Getting Prepared for Summer with PD

Posted by Teresa, Volunteer Mentor @hopeful33250, Apr 30, 2017

As we enter the spring season and anticipate the summer months, with warmer temperatures, I was wondering how many of you have more Parkinson’s symptoms during the hot weather. I know that warm weather is certainly a problem for me. My gait and coordination in general become worse when I am in a hot car or walking in the sun. What is it like for you? Let’s discuss how we can cope with warmer temperatures.

Here is a blog from the Michael J. Fox website that discusses exercise in warmer temperatures. https://www.michaeljfox.org/foundation/news-detail.php?ways-people-with-parkinson-can-stay-active-in-the-heat. I’m looking forward to hearing from you, @chrisj2491 @denie57 @johnjames @trouble4343 @ggopher @tntredhead @aperob @caryp43 @burgle @macbeth @knightkris @mariemarie @pjsammy.

Interested in more discussions like this? Go to the Parkinson's Disease group.

@tntredhead

I can’t remember if I told you or not but I lost my Tom known the 25th.  I am having a difficult time so please remember me in your prayers as we go through the last rites tomorrow with full military honors.TrishThe Redhead

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I kick like I’m in a race. It got some better once I was diagnosed and started Sinemet. Started Clonazepam recently but I don’t know if it affects the kicking yet. 

Steve 

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@tntredhead

I can’t remember if I told you or not but I lost my Tom known the 25th.  I am having a difficult time so please remember me in your prayers as we go through the last rites tomorrow with full military honors.TrishThe Redhead

Jump to this post

Hi @johnjames

I am sorry that you have been dealing with so many health problems. Yes, activity during sleep is common with PD. I one time punched myself in the eye at night and my opthamologist thought I was a victim of domestic violence. He couldn't believe that PD folks can be that active while sleeping. We did a conversation on sleep problems on Connect, here is the link, https://connect.mayoclinic.org/discussion/sleep-disorders-parkinsons-video/. Please watch the video, it will help you will understand more about it.

I personally use a drug called Amantadine (it is usually prescribed for tremors) I find it helpful to use at night for the extra physical activity (that is the generic name for Symmetrel). It seems to help with the jerkiness, I understand there are others meds but this one works for me. Talk with your doctor and see what he/she suggests.

Nice to hear from you – keep in touch~

Teresa

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