Grover's Disease

Posted by 43219876x @43219876x, Sep 23, 2016

I have been diagnosed with Grover’s disease under my breasts. I had a biopsy for diagnosis. Tried topical ointment with no really good results. Any ideas?

@grovercleveland

My previous of 30 years retired last year. His practice shutdown. But a new doctor working out of the same location. I made an appointment a month ago and saw him the first time today. I was surprised. He actually heard about cillantro. I told him I heard about it om Mayo-Connect. He will connect himself. This might be the beginning of something new.
PS: got a blender a chopped up 1/2 a bunch with water a frozen blue berries. Could not taste the blue berries, but I found that if I pinched my nose while drinking it, it went down quick and I only notice when I let my nose work.

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You'll get over pinching your nose. Our tastes will adjust some. I gagged on cooked carrots as a child and love them now, yep, I had to eat them to leave the table. Like frogger I add yogurt, but love the probiotic whole milk plain to which I add a bit of Stevia (the only sweetener allowed on my anti-inflammation diet. I avoid all processed sugar which many flavored yogurts add. Banana does help moe then any other fruit to balance the flavor somewhat. I peel bananas, slice into 2 inch pieces, freeze and put about 3-4 pieces in the smoothie. They don't turn black. Frozen banana takes the place of ice and find like nodgabnoj a smoothie of any type is better cold.

Liked by MariannJ

REPLY
@grovercleveland

My previous of 30 years retired last year. His practice shutdown. But a new doctor working out of the same location. I made an appointment a month ago and saw him the first time today. I was surprised. He actually heard about cillantro. I told him I heard about it om Mayo-Connect. He will connect himself. This might be the beginning of something new.
PS: got a blender a chopped up 1/2 a bunch with water a frozen blue berries. Could not taste the blue berries, but I found that if I pinched my nose while drinking it, it went down quick and I only notice when I let my nose work.

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Glad to learn that your doctor is aware that cilantro is helping. I sure wish an MD had shared this information with me, even if only about 45% of us are helped by cilantro, that's a huge percentage.

Liked by MariannJ

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Hi ! Thank you for the information on Cilantro. I've been adding a handful to what I call my "Kitchen sink" Smoothie (Blue, Black, Raze, Straw and Cran-berries with Banana, Olive oil, Plain yogurt ,Apple with a little Pom. Juice, all organic) I've been adding the Cilantro every day for abut a week and a half. I think it's helping some. My question is how long do you use it at first and did you continue with the topical medication ? I am very fortunate in that the Grover's is concentrated mostly on my chest and I have no itching. I believe I got it due to Six days a week in the gym and Steam room. Thank you for any advice and for your time.

Liked by gardeningjunkie

REPLY
@potts

Hi ! Thank you for the information on Cilantro. I've been adding a handful to what I call my "Kitchen sink" Smoothie (Blue, Black, Raze, Straw and Cran-berries with Banana, Olive oil, Plain yogurt ,Apple with a little Pom. Juice, all organic) I've been adding the Cilantro every day for abut a week and a half. I think it's helping some. My question is how long do you use it at first and did you continue with the topical medication ? I am very fortunate in that the Grover's is concentrated mostly on my chest and I have no itching. I believe I got it due to Six days a week in the gym and Steam room. Thank you for any advice and for your time.

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Took every day for 7 months. But nothing except half a stalk/bunch of cilantro, one Yoplai yogurt container, and orange juice. Blended and drank. Nothing else was needed. Tasted good. I kept it simple and easy. That worked. and kept Grover’s at bay.

Liked by gardeningjunkie

REPLY
@potts

Hi ! Thank you for the information on Cilantro. I've been adding a handful to what I call my "Kitchen sink" Smoothie (Blue, Black, Raze, Straw and Cran-berries with Banana, Olive oil, Plain yogurt ,Apple with a little Pom. Juice, all organic) I've been adding the Cilantro every day for abut a week and a half. I think it's helping some. My question is how long do you use it at first and did you continue with the topical medication ? I am very fortunate in that the Grover's is concentrated mostly on my chest and I have no itching. I believe I got it due to Six days a week in the gym and Steam room. Thank you for any advice and for your time.

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I did a similar time period as fogger, just a month longer. It would help you to make a cup of tea, prop your feet up, go back mid Feb 2019 and read this entire blog. Good info from real people with GD experimenting with alternative treatments since the prescription steroids or other meds doctors prescribe never helped most of us.

