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Getting Prepared for Summer with PD

Parkinson's Disease | Last Active: May 31, 2018 | Replies (14)

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I can't remember if I told you or not but I lost my Tom known the 25th.  I am having a difficult time so please remember me in your prayers as we go through the last rites tomorrow with full military honors.TrishThe Redhead

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Replies to "I can't remember if I told you or not but I lost my Tom known the..."

@tntredhead Trish: The last I heard from you, your husband was in hospice care. I've been thinking about you. I'm so sorry for your loss. You must miss him terribly! My sympathies and prayers go with you and your family during this time. I trust that the service with full military honors will be a tribute to his life. Please stay in touch with us and let us know how you are doing. Teresa
Copy to: @IndianaScott and @colleenyoung

<br><br><br><br><br>We veterans appreciate and understand his sacrifice and yours and you will be in our prayers. <br><br>

I feel for you. I am still mourning the loss of my mother. You will be with my thoughts and in my prayers. Please allow all around you to assist.

Dear Trish @tntredhead,
While we cannot physically be by your side, please know that you have virtual friends who are here whenever you need us. I invite you to join @IndianaScott, myself and others who are talking in this discussion group:
- Loss and Grief in Caregiving http://mayocl.in/2hBpFNf

I can imagine at a time like this words are hard to find. But here on Connect words are all we have. So even if you only write a brief message to say, "I need to hear from you today." We'll be there. We might not say the right things, but darn it, we'll do our best.

Colleen- Have you heard of people with Parkinson's ( which I have ) ever have severe jerking in their sleep ? JSOUTH

I kick like I’m in a race. It got some better once I was diagnosed and started Sinemet. Started Clonazepam recently but I don’t know if it affects the kicking yet. 


Hi @johnjames

I am sorry that you have been dealing with so many health problems. Yes, activity during sleep is common with PD. I one time punched myself in the eye at night and my opthamologist thought I was a victim of domestic violence. He couldn't believe that PD folks can be that active while sleeping. We did a conversation on sleep problems on Connect, here is the link, https://connect.mayoclinic.org/discussion/sleep-disorders-parkinsons-video/. Please watch the video, it will help you will understand more about it.

I personally use a drug called Amantadine (it is usually prescribed for tremors) I find it helpful to use at night for the extra physical activity (that is the generic name for Symmetrel). It seems to help with the jerkiness, I understand there are others meds but this one works for me. Talk with your doctor and see what he/she suggests.

Nice to hear from you - keep in touch~