleep & voila I did until about 6:30. The same scenario happened again last night(06/10/2020) so I did the same cool down procedure and once again I felt better & my itches were temporarily calmed to the point I could fall asleep. My treatment regimen looks like this: Right now I am having UV phototherapy, Accutane, and Blestex an anti-histamane, Lyrica, and a store full of anti-itch creams, ointments, including Zinc-Oxide, EmuAide, CortAide, & more. I'm still convinced it is related to the metal in my blood,Aluminum. Getting re-tested next week. More to come. As I write this I am obsessed with scratching everywhere!

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A newcomer to this site so I really don't know how it works. . I was diagnosed last August with Grovers and nothing prescribed or recommended relieved the symptoms. Blood work showed I was deficient in vitamin D3. I started 2000ius a day and within two weeks the GD cooled down and disappeared. The systoms returned this April while self isolating because of Covid-19. I went to 5000 Ius of D3 daily and again the symptoms faded. My dermotolgist poo-poos my findings but for what it may be worth, this is my experience.

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