Liked by MariannJ, potts

REPLY
@potts

Hi ! Thank you for the information on Cilantro. I've been adding a handful to what I call my "Kitchen sink" Smoothie (Blue, Black, Raze, Straw and Cran-berries with Banana, Olive oil, Plain yogurt ,Apple with a little Pom. Juice, all organic) I've been adding the Cilantro every day for abut a week and a half. I think it's helping some. My question is how long do you use it at first and did you continue with the topical medication ? I am very fortunate in that the Grover's is concentrated mostly on my chest and I have no itching. I believe I got it due to Six days a week in the gym and Steam room. Thank you for any advice and for your time.

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I am on month 10 and still do it daily. I never had any itching but I am now left with some fading post-inflammatory hyperpigmentation and brown spots (look like small moles but are residual Grover’s). My problems started in November 2019 and got far worse after my derm prescribed an antibiotic thinking it was folliculitis. That made it explode across my stomach.

I do not know if the hyperpigmentation and raised brown spots will ever fade away completely but it still beats that ugly red mess.

So, in short, be patient and stick with it for a while. Some online forums say 1-2 months or even shorter (weeks). That is not always the case.

Best of luck!

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@justmemyself

I am on month 10 and still do it daily. I never had any itching but I am now left with some fading post-inflammatory hyperpigmentation and brown spots (look like small moles but are residual Grover’s). My problems started in November 2019 and got far worse after my derm prescribed an antibiotic thinking it was folliculitis. That made it explode across my stomach.

I do not know if the hyperpigmentation and raised brown spots will ever fade away completely but it still beats that ugly red mess.

So, in short, be patient and stick with it for a while. Some online forums say 1-2 months or even shorter (weeks). That is not always the case.

Best of luck!

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Thank you all !

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I was recently just diagnosed… well let’s say it came back with two possibilities from my biopsy. Grovers of DH (celiac). Though celiac runs in my family but DH doesn’t. I don’t eat a Hugh gluten diet but my dermatologist thinks it is DH verses grovers. My rash started under one breast over the summer (1.5 years ago) and I was put on steroids. When I came off the steroids it flared up and spread to my stomach, back, head, elbows, and legs Bikini line is best to describe in and continues to move down my legs. The first biopsy I had last year said I had eczema. I have been diagnosed with autoimmune diseases of MCTD and Sjögren’s. I have a tub of steroid cream and not working… she is putting me on dapsone and if it works then it is really DH but I would love to hear more about the cilantro people are mentioning. How much and often? What do you mix it with or eat it plan? How long until you saw improvement? I am desperate to find relief.

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@potts

Thank you all !

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I initially used steroids and then a demonologist suggested neotigason -Acitretin and that with cilantro have been a winner , when necessary and sparingly i use Eleuphrat cream on an itchy spot

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@rhubarby2

I was recently just diagnosed… well let’s say it came back with two possibilities from my biopsy. Grovers of DH (celiac). Though celiac runs in my family but DH doesn’t. I don’t eat a Hugh gluten diet but my dermatologist thinks it is DH verses grovers. My rash started under one breast over the summer (1.5 years ago) and I was put on steroids. When I came off the steroids it flared up and spread to my stomach, back, head, elbows, and legs Bikini line is best to describe in and continues to move down my legs. The first biopsy I had last year said I had eczema. I have been diagnosed with autoimmune diseases of MCTD and Sjögren’s. I have a tub of steroid cream and not working… she is putting me on dapsone and if it works then it is really DH but I would love to hear more about the cilantro people are mentioning. How much and often? What do you mix it with or eat it plan? How long until you saw improvement? I am desperate to find relief.

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You do have lots going and like you I had a difficult time getting a diagnosis. Grover's isn't suppose to run in families, yet my sister has it also. It is possible to have multiple types of eczema, I do. You mention rash on elbows and legs but I am wondering if that is a different form of eczema than GD. Typically GD doesn't manifest in those areas. Have you been tested for Allergic Contact Dermatitis, ACD? Look up 5 Day Extended Patch Test. Very few of us get relief from steroids with GD. I never did, yet they would help with my one of my other forms of eczema, ACD is helped by steroids when symptomatic. What is MCTD? What you need to do is to go back to Feb or March of 2019 in this blog because it really is a long story to retell. Kimass1 is the blogger who brought it to our attention. You can follow our personal successes and failures trying cilantro. We are stumbling and just guessing on how much to use because there is so little info about this herbal treatment. My derms never heard of it. We share our recipes, how much cilantro we use, how to keep it fresh longer in the refrigerator and how to freeze. We share when we start to notice improvement and how long it takes to be certain we are in remission. Also even in remission many of us have scabs which no longer itch, but simply don't fall off for months. I think it took a full year for every single scab to drop off. None of us had success with cilantro tablets.

