Grover's Disease: What works to help find relief?

Posted by 43219876x @43219876x, Sep 23, 2016

I have been diagnosed with Grover's disease under my breasts. I had a biopsy for diagnosis. Tried topical ointment with no really good results. Any ideas?

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Some time back someone reported that a leading Dermatologist based in the USA emphatically stated that Shinglex vaccine was responsible for Grovers disease I believe this as my GD only arrived after receiving the vacs Why hasn't the manufacture of this been investigated ??

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@johnfraser

Some time back someone reported that a leading Dermatologist based in the USA emphatically stated that Shinglex vaccine was responsible for Grovers disease I believe this as my GD only arrived after receiving the vacs Why hasn't the manufacture of this been investigated ??

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I called the Shingrix hotline twice and told them I was pretty sure that the vaccine caused my Grovers. The first time the response was they could find no link between the vaccine and itching. The second time the woman on the other end did show a bit of compassion and said she would pass it on to the "powers that be". So much for that. Now they advertise the vaccine on tv. No mention of Grovers, of course.

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@nodgabnoj

I called the Shingrix hotline twice and told them I was pretty sure that the vaccine caused my Grovers. The first time the response was they could find no link between the vaccine and itching. The second time the woman on the other end did show a bit of compassion and said she would pass it on to the "powers that be". So much for that. Now they advertise the vaccine on tv. No mention of Grovers, of course.

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As expected I live in New Zealand and yesterday I made a full complaint about this to Medsafe the agency that protects us from this sort of thing!!

anxiously awaiting their reply

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@johnfraser

As expected I live in New Zealand and yesterday I made a full complaint about this to Medsafe the agency that protects us from this sort of thing!!

anxiously awaiting their reply

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Good luck. I'm dying to come to N.Z. Been to Oz often. Your Derm was spot on.

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@johnfraser

Some time back someone reported that a leading Dermatologist based in the USA emphatically stated that Shinglex vaccine was responsible for Grovers disease I believe this as my GD only arrived after receiving the vacs Why hasn't the manufacture of this been investigated ??

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I got very sick after the first and second Shingles vaccine. Wish I had never had it. I suspect a connection with the vaccine and Grover's disease as well. Because I had shingles about 20 years ago, getting the vaccine didn't seem necessary but I agreed after being persuaded by Kaiser. Symptoms are so similar hard not to make the association.

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I wound up with Grover's disease after the second Shingrix vaccination. For 10-12 weeks the blistery rash was driving me crazy. The Physician's Assistant termed it "angry". I also saw a dermatologist. Both doctors prescribed the steroid prednisone, and both times the rash nearly went away — until I ended the prescription! I read that the symptoms typically last 6-12 months — what? I read that cilantro could help, but it didn't improve my situation.

I turned to a local provider of homeopathic medicine and was (predictably) told prednisone only treats symptoms, not the underlying problem — I was desperate to try something/anything! I spent about $100-120 on a combination of three medicines (in each case, about a thirty day supply). It worked! I didn't turn the corner immediately, but by the time I finished the itchy rash was gone (that was about a month ago, and I am still doing fine). It may or may not work for others, but it sure worked for me. I am attaching a picture of the three medicines I took.

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@honestclifford

I wound up with Grover's disease after the second Shingrix vaccination. For 10-12 weeks the blistery rash was driving me crazy. The Physician's Assistant termed it "angry". I also saw a dermatologist. Both doctors prescribed the steroid prednisone, and both times the rash nearly went away — until I ended the prescription! I read that the symptoms typically last 6-12 months — what? I read that cilantro could help, but it didn't improve my situation.

I turned to a local provider of homeopathic medicine and was (predictably) told prednisone only treats symptoms, not the underlying problem — I was desperate to try something/anything! I spent about $100-120 on a combination of three medicines (in each case, about a thirty day supply). It worked! I didn't turn the corner immediately, but by the time I finished the itchy rash was gone (that was about a month ago, and I am still doing fine). It may or may not work for others, but it sure worked for me. I am attaching a picture of the three medicines I took.

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I should have added that while I was taking the three homeopathic medicines, I also started taking Zyrtec (over the counter allergy medicine). Initially, when the symptoms were raging, I took two tablets per evening (the dermatologist said I could), and as symptoms eased I took one tablet and finally none.

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@kg7382

@gteach I was just diagnosed this summer. I’m 46 and no health issues/medications. Started with a patch between my breasts that may have been there for a while hat I attributed to sweat/irritation from heat and working out. Then we had a hot and humid few days in June, and I had a severe break out across my chest and upper abdomen. I thought I had shingles it was so painful and itchy. I tried every OTC I could find. I finally called the dermatologist. He diagnosed me with Grover’s. He treated me with mometasone furoate 0.1%. It cleared up in about 2 weeks! I do use gold bond spray around my bra area especially if I’m going to workout. I don’t know if it helps or not but it hasn’t come back. Good luck and hope it clears up fast!!

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Hi! I’m 45 and diagnosed with GD almost a year ago. I have tried ointments and oral but nothing has helped. I’m currently on prednisone but interested in trying accurate next. Any suggestions? Also dies following a grain free diet help? Thank you!

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@krissm77

Hi! I’m 45 and diagnosed with GD almost a year ago. I have tried ointments and oral but nothing has helped. I’m currently on prednisone but interested in trying accurate next. Any suggestions? Also dies following a grain free diet help? Thank you!

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For me… Keeping my back cool, by sleeping in a hammock has helped. Perhaps even more has been Claritin in the morning and benadryl at night.

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For me. .. acitretin 25 mg/day

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@frjohn

For me… Keeping my back cool, by sleeping in a hammock has helped. Perhaps even more has been Claritin in the morning and benadryl at night.

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Keeping my back cool has helped me as well. I like your hammock idea, I rely on sleeping on my back and side. Daytime antihistamine in the morning and Benadryl at night is my routine, which helps. I hate getting dependent on Benadryl for sleep, but as you all know, the itching can be intolerable. In addition, I use ice packs on areas of the body when they first start to get inflamed. This calms the redness and inflation and often prevents the itching that follows.

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76 yr old white male diagnosed with Grover's. Rash has spread down arms to palms & back of hands and down to upper thighs, just started getting blisters, extremely itchy, head does not appear to have lesions but is also itchy, though not normally cold I feel chilled in 78* apartment. Also losing sleep.
Prescribed triamcinolone acetonide cream USP 0.1% and betamethasone dipropionate cream 0.05% by Dermatologist.
There were no dietary or environmental changes prior to onset.
Concerned that spread to palms of hands will limit use.
Is tetracycline likely mot help?

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