Grover's Disease

Posted by 43219876x @43219876x, Sep 23, 2016

I have been diagnosed with Grover’s disease under my breasts. I had a biopsy for diagnosis. Tried topical ointment with no really good results. Any ideas?

@billjim651

I have had GD for almost 2 years, (Biopsy confirmed), and have relied on Corticosteroid cream for relief. Recently I was prescribed oral Prednisone for 12 days for an unrelated inflammatory condition and enjoyed 14 days of "no itch heaven" . I have read an article in a U.S.publication, (I live in Australia), which contained the comment – "oral prednisone is very common", in the treatment of GD and was wondering if you have any knowledge of clinical results which might back up this statement, especially with regard to mild dosage extended use.

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I never took oral (meaning pills) prednisone. Topical steroids did nothing. I got an annual corticosteroid shot, Kenalog 40 each Dec 1 for years which stopped my internal Allergic Contact Dermatitis internal symptoms of burning, itching and taser like stinging in its tracks but did not help with GD when symptomatic. The shots never shortened my recurring break out length or pain and itching with GD. Did you say you tried the cilantro smoothies yet? A 50% chance of cilantro helping you with GD is better than any chance you have of prednisone helping you. Forgive me if I repeat myself, but have you read our blog starting around mid March with the post by Kimass1 referring us to the earthclinic blog on GD with cilantro?
Side note, because of following a rigid anti-inflammation diet I didn't even get my Dec 1 2018 corticosteroid shot and will not need one again this year on Dec 1 2019. Of the many things I now must restrict or severely limit- zero processed sugar for life is hard to accept but a small sacrifice to feel good again. After 6 months of detoxing sugar holds no interest for me and now it's easy to pass it up. Sugar withdrawal lasts a long time and I am not willing to go through it again.

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Have not yet tried the smoothies – was hoping to avoid the cilantro taste by swallowing a pill. I have contacted Kimass1 and read many of the comments by others, and now have a reasonable library from the blogs to work through. Many thanks for your detailed response. Best regards.

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Oral Prednisone was the only thing that relieved my itch. I did not like the side effects of extended use, but would endure them not to itch. I gained about 8 pounds after a few months and my mood was affected…(I was bitchy..lol) BUT I was also miserable when I was itchy and didn't sleep so the trade off for me was ok. However, please know that extended use is different for each person and it is not recommended. The Cilantro was a life saver for me. If you are not one of the lucky ones, then you will need to read through all the threads and try, try try and try again each remedy.

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@billjim651

Have not yet tried the smoothies – was hoping to avoid the cilantro taste by swallowing a pill. I have contacted Kimass1 and read many of the comments by others, and now have a reasonable library from the blogs to work through. Many thanks for your detailed response. Best regards.

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I always wonder if you or others who resist cilantro because of the taste did or are not suffering as much as I was. GD was dramatically limiting my activities too. Desperately seeking pain relief which no px helped with I was eager to try anything, even if it wouldn't taste good. Ironically after 8 months now the taste is no longer offensive to me. I do add a pinch of Stevia. It simply tastes refreshing. Now it's a daily habit, my morning "tonic" with breakfast. You are reading the blog which kimass1 informed us about cilantro and has many of our tips on storage. This is the challenge. It is time consuming to shop for it, wash it, dry and store property if you want to keep it fresh for at least 5 days. I do keep some in the freezer if I run out, but rarely need to use it.

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http://www.mercurygroversandparkinsonsdisease.com Interesting site connecting mercury to Grover's and Parkinsons

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@mariannj

http://www.mercurygroversandparkinsonsdisease.com Interesting site connecting mercury to Grover's and Parkinsons

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MariannJ- Your post is mind blowing!!!!! My sister and I both got GD in our mid 60's, my brother got Parkinson's in his mid 60's. We all had mercury fillings; my brother who went to bed sucking on Milk Duds went in one time for dental check up at age 10 and had 22 fillings My sister and I only have a few. No one else in our lineage that we are aware of had GD or Parkinson's. The connection between GD and Parkinson's does seem like more than coincidence.

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@mariannj

http://www.mercurygroversandparkinsonsdisease.com Interesting site connecting mercury to Grover's and Parkinsons

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Wow – I live only two miles from a coal burning power plant & my step-father died of Parkinson's

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YOUTUBE.COM Grover's disease (Transient Acantholtytic Dermatosis): 5-Minute Pathology Pearls I don't know how to post a link to this site but I imagine you can go to YOUTube and type in the title. It is the pathology with a dermatologist giving a very good explanation of what happens to the skin and how to identify it.

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@gardeningjunkie

MariannJ- Your post is mind blowing!!!!! My sister and I both got GD in our mid 60's, my brother got Parkinson's in his mid 60's. We all had mercury fillings; my brother who went to bed sucking on Milk Duds went in one time for dental check up at age 10 and had 22 fillings My sister and I only have a few. No one else in our lineage that we are aware of had GD or Parkinson's. The connection between GD and Parkinson's does seem like more than coincidence.

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@gardeningjunkie I also have had fillings in most of my teeth since early years due to an enamel deficiency and my teeth crumbling, even baby teeth. Hopefully, all those fillings are long gone. When I was a child all of the homes in our village were heated by coal. Don't know if that also counts.