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@daly

I initially used steroids and then a demonologist suggested neotigason -Acitretin and that with cilantro have been a winner , when necessary and sparingly i use Eleuphrat cream on an itchy spot

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I never heard of the treatments you are using, but thanks for sharing your treatments because so few of us get relief from prescription meds for GD. If I become symptomatic again I will look up the products you mention to learn more about them. Thanks.

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@gardeningjunkie

I never heard of the treatments you are using, but thanks for sharing your treatments because so few of us get relief from prescription meds for GD. If I become symptomatic again I will look up the products you mention to learn more about them. Thanks.

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Acitretin is an oral retinoid (vitamin A derivative). A brand name is Soriatane. It is used for treating severe skin conditions like psoriasis but is not gentle and definitely not something to be taken lightly as it has side effects and interactions that need to be monitored.

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@rhubarby2

I was recently just diagnosed… well let’s say it came back with two possibilities from my biopsy. Grovers of DH (celiac). Though celiac runs in my family but DH doesn’t. I don’t eat a Hugh gluten diet but my dermatologist thinks it is DH verses grovers. My rash started under one breast over the summer (1.5 years ago) and I was put on steroids. When I came off the steroids it flared up and spread to my stomach, back, head, elbows, and legs Bikini line is best to describe in and continues to move down my legs. The first biopsy I had last year said I had eczema. I have been diagnosed with autoimmune diseases of MCTD and Sjögren’s. I have a tub of steroid cream and not working… she is putting me on dapsone and if it works then it is really DH but I would love to hear more about the cilantro people are mentioning. How much and often? What do you mix it with or eat it plan? How long until you saw improvement? I am desperate to find relief.

Jump to this post

I have had GD for over a year now. Oral steroids did work for me, but not something you should take for any length of time. I've been drinking the Cilantro smoothies for about a year. They seem to limit my outbreaks. The itching and rashes are not nearly as bad as they were before I started to drink them regularly. I drink them every day. I buy several bunches of Cilantro, cut off the very bottoms as they are generally dirty, wash them thoroughly, split each bunch in half, put them in plastic bags and freeze them. I generally blend them with some juice, yogurt, honey and some fruit. I blend them really well, and the cilantro flavor really disappears. I also put in two crushed tablets of Lysine, for the itching, as well. The colder, the better. Experimentation will eventually lead you to a palatable drink. I hope this is of value to you. I read this site every day as the information here is better than any than what you'll hear from most doctors. Good luck.

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@justmemyself

Acitretin is an oral retinoid (vitamin A derivative). A brand name is Soriatane. It is used for treating severe skin conditions like psoriasis but is not gentle and definitely not something to be taken lightly as it has side effects and interactions that need to be monitored.

Jump to this post

Thanks for the explanation. When symptomatic I used the prescription Calcipotriene Cream. It's a synthetic vitamin D3 used for psoriasis which slows the growth of cells down. Thank goodness I had insurance; it was expensive. I used it out of desperation even though I don't think it made any difference. I thought if my rash is this bad using it maybe it would be worse if I quit using it.

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@gardeningjunkie

You'll get over pinching your nose. Our tastes will adjust some. I gagged on cooked carrots as a child and love them now, yep, I had to eat them to leave the table. Like frogger I add yogurt, but love the probiotic whole milk plain to which I add a bit of Stevia (the only sweetener allowed on my anti-inflammation diet. I avoid all processed sugar which many flavored yogurts add. Banana does help moe then any other fruit to balance the flavor somewhat. I peel bananas, slice into 2 inch pieces, freeze and put about 3-4 pieces in the smoothie. They don't turn black. Frozen banana takes the place of ice and find like nodgabnoj a smoothie of any type is better cold.

Jump to this post

Tastes Good Now. I take it STRAIGHT!
Now that I have Blender and Juicer, I drink Broccoli; for Colon Health, Carrots ;A for my skin. So much easier than cooking. and more uniform quantity.
A new note about my neuropathy. I visited dermatologist (after original blister breakout) and used Triamcinolone cream 0.1% for 2-1/2 weeks. It cleared blisters and stopped itching. I went for a followup visit with 2 comlaints; Pins and needles here and there (reminded me of back injury I had years ago), and Red Itchy hands. The Derm said i have Neuropathy (from vertebra ?)
I asked why did this happen right now (after 2-1/2 weeks steroid) He said it was my age. Sounded fishy to me. Too coincidental with steroid use. So, what do you guys know about getting Neuropathy?

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