Grover's Disease: What works to help find relief?

Posted by 43219876x @43219876x, Sep 23, 2016

I have been diagnosed with Grover's disease under my breasts. I had a biopsy for diagnosis. Tried topical ointment with no really good results. Any ideas?

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A cilantro extract (herb pharm sold at Whole Foods, amazon, etc.) has completely cleared by Grover's. I take one full dropper a day. My trunk and chest were covered in red bumps a month ago, and it has all cleared up (after 10 years of dealing with Grover's). Not sure these results are translatable to everyone, but I hope so. Was just at my dermatologist and he was amazed given the general lack of a cure (topical steroids hadn't worked for me).

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One full dropper a day is a HUGE dose of that stuff! Sometimes that can lead to nasty detox reactions, but If it worked for you, fantastic!

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@mrj

A cilantro extract (herb pharm sold at Whole Foods, amazon, etc.) has completely cleared by Grover's. I take one full dropper a day. My trunk and chest were covered in red bumps a month ago, and it has all cleared up (after 10 years of dealing with Grover's). Not sure these results are translatable to everyone, but I hope so. Was just at my dermatologist and he was amazed given the general lack of a cure (topical steroids hadn't worked for me).

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I was diagnosed with Grover's about 30 years ago after moving to Hawaii. Topical steroids have never really worked that well. When it gets really bad I have to take Prednisone. However, my derm recently prescribed the antibiotic Cephalexin. Gone after only a couple days! Holy Crap! And, it's having a hard time coming back. So, I rub a little triamcinolone which takes care of it. Keeping fingers crossed. Might even try sun bathing. That always has aggravated it but maybe not now after the antibiotics.

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@kidgrovers

I was diagnosed with Grover's about 30 years ago after moving to Hawaii. Topical steroids have never really worked that well. When it gets really bad I have to take Prednisone. However, my derm recently prescribed the antibiotic Cephalexin. Gone after only a couple days! Holy Crap! And, it's having a hard time coming back. So, I rub a little triamcinolone which takes care of it. Keeping fingers crossed. Might even try sun bathing. That always has aggravated it but maybe not now after the antibiotics.

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That is fantastic! Thanks for the info. When you say your Grover's went away after only a couple days, do you mean that the red spots stopped itching, or did they actually go away? Sun bathing might be pushing your luck, but good luck if you give it a shot. Please keep us updated on how this situation goes for you moving forward. Congrats!

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@kidgrovers

I was diagnosed with Grover's about 30 years ago after moving to Hawaii. Topical steroids have never really worked that well. When it gets really bad I have to take Prednisone. However, my derm recently prescribed the antibiotic Cephalexin. Gone after only a couple days! Holy Crap! And, it's having a hard time coming back. So, I rub a little triamcinolone which takes care of it. Keeping fingers crossed. Might even try sun bathing. That always has aggravated it but maybe not now after the antibiotics.

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Please keep updating on your progress, thanks

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@locutus

That is fantastic! Thanks for the info. When you say your Grover's went away after only a couple days, do you mean that the red spots stopped itching, or did they actually go away? Sun bathing might be pushing your luck, but good luck if you give it a shot. Please keep us updated on how this situation goes for you moving forward. Congrats!

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The itching has stopped. The red spots are almost all gone. A couple of crusty ones here and there. Been out in the Hawaiian sun twice with no ill effects using 30spf. Still haven't used any more antibiotics.

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@kidgrovers

The itching has stopped. The red spots are almost all gone. A couple of crusty ones here and there. Been out in the Hawaiian sun twice with no ill effects using 30spf. Still haven't used any more antibiotics.

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If I see any change I spread a little triamcinolone on just for good measure. I've also almost totally eliminated processed foods.

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@kidgrovers

If I see any change I spread a little triamcinolone on just for good measure. I've also almost totally eliminated processed foods.

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How long you took the antibiotics?

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@gilgolani

How long you took the antibiotics?

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about a month

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I started 3 days ago 2x20mg Prednisone for 1 week 1x20mg 2nd week and 1x20mg every 2nd day for 1 week but on 3rd day no spots and zero itch Fantastic relief after 3 months of sleepless nights

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@johnfraser

I started 3 days ago 2x20mg Prednisone for 1 week 1x20mg 2nd week and 1x20mg every 2nd day for 1 week but on 3rd day no spots and zero itch Fantastic relief after 3 months of sleepless nights

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Be careful with the Prednisone. You don't want to take it over a period of time. If the itching returns when you stop the steroid, try Cilantro smoothies or the liquid. I've had great success with Them.

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I want to weigh in on the Prednisone. I have been on it for 19 months now for GCA. It is AWFUL and my Grover's came back for the second time while on it. I have had every side effect possible except for diabetes. The latest is neuropathy in my feet. I am post hip replacement 5 weeks today and all healing is taking slower because of the prednisone. Interestingly enough, the Grover's itching went away for a few weeks post surgery. I attribute it to the loading dose of dexamethasone they gave me before surgery as a precaution. It's back, and just starting to get worse. I have more cilantro in me than the farm, and use Sarna constantly so I will next try the tea tree lotion since I have some in my cabinet. Who know? It might work!!!!!!

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