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I lived in an area with ideal weather, winter and summer for most my life and coal was not used anywhere. I only have 4 amalgam fillings and even though they have held up now for 60 years I considered having them replaced with gold or ceramic because of numerous metal allergies I have, but read that the removal process releases mercury and after all these years not much is leaching from the top. Did you have your had your fillings replaced?
I appreciate the informative sites you send us to and hopefully get to the YOUTube site soon.

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@gardeningjunkie

I lived in an area with ideal weather, winter and summer for most my life and coal was not used anywhere. I only have 4 amalgam fillings and even though they have held up now for 60 years I considered having them replaced with gold or ceramic because of numerous metal allergies I have, but read that the removal process releases mercury and after all these years not much is leaching from the top. Did you have your had your fillings replaced?
I appreciate the informative sites you send us to and hopefully get to the YOUTube site soon.

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@gardeningjunkie I will check with my dentist on my next visit to see if anything bad is left in my mouth. I think each case is personal since many older people lived with those fillings forever and never got Grover's. Sometimes it is just a case of the perfect storm.

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I have been drinking the cilantro smoothie for 68 days now and 9 days ago I began reducing my accutane does to 10mg every other day and I am noticing that my itching has began to increase again. I'm so frustrated as I was doing really well on the cilantro andd 10mg everyday but I wanted to get off. I'm not getting any new red bumps or rashy spots, it's just the itch. I am now 3 weeks away from my cruise and I'm even more stressed about not having cilantro for a week. I was hoping my year long battle was finally over, but now I don't know what to do. I'll keep up with cilantro, but do I go back up to 10mg everyday and see if the itch improves again? I am only 37 and can't believe how bad this has affected my daily life.

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Carrie, i have generally been following the cilantro smoothie every day as well. Miss some every so often. I have also gone long weekends without the smoothies and taking the cilantro pills. I have very similar symptoms to you; very little rash, lots of itch, especially the back, upper chest and sometimes arms. What is funny is that when i am spending time away, the itch at times goes away – i actually think its because i get busy and my mind isnt focused on it as much. I have gone four days without the smoothie and no pills. I sort of stay off of it until the itch starts coming back. I am a little frustrated as regardless of the smoothie, the itch still comes up – i use a bunch of creams that seems to satisfy the itch – usually lasts about half a day. The cilantro seems to handle the rash; the itch no so much.

Might suggest the following …. get the cilantro pills – i take three a day when im not drinking the smoothies. I use Lubriderm and Sarna (the menthol one) together for the cream – it definitely removes the itch. When it comes back, i get to a private spot and just reapply. You may need to do it a few times a day. Finally, i don't know where you are going, but if its nice and warm and sunny, i have found the SUN helps enormously. Partly as i have less clothes on but also my dermatologist says its the UV rays (similar to light treatment).

Good luck.

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@carrie14

I have been drinking the cilantro smoothie for 68 days now and 9 days ago I began reducing my accutane does to 10mg every other day and I am noticing that my itching has began to increase again. I'm so frustrated as I was doing really well on the cilantro andd 10mg everyday but I wanted to get off. I'm not getting any new red bumps or rashy spots, it's just the itch. I am now 3 weeks away from my cruise and I'm even more stressed about not having cilantro for a week. I was hoping my year long battle was finally over, but now I don't know what to do. I'll keep up with cilantro, but do I go back up to 10mg everyday and see if the itch improves again? I am only 37 and can't believe how bad this has affected my daily life.

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Yes Carrie14, you are so young. I didn't have to deal with GD until my mid 60's. Yes it does limit my daily life when active. I had been symptom free for a year as the cilantro helped me and made the most of it. Starting up again, even on cilantro, but not enough to slow me down one bit yet and plan an active and full day for today.
Is this your first breakout? My first one was extremely severe and lasted 1 year and this is typical. My outdoor activities came to a halt. I hope you eventually get into pattern where you go into remission from time to time and when you do you will make the most of it like the rest of us.

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I am going to the Caribbean so it will be warm and sunny, although I am terrified of getting sunburned. I do have the pills and took them when I was away for 3 days about a month ago, but I was also taking accutane daily as well. This is my first breakout and it's been officially over a year now. I do hope to have some kind of remission as this is taking such a toll on my life. I try to push through the pain and enjoy my kids as if nothing is wrong, but I can't help but be hyper focused on the itch and checking everyday to see if a new rash pops up. I stopped taking the antivirals for my monthly cold sores and I feel like that helped the rash and redness dissipate, but this itch won't go away. I so badly wanted to wean off the accutane and find that I was rash and itch free so I could get back to a normal life before this all started, but it's not looking that way. I need to go get some Sarna and see if that might help. I work at a school and so I interact with a lot of people and worry about the menthol smell. I don't like to talk to anyone besides my husband about my skin issues and even talking to my dermatologist causes me anxiety and I end up turning bright red from my chest up to my neck, it's SO embarrising. I take medication for that but it's not foolproof. I just feel like these last two years of my life have just been one issue after another compounding on top of eachother and I don't seem to get any relief.

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