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Getting Prepared for Summer with PD

Posted by @hopeful33250, Apr 30, 2017

As we enter the spring season and anticipate the summer months, with warmer temperatures, I was wondering how many of you have more Parkinson’s symptoms during the hot weather. I know that warm weather is certainly a problem for me. My gait and coordination in general become worse when I am in a hot car or walking in the sun. What is it like for you? Let’s discuss how we can cope with warmer temperatures.

Here is a blog from the Michael J. Fox website that discusses exercise in warmer temperatures. https://www.michaeljfox.org/foundation/news-detail.php?ways-people-with-parkinson-can-stay-active-in-the-heat. I’m looking forward to hearing from you, @chrisj2491 @denie57 @johnjames @trouble4343 @ggopher @tntredhead @aperob @caryp43 @burgle @macbeth @knightkris @mariemarie @pjsammy.

REPLY

I can’t remember if I told you or not but I lost my Tom known the 25th.  I am having a difficult time so please remember me in your prayers as we go through the last rites tomorrow with full military honors.TrishThe Redhead

@tntredhead

I can’t remember if I told you or not but I lost my Tom known the 25th.  I am having a difficult time so please remember me in your prayers as we go through the last rites tomorrow with full military honors.TrishThe Redhead

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@tntredhead Trish: The last I heard from you, your husband was in hospice care. I’ve been thinking about you. I’m so sorry for your loss. You must miss him terribly! My sympathies and prayers go with you and your family during this time. I trust that the service with full military honors will be a tribute to his life. Please stay in touch with us and let us know how you are doing. Teresa
Copy to: @IndianaScott and @colleenyoung

Just a note to let you all know ( @chrisj2491 @denie57 @johnjames @trouble4343 @ggopher @aperob @caryp43 @burgle @macbeth @knightkris @mariemarie @pjsammy) that i received a posting from one of our members, the spouse of a PD patient, who lost her husband on the 25th of this month. The funeral will be tomorrow. Please feel free to extend your sympathies to her. Her posting is under the discussion of “Getting Prepared for Summer with PD:” Just hit “Reply” to her post. Thanks for taking the time to extend your thoughts to her. Teresa

@tntredhead

I can’t remember if I told you or not but I lost my Tom known the 25th.  I am having a difficult time so please remember me in your prayers as we go through the last rites tomorrow with full military honors.TrishThe Redhead

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We veterans appreciate and understand his sacrifice and yours and you will be in our prayers. 

@tntredhead

I can’t remember if I told you or not but I lost my Tom known the 25th.  I am having a difficult time so please remember me in your prayers as we go through the last rites tomorrow with full military honors.TrishThe Redhead

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I feel for you. I am still mourning the loss of my mother. You will be with my thoughts and in my prayers. Please allow all around you to assist.

I know a women – late 70's know her for 5 years, with Parkinson's – gets stem cells every few years. I never saw her shake – she has a low voice but is Very Active and in pretty good health.Mari

Ì’m so sorry foŕ your lòse.
Prayers for strength ❤

@mari If you think your friend would like to share her story of PD with our Connect community, please invite her to join us. It would be interesting to hear about her stem cell treatment. Teresa

@tntredhead

I can’t remember if I told you or not but I lost my Tom known the 25th.  I am having a difficult time so please remember me in your prayers as we go through the last rites tomorrow with full military honors.TrishThe Redhead

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Dear Trish @tntredhead,
While we cannot physically be by your side, please know that you have virtual friends who are here whenever you need us. I invite you to join @IndianaScott, myself and others who are talking in this discussion group:
– Loss and Grief in Caregiving http://mayocl.in/2hBpFNf

I can imagine at a time like this words are hard to find. But here on Connect words are all we have. So even if you only write a brief message to say, “I need to hear from you today.” We’ll be there. We might not say the right things, but darn it, we’ll do our best.

@mari

I know a women – late 70's know her for 5 years, with Parkinson's – gets stem cells every few years. I never saw her shake – she has a low voice but is Very Active and in pretty good health.Mari

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@mari, do you know where does she get stem cells? Which city and hospital?Who is her doctor? Thank you!

@mari

I know a women – late 70's know her for 5 years, with Parkinson's – gets stem cells every few years. I never saw her shake – she has a low voice but is Very Active and in pretty good health.Mari

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Hi @gulfer,
I see that you have taken an interest in the effectiveness of stem cells in the treatment of Parkinson’s. The use of stem cell in Parkinson’s and other neurodegenerative diseases that cause progressive deterioration: Alzheimer’s disease, amyotrophic lateral sclerosis (ALS, also known as Lou Gehrig’s disease), multiple sclerosis and multiple system atrophy is still in early days.

There is a great deal of hope and a great deal of hype about stem cells. That is why Mayo Clinic offers a free consult service. When you call the consult service, they will tell you about the availability of approved stem cell therapy at Mayo Clinic and elsewhere and for what conditions. They can also tell you about research studies that are actively recruiting participants. Furthermore, you can add your name to a database to be notified when additional studies and information become available. You can learn more about the Consult Service here http://www.mayo.edu/research/centers-programs/center-regenerative-medicine/patient-care/clinical-services/regenerative-medicine-consult-service.
Or call 1-844-276-2003 to speak with one of our experts.

@tntredhead

I can’t remember if I told you or not but I lost my Tom known the 25th.  I am having a difficult time so please remember me in your prayers as we go through the last rites tomorrow with full military honors.TrishThe Redhead

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Colleen- Have you heard of people with Parkinson's ( which I have ) ever have severe jerking in their sleep ? JSOUTH

@tntredhead

I can’t remember if I told you or not but I lost my Tom known the 25th.  I am having a difficult time so please remember me in your prayers as we go through the last rites tomorrow with full military honors.TrishThe Redhead

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I kick like I’m in a race. It got some better once I was diagnosed and started Sinemet. Started Clonazepam recently but I don’t know if it affects the kicking yet. 

Steve 

@tntredhead

I can’t remember if I told you or not but I lost my Tom known the 25th.  I am having a difficult time so please remember me in your prayers as we go through the last rites tomorrow with full military honors.TrishThe Redhead

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Hi @johnjames

I am sorry that you have been dealing with so many health problems. Yes, activity during sleep is common with PD. I one time punched myself in the eye at night and my opthamologist thought I was a victim of domestic violence. He couldn't believe that PD folks can be that active while sleeping. We did a conversation on sleep problems on Connect, here is the link, https://connect.mayoclinic.org/discussion/sleep-disorders-parkinsons-video/. Please watch the video, it will help you will understand more about it.

I personally use a drug called Amantadine (it is usually prescribed for tremors) I find it helpful to use at night for the extra physical activity (that is the generic name for Symmetrel). It seems to help with the jerkiness, I understand there are others meds but this one works for me. Talk with your doctor and see what he/she suggests.

Nice to hear from you – keep in touch~

Teresa

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