Connect
Grover's Disease: What works to help find relief?
I have been diagnosed with Grover's disease under my breasts. I had a biopsy for diagnosis. Tried topical ointment with no really good results. Any ideas?
Like
Helpful
HugInterested in more discussions like this? Go to the Skin Health Support Group.
Connect
thanks im going to make some cilantro pesto...I hope you are doing better...I have had it for years now that I think about it - one time on my eye lids after my husband passed so stress could have spawned that one. but it has really reared its ugly head this year particularly on my hands / fingers.
Honestly I haven't read about GD manifesting on the hands. I have 3 forms of eczema, GD is one yet my first form was Allergic Contact Dermatitis, ACD. The rash was on my hands, between fingers and on my palms. Crazy itching! Steroids did help me temporarily with this form, they are a treatment not a cure. Avoidance to allergens is key. It can happen at any age, but often it occurs in middle age like it did for me. ACD is caused by allergic contacts: fibers, preservatives, adhesives, metals and so on. Everyday chemicals and natural ingredients in clothing, dish soap, bedding, laundry soaps, make up, hand lotions, shoes, anything you have contact with. The 5 Day Extended Patch Test identifies your allergens, Google this test if you haven't already had it. The True Test is a common test kit ordered by specially licensed derms and allergists, not all derms are licensed to administer these test kits. It take 5 full days at a cost of $1,500 but is covered by most insurance and Medicare. It's not unusual to have several forms of eczema which have different causes and treatments. Go to dermnetnz.org and search for ACD and look at the mass of photos they have of your rash areas, you may find one that looks exactly like yours. While you are at it look at the GD rash sites, different types of eczema often have different rash characteristics and locations and I'd be surprised to see any GD hand rashes. For you I wondered about sailing if nylon ropes are used as I am allergic to nylon and also varnishes if you have a wooden tiller. For me toxic Dawn dish soap and using protective gloves with elements of rubber triggered my hand eczema ACD. Preservatives in hand lotions triggered me. Even the memory foam pillow and mattress I had were toxic. My body handled these elements for years but finally overreacted and tried to remove them from my body and thus my histamine army was raised, and this raised my inflammation levels all over my body.
my derm dr did tests to confirm I had grovers back in 2015, but after this episode it has affected my hands, arms and legs..where before it was my eyelids and upper torso. .I ordered the cilantro drops from amazon and have another Accupunture appt tomorrow. It has calmed some no blisters on my fingers but just very dry and scaly. Strangely I tried Avocado oil and it seems to calm down somewhat. Its a trial and error where you do not discount any treatment...I refuse to take any oral medications such as steroids
Yes you have GD, but you haven't explained if you were tested for other forms of eczema also. If. you have allergic contact allergies you need to identify them. Never assume you only have one form of eczema
I think Lysine helps to promote hair growth. I read it on some hair loss blog. If you're facing adverse effects, then you can contact your dermatologist.
Yes, I have taken it. I didn't have an adverse reaction but I stopped taking it and I don't remember why. I took much less than the label said. I put it in the bottom of a glass and filled the glass with water and drank what dissolved in the upper water layer. It binds very well with metals and you need to not use any metal utensils while preparing it or take at the same time you might be taking trace metals as supplements. I gave it to my horse for awhile. It was supposed to ease their stomach irritability. You also have to be careful about the source of bentonite clay - some are heavily contaminated with lead.
-
Like -
Helpful -
Hug
1 ReactionMany of us have exacerbations after sweating. I always simply wash with a wet washcloth (any temperature) and dry. Some people use witch hazel (it evaporates easily.) I have taken to using a hairdryer to dry all my creases after showering or any time I'm wet. I find that if I don't do that, I can get quite itchy, with or without a rash. The creases of my body tend to stay damp even after I dry with a towel. That includes the little dip above my clavicle, under my breasts, even though I am very small, where my thighs join my torso and even my butt crack and crotch area (sorry if TMI - it might help someone.) Where there's still a rash (which happens now only occasionally) I use a few drops clove oil mixed with CeraVe cream. Just make sure you wash your hands thoroughly after using clove oil because getting it anywhere on your face or near your sensitive eyes or mouth not fun. When I was in a full blown rash, I used clove oil straight. It burns so good (vs. itching so bad) and made the rash recede. I have posted this before, but insert here for newbies. Now I get an isolated bump in any random place on my body that itches so intensely, it almost feels like a bee sting. The clove oil, straight, makes it go away.
-
Like -
Helpful -
Hug
1 ReactionI wonder if we should circulate a letter to all of us with GD, sign it and send it to send it out to various agencies, including the Shingrix people, asking that there be at least some recognition of the connection between Shingrix and GD.
-
Like -
Helpful -
Hug
1 Reaction@gardeningjunkie, I think you misunderstood. I was saying that you had concluded that the drops DON'T work, but from what I could recall from my reading of all the posts from early 2019 and all subsequent posts, only one person mentioned that they were trying the cilantro drops, and if that is accurate, then there is no way to conclude that the drops don't work. If you were to hear only from the estimated 50% of people for whom fresh cilantro doesn't work, you would mistakenly conclude that it doesn't work either. Did the earthclinic GD blog people only experiment with fresh cilantro too? If so, all I am getting at is that it is way too early to conclude that the drops don't work because there is almost nobody who has tried them for GD, at least people on this forum. More people willing to experiment with them would be ideal, but there is no way I personally want to tell anyone how to go about dealing with their situation.
STAY GD FREE!
@babbs, "It burns so good vs. itching so bad" ? LOL, I can definitely identify with that! I am hesitant to admit this, but there have been times in the past when one of my sores was itching so badly that I would gouge it out of the surface of my skin because the subsequent pain was far easier to take than the previous itching. Dumb, but effective. After seeing your previous posts about clove oil, I tried it on one particularly annoying sore and it did help. THANKS!